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Andrew

Please help me

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Hi my names Andrew I'm 28 from England I have suffered with these cluster attacks for 12 years now have tried everything from paracetamol to ketimine nothing has ever worked I have had to go threw each attack head on and it can never be prepared for. I have attempted suicide on multiple accusations threw lack of belive it's ever going to go away! I have on average 2-3 attacks a day continously can only remember one long period (6months) were went into remission but only to come back with a vengeance!!! I have recently discovered this mushroom theopy and can not be more inclined to find out more if any can refere links to me numbers anything it would be a great help and I can't belive after 12 years I actually have seen other people on YouTube with same attacks as I thought I was over the top in how I reacted to the attacks.

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Andrew,  

mm (and truffles), LSD and LSA definitely help.  They've been the only thing that's given many of us our lives back.  I was chronic and have been taking regular doses for over 7 years now.  I've been pain free a significant amount of that time.  I believe truffles are available where you live.  Please read the files section on this message board.  There's a specific process you need to follow.  

1) detox from all triptamine type drugs (Imitrex, maxalt etc. etc).

2) Wait 5 days from he start of detox for your first dose.  Take enough for a "threshold" dose.  Meaning you get some trip out of it.  Most of us find that the stronger the trip the better the medicine works on our CH.

3) You'll likely get what's called "slap backs" after your first dose.  Don't worry, the attacks will go down after the 2nd and 3rd doses. Take each dose 5 days apart (not 4, not 6).  For some reason 5 days is the sweet spot for something in our brain to reset.

After the 2nd dose you should notice the attacks being milder and slightly further apart.  After the 3rd dose most people are pain free, but a lot of people also need another dose.  It all just depends on your body chemistry, and the strength of the mm.

 

post questions.  (but please read the busting files section). :)

J

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Andrew, you are right to seriously consider busting, and THMH has given you what you need to know: read the numbered files in the Files section and follow the process he has described.

If you have not done the "Vitamin D3" regimen you should start it.  It has made a very big difference for many, many people.  You can also read about that in the Files section. (I realize that people in your situation are inclined to eventually give up on treatments, and surely you might wonder how some vitamins will help you when powerful medicines have not helped. But many people in that very situation have achieved very good results with the D3 regimen.  You have to follow it to the letter.

We find often that when people say they have "tried everything," they have missed some core elements, most particularly oxygen.  Have you used oxygen?  If so, how was it delivered?  Because often people who did not get relief from oxygen were using ineffective delivery systems -- the regulator did not provide a high-enough flow rate; the mask was shoddy or used wrong; the O2 came from a concentrator, not from a tank/cylinder/cannister.  No matter what success you have with busting and D3, effective oxygen can be a life-changer.  If you have actually used everything pharmaceutical that typically helps with CH (I would include sumatriptan/Imigran, corticosteroids, and verapamil at the top of that list) and none of it helps you, and not even ketamine helps you, I have to say that I would also test a different diagnosis, such as paroxysmal hemicrania or hemicrania continua.  Those things look a lot like cluster headaches -- but they are effectively treated with a single medication, indomethacin.  So if indomethacin is not on the list of things you have tried, it would be worth a shot.

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Hi Andrew

As Ch father states busting or d3 may help but first a correct diagnosis is essential ,as you are in the Uk like myself can i ask a few questions that may help us help you 

1.has a headache specialist /neurologist diagnosed you?

2.have you tried oxygen ? (its quite possible you now live in an area where the demand valve system is available on prescription )

3.if no to the two above has your GP referred you to a headache specialist neurologist ?

pm or answer here if you wish 

zany

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Welcome Andrew! 

With respect to oxygen, some folks in the UK experience problems sourcing O2 thru ya'lls NHS....however, unless there are underlying conditions that contraindicate its use, it is recognized as a viable treatment in the UK....if you have any problems of that nature, contact OUCH UK and they will provide assistance with the HOOF form.

Where are you located in the UK?  I know several clusterheads in England and Scotland....a friend in Scotland hosts a couple meet n greet events every year.....nothing like meeting someone who "gets it" and understands exactly what you deal with!

Dallas Denny 

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Try all these wonderful suggestions. Some things work for others and some things don't work for others-Its seems to be that every body/brain finds different solutions. My Husband was able to break his 20 year cycle of very bad clusters with Seroquel- an antidepressant. If you try everything and they don't work please try a RX  of seroquel

(if Doctor approved for you) ..for a few weeks to see if you get a result. All the very best! Hugs!

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Wow so many responses I'm blown away thank you all , wasn't expecting any reply , on further investigation I have my mind set on mm therapy, when I was clueless to ch I took many unprescribed drugs and find it hard to get prescriptions from my doctor. I'm just trying to figure out what mm are best to use it keep hearing golden teacher is a good one , thanks again people can't believe their is so many of us , massive respect to all the survivors ✌

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Andrew,

Though you may have your heart set on the mm as therapy, I have had success for long periods of time, (up to 2 years at a time) of putting the dreaded CH into 'remission' with prescribed medication from a neurologist. The therapy included Verapamil (calcium channel blocker) and oral steroids such as Prednisone ( anti-inflammatory) used TOGETHER, as prescribed!! The simplist fix of all was Oxygen deliver in the purest form from a canister with a proper regulator and NOT a concentrator. The problem with this, is that it is temporary, but almost IMMEDIATE. I wish you the best with everything, find what works for you, there is a combination for you. 

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hello andrew,feel for you mate, glad you discovered this site ,and mm treatment,!these fine folk from the USA have been great to me and my 

education of my personal battle with the beast! hope your doing okay ,give me a shout if need chat as i i am closer to home,"north west"

as we probably share the same restrictions!!

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