• Announcements

    • StegZac

      Welcome   01/25/2017

      Welcome to the upgraded ClusterBusters forum.  Please make sure that you login either with your email address or your display name (the name that appears next to each of your posts).   If you have any issues, please email help@clusterbusters.org and we'll get it resolved.

Leaderboard


Popular Content

Showing most liked content since 03/26/2018 in all areas

  1. I've been thinking a lot about the psychological toll CH can have on someone. Even before CH suicidal thoughts always seemed to follow me wherever i go. I always had my doubts in myself. I've always had doubts i was strong enough to be able to keep going. I had trouble coming to terms with having CH and that it even existed. The pain was always a reminder that this is real. That i have this. That too many people have this. I'm still pretty new but I'm not quite as helpless as i was before i first joined I've been finding my way. I don't have much in the way of super helpful advice for anyone or even much to say that's very noteworthy as i haven't quite gotten the hang of all this yet. Still at the very least i want to say to everyone who's new to this or that is struggling in general please hang in there. Stay strong and don't give up. We have to take this all one day at a time and keep pushing forward. You are not alone. Don't doubt yourself or your resolve. You ARE strong. I see so much unity in this community and so many people helping each other out whether it be with advice straight up emotional support or both. This is an awful thing to have but its brought many of us together. That is something and whenever i feel i have no one who understands i like to read what people are up to here. For everyone out there,you are an ox...a strong,resilient,antique breaking ox.
    3 likes
  2. I decided to create this thread specifically for new CH members who just got diagnosed and might not want to take any psychedelics for temporary relief and would instead opt for a more permanent solution. I started the D3 regimen as advised by senior members, here is a link to the regimen https://clusterbusters.org/forums/topic/1308-d3-regimen/. On my fifth day of the pills and I've been CH free. So far so good, I'll update this thread from time to time in case anyone might find this useful. Thanks to CH father, Batch and everyone else that helped me find this regimen.
    2 likes
  3. Hi Dima. 1. For me, stress has always been huge trigger (finals, 30 years ago, in college; birth of kids; job transitions; etc.). 2. Most folks do get hit most often at night I find that, early in a cycle, there's not much pattern; but over time the evening becomes a ritual (up at 11; 12:30; 2; 3:30;5;give up and make coffee). 3. I can't overstate how important oxygen is. I tried it multiple times over many cycles (and multiple years) before I figured out how to do it successfully. Search the forum and find the right regulator (15 lpm minimum), non-rebreather mask, and proper technique. Most docs will shy away from prescribing O2; and even when they do, the medical supply company will bring the wrong thing (small tanks; concentrarors). Bypass all that; find a local welding supply. I shied away from doing this for years; it was a mistake. 4. I hope you find a great neuro. In my experience, the best you can hope for is an empathic ear who's willing to work with you and will listen to your ideas. Good luck with your journey. Craig
    2 likes
  4. Welcome Dima....glad you found us...some good folks will be by shortly to reply...in the meantime.. It's strange.....for some...like myself...stress is protective...relief FROM stress is a trigger......
    2 likes
  5. I was put on Verapamil 240mg to be taken 3 times a day, This made my legs feel tired all the time so I tapered mine back to one time a day in the morning. I did not notice much difference in the amount of clusters of intensity of them when I cut back. From what I hear the extended release does not work as well for some people. I also get hit as I am sleeping and just started to take benadryl along with the D3 regimen and things are starting to get better for me now. I also spent the last few nights sleeping in a recliner to try to keep my head elevated a little and that also helped. This does not answer your question but I hope it gives you a few tricks to try out.
    2 likes
  6. Hey Sontye and Bilal, You're vitamin D3 deficient... so it's not what you're doing that's affecting your cluster headache (CH)... It's what you're not doing... i.e., You're not taking enough vitamin D3 and the vitamin D3 and cofactors and that's what is contributing to the frequency, severity and duration of your CH... See your PCP or neurologist for a lab test of your serum 25(OH)D. A dime will get you a dollar if your results don't come back under the following normal distribution curve of lab results reported by 257 CHers who took this lab test before starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3 plus Omega-3 fish oil and the vitamin D3 cofactors... The odds are better than 80% you'll have a favorable response with a reduction in the frequency of your CH from an average of 3 CH/day down to 3 or 4 CH/week in the first 30 days after starting the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. Better than 50% of the CHers who start this regimen experience a complete cessation of CH symptoms within the first 30 days after starting this regimen... You can find a copy of this regimen at the following VitaminDWiki web site at the following link. Discuss it with your PCP or neurologist when you ask for the lab test of your serum 25(OH)D. