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Vitamine D3

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Hey Cocobongo,

Sorry about the delay in responding.  We were on travel to stay with kids most of December so I missed your post above on the 12th.

Your English is great and it appears you've a handle on the CH beast.  Please keep me posted.

Take care and Happy New Year.

V/R, Batch

 

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I am new here,.  I need to find the recommended start up for the D3 regiment. I have taken 2000 units for years because I was told I was deficient.  

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You will find all the info on the D3 Regimen on page one of this thread. Read through it and start your own thread to draw more responses. :) 

The links there are very helpful and Batch is a saint with this info. He will respond to a pm if you send hi one.

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Hey Hammered,

I've sent you a PM as Spiny indicated I would.  My PM covers everything you'll need to do to get started on the anti-inflammatory regimen and then some.

Please keep us posted.

Take care,

V/R, Batch

I

 

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Hello Batch, 

 

I hope all is well. I am a new user here - 20 year old male, recently diagnosed with cluster headaches (by GP who referred me to neurologist at U Michigan’s Migraine Center) I have been getting them for 6 years but always assumed they were migraines, since my family gets migraines. 30-60 minutes of intense pain on left side, lots of saliva, eye sometimes tears up, daily for weeks/months a time. I would sincerely appreciate your help and thoughts. 
 

I just got prescribed Verapamil 120mg daily, Imitrex Injections, and also started taking 1000 IU Vitamen D3, and 500mg Magnesium daily. Am working on getting oxygen. 
 

I get plenty of sunlight, so I doubt I have D3 deficiency (but will get this tested at my neurologist visit). My question for you is - is 1000 IU D3 enough, and is it safe to be taking 10,000 IU daily year round? This article says there are risks such as kidney stones (https://www.sciencedaily.com/releases/2019/09/190903134738.htm

 

Also, should I start taking the rest of the vitamins on your regiment, or just wait to see blood test results? Saw there is also a risk with mixing calcium and Verapamil. Further, what is the purpose of the rest of the vitamins that D3 and magnesium don’t cover? Just want to be sure it is safe to be taking high doses of all these vitamins daily year round when my levels may be normal as it is.
 

Thanks for your help!!

 

Best,

 

 

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The link to the D3 regimen is here: https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10%2C000+IU+of+Vitamin+D+in+80+percent+of+people.  You won't find it at the blue"New Users..." banner, but you should read the info at that banner in any event.

Batch will reply to you, I'm sure, but (a) no matter how much sun you get, your D level is almost certainly low -- if not low by medical standards (which it probably is), surely low by the standard of what is needed to combat CH.  I'd urge you to take the 10,000IU.  You'll probably be taking more than that soon. You have to take all the "co-factors" (the other supplements) to prevent side effects.  Take the calcium 8 hours apart from your verapamil.

120 mg verapamil won't have any effect, but maybe your doctor is being cautious and will increase your dose over time with some monitoring of your heart.  (You won't need it or want it after the D3 regimen has kicked in.)  The verap should be standard release, not extended release.  If you're going to use the Imitrex, you really should be splitting your injections.  Most people only need 2mg, not the 6mg that is in the autoinjector. https://clusterbusters.org/forums/topic/2446-extending-imitrex/    I don't know what "working on getting oxygen" means, but good for you for doing that!!!  O2 is the life-changer.  D3 and busting are life-changers, too.  You might want to read through this file: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/  Several suggestions there for getting by without O2.  Take a look at the "Triggers" file over in the ClusterBuster Files section, too.

 

Edited by CHfather

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Thanks for the correction @CHfather I need to remind myself it is being updated and not to refer folks to the basic non-busting info until that is updated.

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, @CHfather ,

 

Thank you very much for your quick response! I sincerely appreciate your help. A few questions to follow-up, If you don’t mind.. 

 

1. what do you mean by Verapamil being standard release, not fixed release?

2. So Omega 3 fish oil, calcium, Magnesium, vitamin K2, Vitamen A, Vitamin B 50, Zinc, and Boron all work together to counteract the negative side effects of D3?

3. Is there a health risk of taking all of these vitamins? For example, the Mayo Clinic states: The main consequence of vitamin D toxicity is a buildup of calcium in your blood (hypercalcemia), which can cause nausea and vomiting, weakness, and frequent urination. Symptoms might progress to bone pain and kidney problems, such as the formation of calcium stones.” (https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/expert-answers/vitamin-d-toxicity/faq-20058108)
Is this a risk for CH sufferers who follow this regiment? 

