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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260321T080000
DTEND;TZID=America/New_York:20260321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001802-1774080000-1774112400@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2026-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T150000
DTEND;TZID=America/New_York:20250914T110000
DTSTAMP:20260610T081025
CREATED:20250224T200452Z
LAST-MODIFIED:20250226T184723Z
UID:10001769-1757602800-1757847600@clusterbusters.org
SUMMARY:CLUSTERBUSTERS 20th ANNUAL U.S. PATIENT CONFERENCE September 11-14\, 2025
DESCRIPTION:We are very excited to celebrate our 20th Anniversary Conference with you. Join us for this long weekend of support\, education\, and community in Grapevine\, TX near Dallas/Ft. Worth. Check out the event page for information about scholarships\, tickets\, programming\, and booking a room at Embassy Suites by Hilton Grapevine DFW Airport North. The agenda and more details about the conference will be shared soon. \nThis is a great opportunity for those living with cluster as well as caregivers to socialize and connect about shared experiences in safe spaces. Saturday’s dinner and award ceremony theme will be the Roaring 20’s for those who choose to participate. \nThis conference is also appropriate for Healthcare Professionals who want to learn more about cluster headache and obtain CMEs for their education. We hope to see you there! \nGet Tickets
URL:https://clusterbusters.org/event/the-20th-annual-cb-us-conference/
LOCATION:The Embassy Suites by Hilton DFW North\, 2401 Bass Pro Drive\, Grapevine\, Texas\, 76051\, United States
CATEGORIES:Conference
ATTACH;FMTTYPE=image/webp:https://clusterbusters.org/wp-content/uploads/2025/02/2.webp
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250321T080000
DTEND;TZID=America/New_York:20250321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001801-1742544000-1742576400@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2025-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240622T090000
DTEND;TZID=America/New_York:20240622T110000
DTSTAMP:20260610T081025
CREATED:20200520T155636Z
LAST-MODIFIED:20230124T200938Z
UID:10002713-1719046800-1719054000@clusterbusters.org
SUMMARY:Clusterbusters Annual VIRTUAL #CureforCluster 5k Run/Walk
DESCRIPTION:Every year\, Clusterbusters hosts a virtual 5k event in June. The #CureforCluster 5k gives people affected by cluster headaches the opportunity to raise awareness for the debilitating condition and provide funding for research into effective\, long-lasting treatments. Clusterheads around the world wear their #CureforCluster t-shirts while they run or walk 3.1 miles (5 kilometers) in their neighborhood\, through a park\, or anywhere that’s easily accessible. Participants do the 5k on the same day and post their photos using the hashtag on social media outlets.  \n\nSign Up | Donate \n\nWhat is a Virtual 5k? \n\n\n\nA virtual 5k is a 5k (3.1 miles) that you run or walk outside or on a treadmill. Clusterbusters encourages runners and walkers to get their family members\, children\, and even their pets involved. Most can monitor how far they’ve gone using the built-in pedometer on Smartphones or fitness watches\, but you can also map your route using Google Maps. \n\n\n\nSafety is an essential aspect of the virtual 5k. Many participants need access to oxygen during the race or have comorbid conditions with cluster headaches that can make it challenging to run or walk a 5k. In the past\, some clusterheads have wheeled their oxygen tanks with them for the #CureforCluster\, and others make sure they have abortive treatments on hand such as sumatriptan injections and ketamine or Zomig nasal sprays.  \n\n\n\n#CureforCluster participants are sent a swag bag with their t-shirt\, which also includes some basic first-aid necessities for minor injuries that can occur\, such as blisters.  \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHow Does the #CureforCluster Virtual 5k for Cluster Headaches Work? \n\n\n\nThe #CureforCluster Virtual 5k process is simple and straightforward:  \n\n\n\n\nSign up to participate on the Race Website. \nInvite your friends and family to sign up with you or donate on your behalf for the 5k. \nYou will receive a package in the mail from the Race Director a few days before the #CureforCluster event. International participant packages are sent earlier to account for shipping delays. \nOn the third Saturday of June (June 20\, 2020)\, wear your #CureforCluster t-shirt and run/walk a 5k wherever it is easiest for you. \nTake photos in your race t-shirt and post on Facebook\, Twitter\, and Instagram using #CureforCluster in the post. You can tag @Cluster_buster on Twitter. \n\n\n\n\nThe Friday before the #CureforCluster starts the occasion off with a Facebook Live event on the Clusterbusters page where the Race Director goes over the 5k details and discusses why it’s important to raise awareness and funding for cluster headaches. The day of the 5k starts with another Facebook Live event where we kick off the run-walk from St. Joseph\, Michigan\, at 9 am EST. Participants have the option of starting their 5k at the same time as the Michigan group. Determine your time zone in relation to Eastern Time.  \n\n\n\nAny questions you have about the event can be asked through the race website.  \n\n\n\nThe History of the #CureforCluster 5k Event \n\n\n\nIn 2016\, we hosted the first-ever 5k run/walk in Denver to raise funding for cluster headache research and spread awareness of this debilitating condition. We had a great turn out in Colorado but realized we could increase our reach by turning the event into a virtual one\, so clusterheads around the world could take part. The number of runners and walkers increases each year exponentially\, growing from just 27 in 2016 to more than 100 in 2019 in seven countries.  \n\n\n\nThe next #CureforCluster virtual 5k is slated for June 20\, 2020\, and we hope to expand even more. The event has helped us fund research into the burden of cluster headache and the issues facing many clusterheads today\, including suicidality and access to oxygen and other treatments. \n\n\nSign Up | Donate
URL:https://clusterbusters.org/event/clusterbusters-annual-virtual-cureforcluster-5k-run-walk-2/2024-06-22/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/5k.jpeg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240324T120000
DTEND;TZID=America/New_York:20240324T150000
DTSTAMP:20260610T081025
CREATED:20240316T020030Z
LAST-MODIFIED:20240316T020250Z
UID:10002705-1711281600-1711292400@clusterbusters.org
SUMMARY:Informal Chat to Celebrate Cluster Headache Awareness Day
DESCRIPTION:In celebration of #ClusterHeadacheAwarenessDay\, join our board and staff on MARCH 24 at 12pm ET for an informal chat. (Yes\, this is the Sunday after CH Day!) \nRegister Now
URL:https://clusterbusters.org/event/cluster-headache-awareness-day/
ATTACH;FMTTYPE=image/png:https://clusterbusters.org/wp-content/uploads/2024/03/CHAwareness2024.png
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240321T080000
DTEND;TZID=America/New_York:20240321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001800-1711008000-1711040400@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2024-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230907T160000
DTEND;TZID=America/New_York:20230910T120000
DTSTAMP:20260610T081025
CREATED:20230328T144543Z
LAST-MODIFIED:20230328T145544Z
UID:10002701-1694102400-1694347200@clusterbusters.org
SUMMARY:Clusterbusters 18th Annual U.S. Patient Conference
DESCRIPTION:Join us for a long weekend of support\, education\, and family in Lake Buena Vista\, FL. We’ll kick off on Thursday evening with the Director’s reception. Friday and Saturday will be full days of presentations. Sunday morning will include advocacy workshops. Lunch will be provided on Friday and dinner will be provided on Saturday. Your hotel stay includes daily breakfast and a happy hour each evening. \nRegister Now
URL:https://clusterbusters.org/event/clusterbusters-18th-annual-us-patient-conference/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://clusterbusters.org/wp-content/uploads/2023/03/U.S.-CB-Conference-2023-post-1.png
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230624T090000
DTEND;TZID=America/New_York:20230624T110000
DTSTAMP:20260610T081025
CREATED:20200520T155636Z
LAST-MODIFIED:20230124T200938Z
UID:10002712-1687597200-1687604400@clusterbusters.org
SUMMARY:Clusterbusters Annual VIRTUAL #CureforCluster 5k Run/Walk
DESCRIPTION:Every year\, Clusterbusters hosts a virtual 5k event in June. The #CureforCluster 5k gives people affected by cluster headaches the opportunity to raise awareness for the debilitating condition and provide funding for research into effective\, long-lasting treatments. Clusterheads around the world wear their #CureforCluster t-shirts while they run or walk 3.1 miles (5 kilometers) in their neighborhood\, through a park\, or anywhere that’s easily accessible. Participants do the 5k on the same day and post their photos using the hashtag on social media outlets.  \n\nSign Up | Donate \n\nWhat is a Virtual 5k? \n\n\n\nA virtual 5k is a 5k (3.1 miles) that you run or walk outside or on a treadmill. Clusterbusters encourages runners and walkers to get their family members\, children\, and even their pets involved. Most can monitor how far they’ve gone using the built-in pedometer on Smartphones or fitness watches\, but you can also map your route using Google Maps. \n\n\n\nSafety is an essential aspect of the virtual 5k. Many participants need access to oxygen during the race or have comorbid conditions with cluster headaches that can make it challenging to run or walk a 5k. In the past\, some clusterheads have wheeled their oxygen tanks with them for the #CureforCluster\, and others make sure they have abortive treatments on hand such as sumatriptan injections and ketamine or Zomig nasal sprays.  \n\n\n\n#CureforCluster participants are sent a swag bag with their t-shirt\, which also includes some basic first-aid necessities for minor injuries that can occur\, such as blisters.  \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHow Does the #CureforCluster Virtual 5k for Cluster Headaches Work? \n\n\n\nThe #CureforCluster Virtual 5k process is simple and straightforward:  \n\n\n\n\nSign up to participate on the Race Website. \nInvite your friends and family to sign up with you or donate on your behalf for the 5k. \nYou will receive a package in the mail from the Race Director a few days before the #CureforCluster event. International participant packages are sent earlier to account for shipping delays. \nOn the third Saturday of June (June 20\, 2020)\, wear your #CureforCluster t-shirt and run/walk a 5k wherever it is easiest for you. \nTake photos in your race t-shirt and post on Facebook\, Twitter\, and Instagram using #CureforCluster in the post. You can tag @Cluster_buster on Twitter. \n\n\n\n\nThe Friday before the #CureforCluster starts the occasion off with a Facebook Live event on the Clusterbusters page where the Race Director goes over the 5k details and discusses why it’s important to raise awareness and funding for cluster headaches. The day of the 5k starts with another Facebook Live event where we kick off the run-walk from St. Joseph\, Michigan\, at 9 am EST. Participants have the option of starting their 5k at the same time as the Michigan group. Determine your time zone in relation to Eastern Time.  \n\n\n\nAny questions you have about the event can be asked through the race website.  \n\n\n\nThe History of the #CureforCluster 5k Event \n\n\n\nIn 2016\, we hosted the first-ever 5k run/walk in Denver to raise funding for cluster headache research and spread awareness of this debilitating condition. We had a great turn out in Colorado but realized we could increase our reach by turning the event into a virtual one\, so clusterheads around the world could take part. The number of runners and walkers increases each year exponentially\, growing from just 27 in 2016 to more than 100 in 2019 in seven countries.  \n\n\n\nThe next #CureforCluster virtual 5k is slated for June 20\, 2020\, and we hope to expand even more. The event has helped us fund research into the burden of cluster headache and the issues facing many clusterheads today\, including suicidality and access to oxygen and other treatments. \n\n\nSign Up | Donate
URL:https://clusterbusters.org/event/clusterbusters-annual-virtual-cureforcluster-5k-run-walk-2/2023-06-24/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/5k.jpeg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230505T090000
DTEND;TZID=America/New_York:20230507T170000
DTSTAMP:20260610T081025
CREATED:20221021T113918Z
LAST-MODIFIED:20221021T114338Z
UID:10002436-1683277200-1683478800@clusterbusters.org
SUMMARY:1st Annual U.K./European Conference
DESCRIPTION:Clusterbusters is excited to open registration for our first-ever U.K./European conference. The conference will take place at The VOCO Grand Central Hotel\, Glasgow\, Scotland from Friday 5th – Sunday 7th May 2023. As many people living with cluster headache have never met others with this condition\, this is a great opportunity to come together to support\, educate and advocate. Join us for a weekend with a full agenda of speakers including neurologists\, patients\, and caregiver presentations\, safe rooms\, treatment workshops\, and demonstrations. As well as\, the opportunity to share experiences and learn from others\, collaborate\, and have fun in the vibrant city of Glasgow! \nWe have negotiated competitive room rates and you can book your stay and register for the conference using the links provided . \nPlease feel free to contact me with any questions. We look forward to welcoming you! \nAinslie Course\nVice President\nClusterbusters\, Inc \nRegister Now
URL:https://clusterbusters.org/event/1st-annual-uk-european-conference/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://clusterbusters.org/wp-content/uploads/2022/10/1stAnnualUKEuropeanConference-min.png
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230321T080000
DTEND;TZID=America/New_York:20230321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001799-1679385600-1679418000@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2023-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Indiana/Knox:20220915T160000
DTEND;TZID=America/Indiana/Knox:20220918T120000
DTSTAMP:20260610T081025
CREATED:20220511T130643Z
LAST-MODIFIED:20220905T161508Z
UID:10002435-1663257600-1663502400@clusterbusters.org
SUMMARY:17th Annual Patient Conference
DESCRIPTION:We are unbelievably excited to be back in person this September for an unforgettable conference! Join us for a long weekend of support\, education\, and family in Rosemont\, IL. We’ll kick off on Thursday evening with the Director’s reception. Friday and Saturday will be full days of presentations. Lunch will be provided on Friday and dinner will be provided on Saturday. \nNew this year we are adding presentations on Sunday morning. This is meant as supplemental material and is included in your registration. Space may be limited. \nAgenda coming soon. \nSee you in Illinois! \nRegister Now
URL:https://clusterbusters.org/event/17th-annual-patient-conference/
ATTACH;FMTTYPE=image/png:https://clusterbusters.org/wp-content/uploads/2022/05/17th-annual-conference-featured-img-min.png
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220321T080000
