swiftlaw Posted February 8, 2022 Share Posted February 8, 2022 I am using this to stay connected with the folks that just finished the Zoom support meeting, Faith, Eric. Charles and Jorge. Than you all so much - it was great for me and we will do it again. Respond to this thread so I know we have connected. TomSwift 1 Quote Link to comment Share on other sites More sharing options...
charles87sf Posted February 14, 2022 Share Posted February 14, 2022 Hey Swift! It was great meeting with you and the others last week! It was a great experience meeting others who share the experience of clusters and getting information that might help with this condition. I look forward to collaborating further and meeting others as well!! 1 Quote Link to comment Share on other sites More sharing options...
Annette Jones Posted March 4, 2022 Share Posted March 4, 2022 I wish I had known there were sites like this before I didn't realize that it was so rare I've been suffering so badly on my own and I've had a doctor that has become an idiot now she won't give me my sumatriptan the Verapamil doesn't work anymore so basically I feel like she's telling me just suffer until my next appointment. So far the longest I ever had a cluster headache last was an hour. And that was before the sumatriptan I find it very interesting that this condition has been nicknamed the suicide headaches. Quote Link to comment Share on other sites More sharing options...
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