Need to vent about something I saw on reddit

[Dana129 46]

I’m very active on the clusterheads subreddit, that place is what lead me to clusterbusters, something I saw really got on my nerves, someone posted a video of a video of a cluster headache attack...and it pretty much triggered the worst anxiety I have felt in a while, the fear of knowing that more then likely I’m going to go through that again at some point, when I was new to cluster headaches, I made a very common mistake and watched videos on YouTube of people having cluster headaches, I wish I never did that, it only made the process of finding out I had clusters more traumatic, the fear and anxiety I felt when watching those videos, particularly that one with that woman who was screaming and having her partner slap her forehead was too much to bare and it made the experience much worse. Although I haven’t yet experienced the heights to level of CH pain, I still live in fear that I’ll one day reach that point...I was quite angry that the person had posted the video, for me, a video of a cluster headache is like a gorey video to people who hate blood and gore, I hate watching them, it’s scary, that’s why I stopped researching on YouTube altogether. I personally don’t think people with clusters, particularly people who are new should watch videos of attacks, there is little to be gained that can’t be gained anywhere else in terms of knowledge, the people that should watch those vids are people who don’t have clusters, to raise awareness and she’d light on what we go through, so I felt like my safe haven had been somewhat breached when someone had posted a video of an attack, nothing wrong with sharing such videos, in fact I admire it, it’s very brave to share that with people online, but subreddits and forums for people trying to seek help and people who are more then likely at the heights of their depression and anxiety due to agonising pain should not be exposed to videos like that, it just isn’t the appropriate forum to post attack videos...anyway that’s my vent, I’m mindful that this may not be a popular opinion, I just felt the need to get that out of my system

Edited September 11, 2019 by Dana129

[kat_92 56]

Hopefully by catching it early, starting to be religious about taking the d3 regimen, other preventatives and oxygen you never reach that point

[LKD06 2]

I understand where you are coming from. I'm in a cycle RN and I was watching someone go through an attack and it honestly makes me beyond angry. Not at them for posting it or myself for watching it, but for the fact that anyone has to go through it at all. 

[Dana129 46]

I can relate to that too, for a long time I was filled with so much anger and disgust at the fact that I and many other people have to go through this...even more so, what is so infuriating is that millions of people have this disease, and yet fuck all is contributed to its research, yes, it’s rare, but not rare like progeria, there are many other conditions with the same level of rarity and receiving significantly higher contributions to research

[Ricardo 95]

My unpopular opinion is that videos like that are helpful for the general population to see and understand what we go through but I don't understand how it's going to help another clusterhead.  We all know all too well what a cluster headache is like.  I completely understand your feelings on this.

-Ricardo