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Next step Cluster Headache reports.  It will be interesting to see how this gets spun as the usefulness of these alternative treatments are documented.  The caveat at the end of the study emphasized the controlled conditions and drug purity.  Went out of their way to discourage use in the natural state.  Sooner or later the value will be documented in such an irrefutable way that no one will think twice about considering mind altering drugs to address an altered mind.  It a positive thing and if you look there is almost nothing concrete published regarding negative effects of naturally occurring psylocibin 

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The only thing that worries me about research and making it legal is cost. 1 Zomig is $30 and they do not stop attacks from happening. I am afraid to think what the cost of a drug that only needs to be taken 3 times and when ever you need a maintenance dose!

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Well folks will still have the option of growing their own.  For all the advice out there it is cumbersome and harvest has a pretty long horizon.  If (big if) a prescription pure tablet is available no doubt it will be highly regulated, may require an outpatient setting to administer and have lots of associated costs.  My guess would be many would choose to seek "natural" sources just to avoid regulatory hassles.  Just like the black market and home growers for marijuana has not gone away so would it be with MM.  The difference is folks would have strong evidence to support their treatment strategies and may feel less threatened about criminal prosecution.

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Pebblesthecorgi

I agree with you and I hope that we get some progress. My point was that our system the pharmacies does not sell cures, they sell stuff that manages symptoms. The pharmacy had to cry when I found MM and seeds because I no longer use any prescription meds for headaches any more. Thats thousands and thousands of dollars a year they no longer get, not to mention I am not seeing my headache specialist at the co pay of $80 per visit. Again thank you Clusterbusters you guys are the best!

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Traditional western medicine really isnt about cures for complex systemic conditions.  This is especially true of autoimmune conditions like rheumatoid arthritis, connective tissue disease and diabetes.  Cancer is often controlled, placed in remission and sometimes "cured" ususally using enormous resources.  Its true for us Chusterheads as well.  Nothing we discuss is a cure, we are searching for reliable effective treatments to control the beast.  Unfortunately the low incidence of clusterheadaches, erratic treatment responses, late\poor diagnoisis and the quiet those afflicted possess put the problem in a low priority for studies.  Bottom line since so few folks actually have CH there isnt enough money in it for big pharma to make a concentrated effort.  This is why organizations like Cluster Busters are so important.  By creating unity and understanding it allows custerheads the ability to organize, communicate and share information in an effective manner.  Things like the conference and headache on the hill give us a voice to enlighten folks about the condition and provide access to effective treatments while studying alternative  options in a rigorous way.  Using MM and LSD as an example....When Timothy Leary went off the tracks and abandoned a scientific approach to studying the effects of hallucinogens the long term affect was getting these valuable drug banned and several generations of folks with PTSD, addiction, anxiety and headaches never had the opportunity to explore the usefulness of these alternatives.  So while we do our "citizen science" applaud those who are doing the hard work of rigorous science and lobbying for better access to affordable treatments and empiric research.

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Please, to get prove of the usefulness of any alternative treatment, please use my app to register all symptoms, medicine use, vitamins AND Alternative treatments.

 

My idea, starting with this app was this:

I you register Symptoms for a while you get a nice view on how you are doing. 

If you start a treatment (normal or alternative)

And the symptom registration drop.

 

You'll could have discovered a solution to treat you symptoms. 

If lots of people use that treatment and all have their symptoms dropping, we are getting in the right direction.

 

To show what I mean I'll include my timeline (and an example of the timeline we are working on, just for you to see how we display information.

 

Complete-timeline.png SymptomTimeline.png opzet_tijdslijn.png

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