VDG Posted September 12, 2018 Share Posted September 12, 2018 thank you Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted September 14, 2018 Share Posted September 14, 2018 another year missed but a little of me will be with all of you. Pain Free Wishes everyone Quote Link to comment Share on other sites More sharing options...
xxx Posted September 16, 2018 Share Posted September 16, 2018 Where are all the photo's? V/R, Batch Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted September 17, 2018 Share Posted September 17, 2018 Yes, many of us are NOT on fakebook or other forms of social media. Kinda left in the dark ! I would love to hear all about it, stories, laughs, smiles, etc ! Please share for us who coulnd't attend ! thank you Quote Link to comment Share on other sites More sharing options...
godsjoy777 Posted September 17, 2018 Share Posted September 17, 2018 I have a few pics on my phone but since I’m on my iPad right now I don’t know how to share. This was my first actual Clusterbuster conference. I had gone to a cluster headache conference 12 years ago in Dallas. It was eye opening to my husband and I just loved meeting and making some true new friends. My husband started collecting contact info. On several cluster heads that live kind of close to us . We’ll be trying to have some get togethers in the next few months. I really was hoping to meet Batch there.......but sadly you weren’t there Batch. I know how to use O2 because of you and of course I am doing vit d regemin. My husband and I are in Estes Park, Colorado planning on doing a little hiking but mostly resting for a week. The conference was great but exhausting......in a good way. Eileen Brewer probably has a bunch of pics.. love you cluster peeps! 1 Quote Link to comment Share on other sites More sharing options...
FunTimes Posted September 18, 2018 Share Posted September 18, 2018 I also just returned from the conference. It was nice to see others like myself, I think it will take a few days to soak up all the information. Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted September 18, 2018 Share Posted September 18, 2018 It was good to see everyone. I no long take pics at the gatherings as I used to. I'm sure there are those that do and I hope some of them get posted up here. 1 Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted September 19, 2018 Share Posted September 19, 2018 well i guess no one has nothing to say or pics or stories to share....oh well. take care everyone. Quote Link to comment Share on other sites More sharing options...
CHChris Posted September 20, 2018 Share Posted September 20, 2018 I did not take many pics. This was my first conference, it won't be my last. Besides getting to meet and hang out with lots of very nice people, I came home armed with a lot of information. Literally from the moment I arrived until the time I left I was busy gathering information, sharing stories, and fellowshipping with a great group of people. Everyone was helpful, and I came away months worth of information to process. I had never met another cluster headache sufferer before, so the conference was especially eye-opening for me. Racer1_NC taught me how to use oxygen, which I was able to put into practice the next day. I had never properly used oxygen before, and it makes a world of difference. Thank you very much for your help Before I went to the conference I had read that this condition had altered people's lives. I know it has changed mine. But getting to talk to people who understand what you are going through is absolutely priceless. Being able to relate to complete strangers in ways that I can't with my closest family members is an odd feeling, yet was completely exhilarating. I ate every meal as fast as I could, sometimes rudely talking with my mouth full. I stayed up way later than I normally would, talking and hanging out with people I had never met. The presentations were very informative, and I came home with a lot of "action items." For example: find a new neuro that will actually prescribe oxygen, because it is the best abortive treatment I have found. I have a lot of new things to try, and I am emboldened by the experiences others shared with me. As it turns out, I'm not so weird after all, and that is empowering. Also, I saw a lot of people drinking alcohol, which is a big trigger for me. As it turns out, it is for a lot of people, but they are beating the beast and can enjoy there lives. Next year, I want that to be me. 1 Quote Link to comment Share on other sites More sharing options...
Joyisnow77 Posted September 21, 2018 Share Posted September 21, 2018 On 9/19/2018 at 10:26 AM, ClusterHeadSurvivor said: well i guess no one has nothing to say or pics or stories to share....oh well. take care everyone. Would be nice indeed to know any new scientific informations that was communicated over there... Quote Link to comment Share on other sites More sharing options...
CHfather Posted September 22, 2018 Share Posted September 22, 2018 On 9/20/2018 at 6:02 PM, CHChris said: Racer1_NC taught me how to use oxygen, which I was able to put into practice the next day. I had never properly used oxygen before, CHChris, can you say anything about what you learned from Racer's presentation that helped so much? He's great, and always full of great advice. On 9/20/2018 at 6:02 PM, CHChris said: find a new neuro that will actually prescribe oxygen, because it is the best abortive treatment I have found. I assume you have heard that many people use welding O2 as the basis for their systems. That's an option worth exploring if you can't get a prescription for medical O2. Quote Link to comment Share on other sites More sharing options...
VDG Posted September 23, 2018 Share Posted September 23, 2018 On 9/16/2018 at 11:06 PM, godsjoy777 said: I have a few pics on my phone but since I’m on my iPad right now I don’t know how to share. This was my first actual Clusterbuster conference. I had gone to a cluster headache conference 12 years ago in Dallas. It was eye opening to my husband and I just loved meeting and making some true new friends. My husband started collecting contact info. On several cluster heads that live kind of close to us . We’ll be trying to have some get togethers in the next few months. I really was hoping to meet Batch there.......but sadly you weren’t there Batch. I know how to use O2 because of you and of course I am doing vit d regemin. My husband and I are in Estes Park, Colorado planning on doing a little hiking but mostly resting for a week. The conference was great but exhausting......in a good way. Eileen Brewer probably has a bunch of pics.. love you cluster peeps! It was nice meeting you too! Enjoy hiking! Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted October 22, 2018 Author Share Posted October 22, 2018 I will ask Ashley to do a wrap-up and post some pictures. 1 Quote Link to comment Share on other sites More sharing options...
CDog Posted November 8, 2018 Share Posted November 8, 2018 Seriously, still nothing? Quote Link to comment Share on other sites More sharing options...
Tony Only Posted December 13, 2018 Share Posted December 13, 2018 This is a bit silly coming from someone who has never even been at a conference but have you though to have a "media person" who would take pictures and post them here maybe with a short summary being same person every year ? Maybe someone not having clusters just concentrating on documenting and reporting. Just an idea ! Quote Link to comment Share on other sites More sharing options...
Fíona Posted February 16, 2019 Share Posted February 16, 2019 ooooh! I hope another Portland Oregon one soon! Maybe I'll just hold one myself at my home, pass out Fadiman's book, and print out Mr. Wold's endless helpful info online....Hmm.. I can and paste flyers around town "Calling all migraineurs and cluster people: special tea & "brownies" to be served. 1 Quote Link to comment Share on other sites More sharing options...
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