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ClusterBusters
Mondo

Hi! (First Post)

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Hi everyone! 

My name is mondo and I'm new here. I've been here before reading a lot of the threads. I finally have the guts to speak out. I've been getting these sharp pains on my left temple. I've been getting them since 2015. They only come on around a certain time period of the year. They come in groups. The pain has never been debilitating to me. It does feel like a strong sharp pulse that makes me sweat a little bit on my upper lip. I've never been awoken by one. I don't get a runny nose or red eye and dont remember them being centered on my eye or behind. They are always on my left temple and will sometimes feel it bug my molars on the left. The intensity of the pain has been about the same the last few years. I work in construction and sometimes I've had to step aside to deal with them. They come on very random through out the day. Also it is unlikely that I get more than one in a day. Sometimes I feel my temple throb but it will not fully develop. Other times they can last from 15 minutes to 45 minutes. I went into the ER a year ago to make sure I wasn't having an aneurysm. I had a CT scan done and was told by the doctor that I was good but that it could be cluster headaches. So now im hear wondering if anyone has ever had their cluster headaches start like mine... does it sound like cluster headaches? I still need to go to a specialist.

A little bit about im 27, Male, live in the states and love space.

Thank you!

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My advice would be to get your vitamin d checked. Mine was slightly low for normal 22 and since I started taking it and brought it up into the 70s I've been almost pain free. It's worked better than the drugs I've found that worked and no side effects. As many on here will tell you everyone is different so it's hard to have a %100 diagnosis. Since your pain and frequency seem low I'd advise to avoid imitrex, it made my situation worse imo.

Most on here will tell you to start with o2 but I know it can be a pain to try and use on a job site. If there's torches on site try em, Ive just set up a garbage bag to fill with my torches. 

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Vitamin D is a good thing to check, also your testosterone levels. Low T can be a cause of headaches (I believe). 

From what you describe, it doesn't sound like a typical, by the book, cluster headache. But, I'd recommend seeing a neurologist for a formal diagnosis. 

A 'by the book' cluster headache will last between 1-3 hours, be 1 sided, usually be in or behind the eye, but not always, and the pain is beyond belief. It's not a case of stopping work for a bit to deal with it, but rather stopping work and slamming your head into the wall for an hour, or rolling on the ground holding your head, pacing across the room crying out in agony, level of pain. I've described it as having a gang of men break into your house, pin you down and saw off a leg without anaesthetic while using a dull, rusty saw  -  every day. It is that level of pain. 

There are other types of headaches that happen regularly as well as clusters, so worth getting checked out by a professional who understands headaches. 

 

MG

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Yes. Mine started out mild too. In 1972. They lasted 20 minutes and were not agony. Pain? Yes. Agony? Nope. Well, fast forward and they morphed. Ch is really good at that. I was days and went nocturnal. I was CCH and went to ECH. And into hell. I had a very nice break for 10 years. And was shocked when they returned in a different fashion. So, my advice is to see a Neuro. and get a relationship going. You will benefit if he/she is worth their salt. Anyone keeping you on Pred for extended periods is not paying attention. Sorry. I love Pred too!!!! I save my Dose Packs for special situations - travel, etc. That way I have a plan for emergencies and no side affects. And I stick to 4 a year. 

Some people get the pain mainly in the eye, others get the hot poker thru the temple. Not out of the ordinary. Don't let the dentist pull your teeth! The nerve to your entire face on that side covers a whole 1/4 of your head. So, that means your teeth and sinuses are afflicted with pain. But you don't need surgery. Many of us have had it to no avail. Many have lost teeth with no reduction in pain. Your lower level of symptoms and pain is not an indication it is not CH. Just that it is new CH I suppose you could call it. Some get slammed hard from the first and others take a different route. Who knows why. 

ATB

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Thank you everyone for the reply. I will go see a neurologist. I'm just concerned because its always on one side of the head. I could be deficient in something as health has never been a priority. I will update this post as soon as I find out 

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