Jump to content

newbie checkin in


This isnt fair
 Share

Recommended Posts

Newbie here. However not to the monster. Suffering about 6.5 yrs now, with a few breaks between.Have to say, wouldn't wish this on any body ever! I will be reading and posting soon, when the monster leaves me alone a Lil bit.lately my o2 isn't working, and the last 2 doses didn't help,worst round to date,having a really hard time. Told my Nero last app[6 months ago about trying the dose and she fired me!] flying solo now. well, that's it for now. Best wishes and calm times for you all!!  Thanks for being here!!

Link to comment
Share on other sites

Hey there Newbie...

You may not know it but you are a lucky guy. You got Tingling to be your first response. Everyone likes to hear from her.

I like your screen name...sad but true.

Take care of yourself and hang in there. I thought I was on a roll but had the usual 1:30AM hit last night.

I guess I had my hopes set too high but for now will just say it was one of those rogue/random hits.

Dan

Link to comment
Share on other sites

Thanks for the welcome Tingeling and hipshot!Its been a ruff day. I finally dropped from a 9 to a 6. the 6 feels like a 0 compared to the 9,could spend a Lil time reading around here,between tears.Mostly because I feel for all of you here, and partly because I know the night is coming fast,partly because my body is exhausted 4-5 hrs of sleep this entire week.its been a Lil ruff-er this week on top of it all because I am a newly single father of a six year old and he has been pretty sick with the flu for a couple days. I used to have support from a wife, but recently she decided she was done being a mother and a wife and hit the road. soooo the added pressure of having to be a dad and a mom first, and somehow pretend to be normal and not on the edge has been damn near impossible.I have to stop now, cant see to type. sorry, first time i shared with anybody.

Link to comment
Share on other sites

Damn.

Soooo I bet things will start looking up for you and your son.

It really helps to know that you are not the only one "who's life sucks".

As my buddy (did burn one with him once, anyway) Willie Nelson says: Just connect your feet to the sunny side of the street!

Things will improve.

I feel for you and wish you pain free days soon.

Take care

Dan

Link to comment
Share on other sites

Damn dude! You're one tough S.O.B. And you're about to get a whole lot tougher. I'll bet you're mad as hell. You really got it thrown at ya. My wife left me about 4 years ago - after 25 years of marriage. I'm still spinnin.' I don't think I could've taken much more than that. You had two women that you really depended on dump you. I know it's probably impossible to imagine just now, but you'll probably end up being better off for it in the long run. Any woman that would leave her own 6-year-old son isn't someone I'd want raising him. And a neuro that would dump a CH patient because he was trying to find his own way out of CH hell isn't worth the paper her diploma's printed on. I don't know any more about your circumstances than what you've told, but I do know that you don't need to pretend to be normal (whatever that means) around here. You can feel free to vent here, ask questions about anything and not be criticized and expect to be supported by pretty much everyone here 24 hours a day. There's a whole lot of bustin' experts here who can make sure you do this properly. You'll probably be advised to find another doctor; preferably a neuro who is a headache specialist; one who treats CH patients. If you tell us where you live, someone can suggest a doctor or doctors near you. When you're able - it sounds like you're kinda busy - read as much as you can here and also on another CH website that is more attuned to traditional CH treatments:  http://www.clusterheadaches.com/wwwboard2/index.html). You might start on this website, at the bottom of the first page, in the ClusterBuster Files where you'll find more information than you can imagine. Right now you need some help. Tingeling asked if you have a network of folks that can give you a hand. If you don't, you're either going to have to hire a nanny and cut back on your CEO hours at the corporation or pay a visit to Social Services. Please stick around. We can and will help. I'm very sorry that all this has happened to you and that it's happened all at once, but you will definitely get through this and you'll end up a better man after you do. Don't hesitate to PM me, email me or call me (619-445-0434) anytime, 24/7.

Link to comment
Share on other sites

Hi again guys!  I want to thank everyone for there support and kindness.THANK YOU!!!! I also have to share. What a odd thing that happened yesterday,something changed [i hope] however I am sure I may be jumping the gun. I actually some way wound up with a full 6  hrs of sleep, no attack by the monster at the usual 1:20 am , that's more than I have had in the last 7 or 8 nights combined! I'm pretty sure my cycle has not ended ,should run another month or so.I hadn't had a  six hour sleep in just over 3 months. And today was a treat as well, only light shadows. Got to spend quality time with my son, and what a day it was.I am of course suspect of tonight as I am starting to feel the teeth starting to tingle. But wow My body and my mind has had a recharge, and I feel strong again! I only hope and pray that anybody who reads this and those who didn't, also gets a unexpected out of the blue moment of clarity that they can enjoy with loved ones and catch a break from this hell that we deal with almost constantly. well, thats it for now, thanks!   Adam

Link to comment
Share on other sites

My headaches always hit me at 1:30 am. If we're in the same timezone (I'm central) maybe you could call me and we can scream together.

Glad things at least for the time being are looking up for you. I'm sure your son enjoyed his time with you and vise-versa.

Hang in there!

Dan

Link to comment
Share on other sites

I'm back. I was right, it was just a brief glimmer of better times. Got pounded again last night. Back to life as we know it. somewhere between 30-45 min sleep. I had almost forgot how frickin bright all those little led lights on stuff are, trying to get to the freezer for ice packs was like looking directly into the sun,man they sure make things even worse. My son and I had the best day together. He sure was happy to have his dad [all there]! well ,off to work.   Try and have a good day! Adam

Link to comment
Share on other sites

Life Isn't Fair,

Just thinking about you and hoping your holding up.  So many of us hang on for the sake of our kids.  Being a single parent can be overwhelming and then adding CH's into the mix can leave us feeling like we've been pounded into the ground.  Keep pressing forward.  You'll have many, many more good days with your son.  It sounds like he has a great dad!

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
 Share

×
×
  • Create New...