morbidsubsonic 6 Posted August 21, 2019 Share Posted August 21, 2019 Do any episodic sufferers know before a cycle starts? Any strange sensation around the eye or temple, twitching eyelid ect.? I feel like I can tell beforehand when things will be getting bad soon. I was wondering if anyone has the same feelings? Quote Link to post Share on other sites
MoxieGirl 259 Posted August 21, 2019 Share Posted August 21, 2019 Some people, I think, call these sensations 'shadows'. I think a lot of people associate them with pain, like a normal headache. Mine tend to just feel like a dark, smoky figure hanging out in my mind, waiting to attack. A sense of dread and foreboding. Mox Quote Link to post Share on other sites
morbidsubsonic 6 Posted August 21, 2019 Author Share Posted August 21, 2019 I feel that strange sensation in my eye and pressure in my temple. I know exactly what it is and I feel like any second all hell is gonna break loose. This is the time for mine to start and I'm scared to death so much that I cant even think. I'm off the next few days and starting the mm busting tonight. I am confident this will work. Quote Link to post Share on other sites
CHristopher 0 Posted September 10, 2019 Share Posted September 10, 2019 I was gunna ask the same question today. I’m glad I decided to read down the threads. I ll wake up one morning and feel a light pressure,it doesn’t hurt, it doesn’t bother me any way. I just know from that point it’s here and it won’t go away till the beast does. Quote Link to post Share on other sites
Siegfried 68 Posted September 18, 2019 Share Posted September 18, 2019 From my experience in this forum, most people get some warning sensation that something is coming. I am not episodic but when a batch of these things is coming my way, the first what I feel is pressure in the right ear, then the eye start to feel like numb and swollen just like the eye area got stinged by a few wasps. Quote Link to post Share on other sites
Joshua 8 Posted September 18, 2019 Share Posted September 18, 2019 This is a great thread, and it's interesting to read how different people experience the onset of a cycle/attack. For me, it's very, very subtle. Before every attack (except those that wake me from sleep) a very slight sensation right where my neck seems to meet my skull behind the ear, could be a good 30-40 minutes before the real pain starts. At the same time, my mood changes pretty dramatically, I get quiet. I think that is more of a response to knowing what is coming, disappointment that the last one wasn't my last one. I often wait out toe 30-40 minutes to see if is just a shadow, because i don't like to waste aborts because they are so precious and hard to refill quickly/cheaply when the stockpile runs out. Quote Link to post Share on other sites
dmlonghorn 96 Posted September 18, 2019 Share Posted September 18, 2019 My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start. Quote Link to post Share on other sites
CHristopher 0 Posted September 18, 2019 Share Posted September 18, 2019 I know the beast is here when I get a light pressure around my eye Sometimes stays like that for weeks than wham!!! But sometimes like this year I woke up with the pressure and Later that night it was full on war until a few days ago. Now when I’m a cycle I find my eye will twitch and water a bit and my neck gets real tight. From that point I know I got roughly 15 min to prepare. I’ve gone from 6-7 a day to two yesterday and one today so far. I’ve done an assortment of things myself and I owe great credit to this site and my wife. Quote Link to post Share on other sites
Graeme 0 Posted September 19, 2019 Share Posted September 19, 2019 I feel pressure in my temple and sometimes eye waters or 1 nostril runs. I know something is coming but I never know how severe it will be. Quote Link to post Share on other sites
LKD06 2 Posted September 22, 2019 Share Posted September 22, 2019 On 8/20/2019 at 7:59 PM, morbidsubsonic said: Do any episodic sufferers know before a cycle starts? Any strange sensation around the eye or temple, twitching eyelid ect.? I feel like I can tell beforehand when things will be getting bad soon. I was wondering if anyone has the same feelings? Twitching eyelid definitely happens to me before my cycle. People probably think I am crazy because the couple weeks before my cycle starts when all I have going on is my eye twitching I will look at them with all the fear in my face and tell them my eyelid is twitching lol if only they knew what I was aboyt to endure they would understand why the eye twitching terrifies me. I will also say that I have a serious feeling of being depressed maybe a week before. I'm not sure if it is because the hypothalamus is sending out wrong signals or if it is because I subconsciously know its about to start Quote Link to post Share on other sites
morbidsubsonic 6 Posted October 1, 2019 Author Share Posted October 1, 2019 I am exactly the same way..... in my last cycle at this time, my doctor had wrote me off if work indefinitely. After busting this time, I'm still working and haven't had hardly any headaches and the ones I did have weren't near as bad as they could be. They were more of an annoyance than anything. Quote Link to post Share on other sites
GodsBlessedGirl 0 Posted October 2, 2019 Share Posted October 2, 2019 This is a very helpful group and I thank each and everyone of you. I am new here and I suffer from chronic migraines and chronic cluster headaches. I don't get a warning before I get a clustered wish I did. I get a clustered every other day up to 8 times a day now use to be like 15 a day when I get them and mirgraines everyday. Quote Link to post Share on other sites
spiny 762 Posted October 2, 2019 Share Posted October 2, 2019 Welcome GodsBlessedGirl! Sorry that you need to be here, but very glad that you found us. Take a moment to read the banner above For New Members if can. It provides a lot of info. ATB Quote Link to post Share on other sites
Rod H 234 Posted October 2, 2019 Share Posted October 2, 2019 (edited) For me I can feel when the weather is about to change and the ears ring more then normal. I forgot to add night sweats. I will soak the bed with sweat pre clusters. Edited October 4, 2019 by Rod H Forgot Quote Link to post Share on other sites
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