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jh

Shadows

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I wonder what this means:

I am in my 6th week of a cycle and have used O2 every day multiple times a day and night. The last 2 days and through the nights all I have had is a fairly constant shadow. Maybe a 3-4 kip. No need to take O2.  But it persists. 

I have had clusters for over 40 years and never have I experienced this shadow thing  

Has anyone experienced this?

JH. 

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I do get this at times. I can sometimes make that feeling go away with stong coffee, 5 hr energy drink, any type of energy drink like monster or redbull. I have also has success with strong ginger tea for days like that. 

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I live with Episodic  attacks in Spring and Fall, and then nearly constant ‘“mild CH” and shadows for the rest of the year.

what fun we have! 

(JK)

 

 

jonathan

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Usually the two months before my cycle I get some shadowy symptoms. Tension headaches, sore muscles. I feel great right after the cycle ends.

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Hi jh,

All the time. I get up with shadows, go to sleep with shadows...  they are always there.

The real attacks, I am having only between 5 and 20 of them per month. But no episodic break, my pattern is chronic.

So yes, as Into Light says: We all having a great time :D

Shadows are so bad and permanent I thought I was having Hemicrania Continua but the indomethacin test was negative and the specialist I am seeing says the kind of pain I feel is typical for CH and does not fit with HC

Best Regards !

siegfried

 

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My shadow feels like a super light ch, something you can still function and work will although very annoying pain.. caffeine won't work and neither will oxygen.. I hate to say it but sometimes I wish it would just go into a cluster for 15 to 20 mins so I can fight it with 02 and move on with my day.. by dinner time Im hurting pretty good.. I try ginger but it don't work for me.. sometimes I'll try a couple moltrin

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Thanks everyone for your responses.  I am hoping the shadows mean that my cycle is perhaps coming to an end.  Would be nice.  

JH

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