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spp-fan

Positional Headaches

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Hello.  I have been googling to try to find somewhere to chat with other headache sufferers like myself, and I cam across this place. I am not sure if it is related to cluster or not. But just looking for some options, or some other ideas. 

Back in October I had a sex headache. At orgasm I got a thunderclap headache up my neck and throbbed in the middle back of my head. if you feel the back of your skull it is right in the middle where  it is kind of pointy. It jumped up to a 9/10 out of nowhere. I was about to call an ambulance. I was really scared. Over the course of an hour it dropped down to about a 3. Over the next few days I would have headaches on and off. Well I have been left with is positional headaches. When my head is in a forward and looking up position for a few minutes, I get a throbbing headache at about a 7-8/10 in the back middle of my head.  If I lay down, within 10 minutes it goes away, without meds. When I say forward and looking up. Think of sitting at the dinner table, leaning over your plate eating, but look up to talk to someone across from you.  It seems most of the times I get these I am in fact sitting at a table eating dinner with my family or out at a restaurant. Happened last weekend we were at a wedding. Eating and talking with the other guests, it just popped out of nowhere.

I have had a CT scan of my head and neck with contrast. I also had a MRI of my head in December. All came back clear. I had an Occipital Nerve block, and it didn't seem to do much, if anything. I have been put on different types of meds. Carbapenapine, gabapentin,  baclofin, and recently Topamax.  The Carba made me dizzy same with the gabapentin once I went over 1200 a day, I came off that slowly and then went on  Topomax but it made me dizzy and cold and just stopped it today after a week of the side effects. 

The Neurologist ordered a MRI of my neck, and I am awaiting insurance approval. I am also going to call them later to get something to replace the Topamax. I feel like maybe when I had that original headache it did some kind of damage, maybe a muscle contracted and is now pinching a nerve when I put my head in that position? I don't know, but I am so cautious of the position of my head. I had to slouch in my chair at work to keep my head straight in line with my monitors. But I don't know where to go. I am 39 and have kids that are 8 and 5, I feel awful, I cannot sit at the table with them, for fear of headache. I can't be as active as I once was with them.  Yesterday while my wife took them to the movies, I just laid in bed and cried all day. Just so lost. Not sure if I should seek another Dr, or stay the course with the one I have now.  I did start using an app called migraine buddy. If you don't have it, I suggest it for any type of headache tracking. 

Not looking for answers but maybe some questions I should be asking that I am missing. Or anyone else have a similar experience.

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Hello SPP-Fan

Welcome to this forum, although not good that you have found it as CH cluster headache is a serious thing if you have it.

My first thoughts are to see if you have one or more of the following signs or symptoms: 

  • Excruciating pain that is generally situated in, behind or around one eye, but may radiate to other areas of your face, head and neck
  • One-sided pain
  • Restlessness
  • Excessive tearing
  • Redness of your eye on the affected side
  • Stuffy or runny nose on the affected side
  • Forehead or facial sweating on the affected side
  • Pale skin (pallor) or flushing on your face
  • Swelling around your eye on the affected side
  • Drooping eyelid on the affected side

Diagnoses of CH is done by eliminating possibilities while taking into regard the above symptoms. Especially the first and second may be a first indication for cluster headache, along with a one or more of the others. People experience sometimes different signs because CH can morph over the years, but as a starter you can see if the above applies.

Seriously hope it is not CH and take care the next time you have sex.

 

 

 

 

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The MRI of your neck is important. The cervical spine is so delicate if you put your weight on your head to roll over during sleep you can break your neck. I broke mine as a child, fell off a horse. Best to you in your search.

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I don’t think they will find much with the MRI. Since I wasn’t in a trama or accident. But I am maybe hoping they find some inflammation maybe pressing on a nerve or something like that. I really only get the pain when my head is in a forward position. 
 

I don’t really have many of the above symptoms. When I don’t get a chance to correct my head at the onset of a position related headache it will end up radiating up to the front of my head. I do get migraines and this positional stuff is triggering them. 
 

the past two days since I have woken up with a sinus pain and pain in the back of my head.  After I get up and moving around the pain goes down without meds. But never goes completely away until I take a Advil cold and sinus pill. 
 

It seems I don’t really have CH. But I also don’t know of any other headache forums or communities. To share and reach out for help. If anyone knows any I’d be happy to listen.  Thanks. 

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