4. For this regiment, will I need to be taking multiple tablets of some of the vitamins daily? For example, the omega 3 fish oil comes in 360mg tablets, but 1000-2400mg are reccomended each day for the regiment? Am I missing something?

5. (last one!) the study states “A single tablet of the Mature Multi provides most of the other vitamin D3 cofactors at the required doses including calcium, zinc, boron and vitamin A (retinal). Does this mean if I take this Tablet,, I won’t need be taking calcium, zinc, Boron, and vitamin A (retinal)? 
 

Again, thank you very much for your help!

 

 

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40 minutes ago, Brain on fire said:

Thanks for the correction @CHfather I need to remind myself it is being updated and not to refer folks to the basic non-busting info until that is updated.

The "basic non-busting info" file has updated info about where to see the D3 file.  But the blue "New Users ..." banner that you referred to has only basic busting info.  No D3 info; no "non-busting info."

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Glad basic non-busting info is updated & in the future I'll look before referring. Since I couldn't take even D3 alone & keep my D level up naturally I don't often reread the basic non-busting info.

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Finance,
Batch is the man for the D3 regimen, so I can only partially answer your questions.  He'll be here soon, I'm pretty sure, or you can send him a PM (click on the envelope icon at the top of any page and then type Batch into the "To" line). He is amazing at responding to questions, here and by PM.  Plus, you can type either "Batch" or some key words ("Kirkland," for example, as I mention below) into the search bar at the top of each page and get virtually all the information you might need, though it's a lot to read through.

So . . . 

1. Verapamil comes into two versions, "standard" ("immediate") release and extended release.  The extended release form is, for some reason, generally ineffective.  (BTW, docs will sometimes prescribe a course of steroids, such as prednisone, to quell your pain while the verap is getting into your system. A few fans of verap here, but many are unhappy with the side effects and not thrilled with the preventive effects. Doses that are quite high (even up above 1000mg/day are sometimes needed for it to be effective.)

2. I think some of these co-factors are good in themselves, but they also combat the side effects.

3. You have to take a whole lot of D3 over an extended period of months to get D toxicity, and the effects are reversed when you stop taking it. But Batch is insistent that the co-factors do what is needed to prevent hypercalcemia, and I don't think he's seen a situation where that developed as he has been in touch with several hundred people taking the regimen.  I can say I know of one person who thought she could slide by on less than the full regimen and did become hypercalcemic.  The symptoms are quite evident if you have them.

4. You can get most of the supplements, including fish oil, in large enough doses to reduce your pill intake. Batch gets many of his from COSTCO's store brand, Kirkland.  Batch is now taking a 50,000IU D3 pill (not Kirkland Brand) every x days (I don't remember if it's every 5 days or more days than that).  

5. If Batch says that, I assume that it is correct.  I think Batch would also advise you to take Benadryl at 25mg several times a day. That has helped a lot of people.

6. (You don't have a 6. I'm just using this to say again, GET THAT OXYGEN. Your doctor, of course, should have prescribed it. I am assuming that s/he was more comfortable with the sumatriptan because it's the kind of thing s/he typically prescribes . . . but O2 is the winner here, and the Imitrex should only be used for breakthrough attacks, if they occur. You can also get sumatriptan in vials, so you can measure out your own doses, and some people do fine with the triptan nasal spray. Please be sure to read that "basic non-busting info" file that I linked you to -- one or two things there (such as energy shots and melatonin) can help you quite a bit.)

 

 

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Hey Finance,

I've sent you a PM that addresses your questions about the anti-inflammatory regimen with vitamin D3 and the cofactors.

Please feel free to ask questions... Most CHers have them when starting this regimen...   I've been doing this for 9 years.

 

Take care and please keep us posted.

V/R, Batch

 

 

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My best friend has started Vitamin-rich food rather than taking Vitamins D3 regarding this.

He used to eat vitamins 3d rich food such as Salmon, Herring and sardines, Cod liver oil and Canned tuna

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Your friend can't get nearly enough D from foods.  Batch's recommended minimum daily dose of D3 is 10,000IU.  Your friend would have to eat between 5 and 10 pounds of salmon in a day to get 10,000IU (depending on whether the salmon is wild caught or farmed).  More than ten pounds a day of fresh herring; more than 20 pounds of pickled herring. More than 6 tablespoons per day of cod liver oil. 

Pills are a lot easier.  https://www.healthline.com/nutrition/9-foods-high-in-vitamin-d#1

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