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CHfather

Memantine / Namenda??

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I also tried it but after only 3 days I got terrible depression (which i never ever suffer from) so had to stop. If you can get past that though I've heard some good reports.

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I don't know if you have access to the whole study but when you look at the mechanism of action I don't believe this would help clusters based on our present theoretical framework.  The population studied were more classic headaches (tension, migraine) and the results were ok but not great.  Being a meta analysis it has some validity but applying to Clusters (which are not a primary headache disorder) would be a reach.  Not a lot of side effects (or so they say) so giving it a try might be a consideration but it would be a shot in the dark.

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CHfather, I'm off topic on this one but did you think about Cymbalta/Duloxetin? Did not find this term using the search function but I'm sure it is known to this portal. I've got some side effects so I stoped. Not having major problems using 1gr verapamil per day I left Cymbalta behind. Do you know this med? For me it worked well. 

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the side effects to me: lost of sense of taste at an impressive level. Lost of appetite and sense of permanent vomiting. Cymbalta did really nock out the attacks within a short time of period. I do not remember exactly time spend until the med start working but it mast haven been just a couple of days in order to work for me. It is an anti-depressant but as most of them do not work for me so there is just another reason for not taking the Cymbalta way.

As always, this side effects are known amongst 5'000 others ;) , but everybody in his particular state in time has different reactions.

 

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Cymbalta is a pretty good med for nerve pain all around. My Mom was on it for her fibromyalgia. She didn't have any nausea or anything, just some hives. (She's not on it any more.) So it may work for CH too.

Another that's off topic, that you might look into, is Zonegran / Zonisamide. It's kind of like Topamax's little sister but without such severe side effects. Carbonic Anhydrase Inhibitor. Basically it has way less brain fog.

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I know this is an old thread but figured I'd share in the hopes that it helps someone. I've had CCH since July of 2017, went through the whole routine verapamil, O2 nothing worked well. In Spring 2018 was put on Memantine and it has noticeably helped. Side effects for me are actually positive as it greatly reduced anxiety at work, other than that no side effects. Currently 20mg a day.

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