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Clusternana

Freezing

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...same as Fun Times here...it's our wonky hypothalamus (body temp regulator amongst MANY other functions )...source of the beast in the first place. a wise diagnostician would take this into account in a differential diagnosis

Edited by jon019

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I too get very cold during most of my attacks - I'm also one of the weirdos that responds better to heat than ice during an attack. I wrap my whole head in a heating pad and that sometimes helps with the overall freezing feeling I get too!

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1 hour ago, muggle said:

 I'm also one of the weirdos that responds better to heat than ice during an attack.

...I resemble that remark (in more ways than one)...hottest shower on the head I can stand....know of another who alternates hottest/coldest (he likes a frozen bag o' peas...…..)

Edited by jon019

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Spot on with the hypothalamus. Mine is extra special whacky... Meds I was on (unrelated to clusters) for years 'fool' the hypothalamus. It then tells the body 'You must have carbs.' In my case body obeyed. I went from my normal 125 lbs (I'm 6' tall) to a whopping 260 lbs. I could barely move. I demanded the meds be discontinued & they were. Less than a year later back to 125 lbs & moving.

Several years ago I had food poisoning so severe I was hospitalized. My core temp at admission 94° pneumonia set in. Back and forth hours apart... core temp 105° cooling blankets applied. Core temp 93° warming blankets applied. I had standing orders for cooling & warming blankets.

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I tend to go in basement for the cold floor, love to blast he AC out when I'm in the car during a bout.

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On 11/27/2018 at 4:22 PM, jon019 said:

...I resemble that remark (in more ways than one)...hottest shower on the head I can stand....know of another who alternates hottest/coldest (he likes a frozen bag o' peas...…..)

Before I was diagnosed, this was about the only thing I would get any relief from, sit on the floor of the shower, water as hot as I could stand, sit with my head bowed. Eventually it stopped being nearly as effective, but at this point I have topical numbness around my attack site so that may be a reason.

I do tend to get cold during attacks on occasion so sit in a hot bath. Or shower. I have never experienced getting too hot, only cold. 

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