Jump to content
ClusterBusters
Sign in to follow this  
Vanessa

Any new treatments

Recommended Posts

Hi guys. My partner of 10 years is in this third cycle of cluster headaches.  He has them every 3 years for 6 weeks and this year a few months earlier than normal. Anyone tried botox? He's currently on oxygen and the other standard medication  ( forgot the names bit the blood pressure one and nasal sprays). 

Update. He's just locked himself in the bathroom crying. Oxygen not working.  This is a bad one. Nothing I can do...

Share this post


Link to post
Share on other sites

Hi Vanessa

Sorry to read this thread!  

There's not really any new treatments as yet although we do finally have some real research in progress!

Have him try energy drinks or shots at onset as that helps many folks

And read up on the anti inflammatory vitamin D3 regimen in the files section.....its important to incorporate all of the co factors and have a blood test but it helps the vast majority of clusterheads who follow the process correctly

Dallas Denny 

Share this post


Link to post
Share on other sites

D3 regimen as a preventive, and energy shots (such as 5-Hour Energy) as an abortive, as Denny says.

Upgrade his O2 system: 25lpm regulator and best mask http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit  (Just a side note that for some reason when O2 level is low in the tank, it doesn't seem to work as well.)

The blood pressure med is probably verapamil.  Most people need more than docs prescribe -- as much as 960mg/day.  And it should be the NON extended release form.  If sumatriptan nasal spray isn't working, he should get the injectable kind.

Taking Benadryl 4x/day (25mg, 25, 25, and 50mg at night) helps some people.

Check the list of Triggers in the ClusterBuster files section.

 

Edited by CHfather

Share this post


Link to post
Share on other sites

Hey Vanessa,

I've sent you a PM with information about the anti-inflammatory regimen CH preventative treatment protocol.  For a read-ahead, download a copy of this vitamin D3 treatment protocol at the following VitaminDWiki web site.

http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708

This treatment protocol works very effectively to prevent CH with no side effects or adverse events.  Over 700 CHers have started this treatment protocol since December of 2010.

Take care,

V/R, Batch

 

Share this post


Link to post
Share on other sites

Amgen's new CGRP inhibitor Aimovig, a monoclonal antibody, should be available, and has had some success in cluster. Talk to your neurologist.

Edited by LennyC

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×