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mit12

CH side eye

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I get Clusters on my right side and have noticed that my right eye is a little lower than my left eye. I have looked at pictures from when I was younger and my eyes look to be the same hight. Has any of you noticed this? 

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I have not had that Mit. My CH eye lid drooped badly for about a year. As in made it difficult to read it drooped so badly. I worked for months to get it back in place. It did not revert when the cycle ended and the doctor would not operate to fix it. So, I started reading with a book in my lap and gradually worked it up to normal reading height. Now that eyebrow is higher than the other and I have forehead wrinkles on that side, but my eye opens all the way. It barely droops in cycle now, but the pupil will not dilate even halfway after a month in cycle. Messes with my night vision.

Is the eye itself lower or is the bottom lid drooping a bit and making it appear lower?

The iris on my CH side did change colors. Not common at all. I went for an all day assessment at Duke Hospital and they only found two other cases. So, not something for others to worry about.

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Spiny,

it is the complete eye. Weird thing is i got bifocals and noticed that the reading level was off from side to side. I looked at the glasses and they were the same. I looked in the mirror and it is the eye. It is not a lot but it is noticeable. Does not cause any problems. I guess the strain of having CH over 40 years has taken its tole. 

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A good friend at a conference a few years ago pulled a cool magic trick...  

He bet anyone he could tell them the side they get their CH attacks on..  Everyone he guessed was correct.  I asked how he did it.  He said, that if you look closely everyone with CH has either a lower eye, sagging eyelid or sagging under eye on the side they get attacks.  I did some looking around at people, and he was completely correct.  If you look closely most if not all of us are lower on our attack side.  I don't know how that relates to those with CH that changes sides, or have attacks on both sides though.

 

J

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ThatHurtsmyhead,

that is what I am talking about.

Spiny 

looking at pictures it appears that this has been a slow process and has been this way for a few years according to pictures. I just noticed it because of the bifocals. I thought that my glasses were made uneven. 

Thanks for the replys. 

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Mit,

I have been doing alot of research due to my CHs returning and came across Horners Syndrome. It talks about droopy eye and has been associated with cluster head aches in other medical articles please see below. if this helps let me know and I will pass along more info, I have a knack at data mining. Hope this helps

CB

Horner syndrome

Horner syndrome is a rare condition that affects the nerves to the eye and face.

Causes Horner syndrome can be caused by any interruption in a set of nerve fibers that start in the part of the brain called the hypothalamus and travel to the face and eyes. These nerve fibers are involved with sweating, the pupils in your eyes, and some of the muscles around your eyes. Damage of the nerve fibers can result from: 

Injury to the carotid artery, one of the main arteries to the brain 

Injury to nerves at the base of the neck called the brachial plexus 

Migraine or cluster headaches 

Stroke, tumor, or other damage to a part of the brain called the brainstem 

Tumor in the top of the lung 

Injections or surgery done to interrupt the nerve fibers and relieve pain (sympathectomy) In rare cases, Horner syndrome is present at birth. The condition may occur with a lack of color (pigmentation) of the iris (colored part of the eye). Symptoms Symptoms of Horner syndrome may include: 

Decreased sweating on the affected side of the face 

Drooping eyelid (ptosis) 

Sinking of the eyeball into the face 

Small (constricted) pupil (the black part in the center of the eye)

There may also be other symptoms, depending on the disorder that is causing the nerve damage. Exams and Tests The health care provider will perform a physical exam and ask about the symptoms. An eye exam may show: 

Changes in how the pupil opens or closes 

Eyelid drooping 

Red eye Depending on the suspected cause, tests may be done, such as: 

Blood tests 

Blood vessel tests of the head (angiogram) 

Chest x-ray or chest CT scan 

MRI or CT scan of the brain 

Spinal tap (lumbar puncture) You may need to be referred to a doctor who specializes in vision problems related to the nervous system (neuro-ophthalmologist). Treatment Treatment depends on the cause of the problem. There is no treatment for Horner syndrome itself. The provider can tell you more. Outlook (Prognosis) The outcome depends on whether treatment of the cause is successful. Possible Complications There are no direct complications of Horner syndrome itself. But, there may be complications from the disease that caused Horner syndrome or from its treatment. When to Contact a Medical Professional Call your provider if you have symptoms of Horner syndrome.

Alternative Names Oculosympathetic paresis References Baloh RW, Jen JC. Neuro-ophthalmology. In: Goldman L, Schafer AI, eds. Goldman's Cecil Medicine. 25th ed. Philadelphia, PA: Elsevier Saunders; 2016:chap 424. Thurtell MJ, Rucker JC. Pupillary and eyelid abnormalities. In: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, eds. Bradley's Neurology in Clinical Practice. 7th ed. Philadelphia, PA: Elsevier; 2016:chap 18. Review Date 5/30/2016 Updated by: Amit M. Shelat, DO, FACP, Attending Neurologist and Assistant Profess

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