chh Posted April 18, 2017 Share Posted April 18, 2017 hi I get ch daily and I use O2 however after it ends I feel week all day and I can not work, is there a solution to this ? Quote Link to comment Share on other sites More sharing options...
registrateyourjourney Posted April 19, 2017 Share Posted April 19, 2017 Hi Chh, I don't think so. I do also feel very week after 1,2,3 or half a year nights awake. But we have to go on so I push myself to go one and try to change my mindset. I try to stop thinking if I have an attack, pressing my pause button in my head. If the attack is over I press "Play" and go on. But thats not a solution and I hope you will find a way to handle it. Quote Link to comment Share on other sites More sharing options...
amon10 Posted April 20, 2017 Share Posted April 20, 2017 Sorry your getting CH hits daily. I have no answers to help you but know it's not the oxygen leaving you tired. Cluster attacks take more of a physical toll than we sometimes realize. If you have some milder attacks try a 5 hour energy shot or Red Bull. Also if you have daily attacks with a unending cycle you might want to research busting in the files section. 1 Quote Link to comment Share on other sites More sharing options...
spiny Posted April 20, 2017 Share Posted April 20, 2017 Welcome cch, Just having an attack, without O2 can leave you washed out and tired. Can you give us a little background on your CH? You know, what are you on and what have you tried. Why type of O2 setup do you currently use? Reading the Clusterbuster Files is very informative. Quote Link to comment Share on other sites More sharing options...
chh Posted April 20, 2017 Author Share Posted April 20, 2017 4 hours ago, spiny said: Welcome cch, Just having an attack, without O2 can leave you washed out and tired. Can you give us a little background on your CH? You know, what are you on and what have you tried. Why type of O2 setup do you currently use? Reading the Clusterbuster Files is very informative. it take like 30 to 60 minutes very acute then it stops but I feel week all day long. I use O2 from a big tube using continues flow regulator. can you give me a link to buster files ? and how it can help me ? Quote Link to comment Share on other sites More sharing options...
urs Brasil Posted April 20, 2017 Share Posted April 20, 2017 in a first step by reading them Quote Link to comment Share on other sites More sharing options...
spiny Posted April 20, 2017 Share Posted April 20, 2017 At the top of the page, where you found this board "General Board' you will also find the 'Clusterbuster Files' board and 'Share Your Busting Stories' board and so on. I take it that you are using a breathing tube rather than a mask? What flow rate does your regulator go to? Can you adjust it? Have you seen a Neurologist and what medications did he prescribe for you? There is a lot to learn here. Baby steps, you know? 2 Quote Link to comment Share on other sites More sharing options...
CHfather Posted April 21, 2017 Share Posted April 21, 2017 30-60 minutes is way, way too long. Should be 15 minutes, at most. Please tell us more about the "big tube" you are using and the regulator (what liters per minute) and the source of the oxygen -- is it coming from a tank/cylinder/canister, or from a machine. Is there a bag on the "big tube" that fills with oxygen and then empties as you inhale? 1 Quote Link to comment Share on other sites More sharing options...
chh Posted April 21, 2017 Author Share Posted April 21, 2017 it is cylinder with continues flow mask, we dont have anything else in Egypt and I really see alot of trouble to refill the cylinder when it is empty. I adjust the regulator to 12 ~15 liter. we have o2 machines in Egypt but very expensive the 10 liter machines cost 25K EGP and I really dont know if 10 liter/min will be enough to abort my ch. I read about the Clusterbuster Files , the D3 I tried several years ago and did not work for me although I got all vitamins from amazon and made some one ship to me, it make my ch occur like 6 times per day instead of 1 or 2 !!! it was like hell. About the mushroom I want to try but I dont know how I can get it !!. Thanks for your help Quote Link to comment Share on other sites More sharing options...
CHfather Posted April 21, 2017 Share Posted April 21, 2017 chh, Cylinder is better (except for getting the refills) -- I just wanted to be sure that's what you had. Since you can buy things through Amazon, you can get a non-rebreather mask from Amazon. Quite inexpensive, but of course I don't know about shipping. Sorry about that experience with the D3! Quote Link to comment Share on other sites More sharing options...
chh Posted April 21, 2017 Author Share Posted April 21, 2017 thanks for all the help. please if someday scientists made something for ch pm me to buy it. Quote Link to comment Share on other sites More sharing options...
registrateyourjourney Posted May 3, 2017 Share Posted May 3, 2017 Just hope you are doing fine. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.