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Support Groups

Support Groups

Meeting someone else with cluster headaches for the first time is an incredible experience. You’ve spent years, maybe even decades, fighting to get the right diagnosis and treatment. Many clusterheads struggle to get anyone in their lives to understand the severity of the pain and how it impacts every part of your day-to-day life. Support group meetings and the annual Clusterbusters conference are often life-changing for those meeting other clusterheads because, for the first time, you don’t have to explain yourself to anyone. We get it. Our support groups meet virtually, and we also offer one-on-one support opportunities. We hope to bring back in-person groups soon, but will continue to offer virtual groups and one-on-one support.

Clusterbusters Virtual Support Groups

Monthly 1st Monday

Location: Virtual

Facilitator: Eric Diamond
9:00PM ET: Register Now

Contact: Anna 

Monthly 1st Wednesday

Location: Virtual

Facilitator: Mark Massullo
1:00 PM ET: Register Now

Facilitator: Joe Stone
9:00 PM ET: Register Now

Contact: Anna 

Monthly 3rd Wednesday

Location: Virtual

Facilitator: Mark Massullo
7:00 PM ET: Register Now

Facilitator: Joe Stone
9:00 PM ET: Register Now

Contact: Anna 

One-On-One Support

If you would like one-on-one support, reach out to us via email to request a phone call or email. Get connected with a person who can help you answer your questions, offer resources and an ear.

UK/EU Support

US Support

Contact:

Joe Stone or Anna 

Care Partner Support

Caregivers and Supporters of Cluster Survivors: Facebook Group

Caregivers and Supporters are an important part of our community. A fellow Caregiver/Supporter has volunteered to create a space to support your unique needs. The Facebook group can be found here. It is private, so make sure you answer the membership questions for admission.

Clusterbuddies image with clusterbusters logo and two hands engaged in a handshake

Peer-to-Peer Program

The ClusterBuddies peer-to-peer program connects you with a supportive, empathetic, knowledgeable, and experienced volunteer who understands life with cluster headache and can say, “I’ve been there too.”

Support-Seeker

If you are a support-seeker and would like to be paired with a support-giver ClusterBuddy, please complete the application form.

Experienced Clusterhead

If you are an experienced clusterhead interested in being a support-giver and helping a support-seeker as part of the ClusterBuddy program, please complete the application form.

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