scubasteb Posted September 12, 2017 Share Posted September 12, 2017 Hi all, my name is Steve and I have episodic CH's for the last 7 years. I was first misdiagnosed by an ENT and then a neurologist, then properly diagnosed by the same neurologist after a follow-up visit with CT scan. Got put on a few meds that may have worked, but considering the way CH's vary from attack to attack, I'm not sure if they really did helped. I typically get my once a year cycle in mid-to-late-November, but for some reason they came on in early August this year. Without insurance, I decided to try out MM and took 3 doses, spread out at 4-5 days in between. I still got attacks in between doses, but I'm hoping for the best after this last one (if I'm getting the terminology right, the attacks may have been "slapbacks"... I guess I'll find out soon enough if the third dose busted me out). I've learned so much from the ClusterBuster site and also from you all here on the forums, and I'm determined to get an oxygen tank. I'm in a bit of a standstill though, because I don't have insurance and so everything will have to come out of pocket for me. Neuro visit to get the script will cost $250 and after that, I'm not sure how much it'll be for the tank, refills, etc. It seems like there's overwhelming support for going the welder's oxygen route. I do have concerns here though. For those of you with long-term experience with welder's oxygen, have you ever had any adverse effects? My concern is not with the purity of the O2 (as I've read here that it's the same level of purity at medical-grade), but the cleanliness of the tanks. I'm just worried that I'll be putting unknowns into my system that is already fragile. I've already read every bit of welding info here on the message boards and I haven't read anything negative. But, like looking at the reviews on Amazon, I tend to want to hear both sides. I want to not only hear about everyone's great 5-star experiences, but also the 1-star reviews. Has anyone had any bad experiences with welder's oxygen? I'd really like to hear from you. Thanks and hope you are all pain free today! Steve Quote Link to comment Share on other sites More sharing options...
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