DTEND;TZID=America/New_York:20220321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001798-1647849600-1647882000@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2022-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210924
DTEND;VALUE=DATE:20210927
DTSTAMP:20260610T081025
CREATED:20210412T171939Z
LAST-MODIFIED:20210921T133053Z
UID:10002306-1632441600-1632700799@clusterbusters.org
SUMMARY:16th Annual Cluster Headache Conference - Now Virtual
DESCRIPTION:In light of the ongoing and rapidly changing pandemic\, Clusterbusters has made the heartbreaking decision to cancel our in-person event. This was an extremely difficult decision\, but ultimately we decided that we need to choose the safest option for our community. As an organization focused on healthcare\, we feel that we must choose health and safety over what we want\, which is to be with all of you. \nClusterbusters is delighted to share that we will be hosting a free\, fully virtual conference event in place of our now cancelled in-person conference. On Friday\, September 24 through Sunday\, September 26 we will host educational\, supportive\, and collaborative activities for anyone who would like to participate in our community. We feel this is the best way to keep us all together even though we must be apart due to the ongoing pandemic. We hope you will join us and look forward to seeing you online. \nConference will be held in US Central Time. \nLearn More and Register Here
URL:https://clusterbusters.org/event/16th-annual-cluster-headache-conference/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2021/04/054-Clusterbusters-20194-min.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210723
DTEND;VALUE=DATE:20210726
DTSTAMP:20260610T081025
CREATED:20210412T174114Z
LAST-MODIFIED:20210412T174346Z
UID:10002307-1626998400-1627257599@clusterbusters.org
SUMMARY:Cure for Cluster Camping Trip
DESCRIPTION:Low Water Bridge Campground\, Bentonville\, VA. \nMore information and registration can be found here.
URL:https://clusterbusters.org/event/cure-for-cluster-camping-trip/
ATTACH;FMTTYPE=image/png:https://clusterbusters.org/wp-content/uploads/2021/04/Cure-for-Clusters-Camping-2021.png
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210424T180000
DTEND;TZID=America/New_York:20210424T210000
DTSTAMP:20260610T081025
CREATED:20200309T161050Z
LAST-MODIFIED:20200520T171350Z
UID:10001793-1619287200-1619298000@clusterbusters.org
SUMMARY:Cure For Clusters Cocktail Party
DESCRIPTION:Event Details\n\n\n\nOur cocktail party will begin at 6pm est and end at 9pm est on RESCHEDULING DUE TO COVID19. Hors d’oeuvres and drinks will be available throughout the evening. This will be a great chance to get to know our community and cause\, socialize with friends\, and support Clusterbusters. \n\n\n\nSingle Ticket – VIP Ticket \n\n\n\n\n\nGet Your Tickets Here! https://cureforclusterscocktails.planningpod.com/
URL:https://clusterbusters.org/event/cure-for-clusters-cocktail-party/
LOCATION:200 W 39th St  30th Floor  New York\, New York 10018\, 200 W 39th St 30th Floor\, New York\, New York\, 10018\, United States
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2020/03/skylard-min.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210321T080000
DTEND;TZID=America/New_York:20210321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001797-1616313600-1616346000@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2021-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200910T170000
DTEND;TZID=UTC:20200913T100000
DTSTAMP:20260610T081025
CREATED:20191121T213501Z
LAST-MODIFIED:20200701T140232Z
UID:10001791-1599757200-1599991200@clusterbusters.org
SUMMARY:15th Annual Cluster Headache Conference
DESCRIPTION:Don’t Miss The Conference!\n\n\n\nThe Clusterbusters team has made the difficult and heartbreaking decision to cancel our in-person conference planned for this September in Chicago\, Illinois. Due to risks of Covid-19 and restrictions in place in Illinois\, we believe this is the only prudent course of action. \n\n\n\nWe will be hosting a virtual conference in September instead. More details regarding this event will be available as soon as possible. \n\n\n\n\nRegister Here\n\n\n\n\n\n\nScheduled speakers include:\n\n\n\n\nMr. Bob Wold\nMrs. Eileen Brewer\nDr. Brian McGeeney\nDr. Mark Burish\nDr. Christopher Gottschalk\nMr. Ian McDonald\nMr. Bill Mingus\nDr. Larry Schor\nDr. Stephen D. Silberstein\nMr. Rogier Koning\nMr. Brian Bricker\n\n\n\n\nMany more speakers to be announced soon.  Check the event page often for updates! \n\n\n\nThis is one conference you will not want to miss! \n\n\n\n\nMessage Board\n\n\n\n\n\n\n\n\nVirtual Event: $40 per person
URL:https://clusterbusters.org/event/15th-annual-cluster-headache-conference/
LOCATION:Virtual
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/groupofpeople-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200321T080000
DTEND;TZID=America/New_York:20200321T170000
DTSTAMP:20260610T081025
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001796-1584777600-1584810000@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2020-03-21/
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