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The 25(OH)D lab results for CHers experiencing a favorable response to this regimen or a complete cessation of CH symptoms are illustrated in the following normal distribution curve. At 55 cents a day for a very safe, very effective and very healthy alternative to the Rx meds you've been taking to prevent your CH... Why are you waiting? Take care and please keep us posted. V/R, Batch
    2 likes
  7. Just found you guys, never knew this existed... got a TON of reading to do. Anyways, I'm a legacy, Uncle has them too. Mine aren't as bad, maybe all the LSD I did as a kid? haha they still suck. First was back in 2000, then next was about 04 I believe. Been pretty regular over the past 10 years or so. Never found a treatment that works but recently started Verapamil so we shall see. It really knocks me on my rear, probably because I have low- normal BP. Thanks to everyone for sharing their stories and thoughts.
    1 like
  8. It's been a month since I started the regimen and I've only had 3 very mild attacks. Shadows are gone completely and I honestly don't feel like the condition is even there anymore.
    1 like
  9. That's pretty essential, the mask with the air bag (reservoir). Your mask will probably have a small circle of open holes on one side. Cover that with tape, or with your thumb, as you inhale (so you're inhaling only pure O2). Be sure you have a tight seal with the mask to your face. Cut off the strap (so if you fall asleep the mask will come off). Is your oxygen in tanks (not a machine that makes oxygen)? Also very important. And a regulator that goes up to at least 15 liters per minute. And good breathing strategy. You'll find your own strategy, but for many it's deep breaths and very forceful exhales at the beginning (almost doing a "crunch" to force air out of your lungs). Some people hyperventilate with room air for 30 seconds before their first O2 inhale. Hold the O2 in your lungs for a few beats. Look down toward your feet as you are doing it all. For many, a shot of caffeine while starting the O2 speeds the abort: could be some pre-made strong coffee; many use the 2 oz. energy shots or energy drinks. Many have found that going beyond the standard setup of the basic mask and 15 lpm makes a big difference, but let's see how it goes for you with what you have.
    1 like
  10. HEY THERE! Welcome. I'm a bit of a newbie here too though my accounts been pretty dormant. There's plenty of great people and I'm sure you'll fit right in here. I'm not as knowledgeable or experienced as most but there's plenty of advice many others here can give you.
    1 like
  11. wimp', it is good to read. As you would quickly see from your reading, the most significant thing you should have is oxygen. If you had it before and it didn't help you, you probably need to try it again, with a better system. You should almost certainly also start the vitamin D3 regimen. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 And, given your past experience, the numbered files in the ClusterBuster Files section might be of interest to you. Maybe look at the "Triggers" document when you're over there. There's lots more, of course, but I think those might be the current highlights for you. Ask anything, any time.
    1 like
  12. Hiya...welcome!...glad ya found us....and YUP....the key to education is reading....see one A. Lincoln.... Best, Jon
    1 like
  13. I think it might be the device. If using an ipad or phone it doesnt seem to work. I am responding from a pc.
    1 like
  14. CHF -See the 'edit' option in a post - Quote Edit Options right next to the + box? Click edit and then add apparently. With this not yet posted, I see a paperclip and Drag files........ Once posted, I get the other options.
    1 like
  15. Clusterbusters is happy to share this letter from Representative Andy Harris regarding our work in attempting to get CMS to change their decision regarding oxygen coverage for Medicare and Medicaid patients. We believe this letter moves us much closer to achieving our goals in this endeavor. We will keep everyone posted. This letter is the result of years of hard work by many dedicated advocates. bit.ly/2EJnRfK One major factor in getting this across the finish line is the data being collected in our survey that can be found here:https://westga.co1.qualtrics.com/jfe/form/SV_cG8Ym1FW8fgs44t If you haven't yet filled it out, there is still time as the survey closes on the 20th of April. If you are over 65 years of age and have used oxygen to treat your clusters, your data is even more important. Please take the time if you can.
    1 like
  16. Thanks, but you should remove that from the source code because some people will think you can't sign up. Just disable it all together in the admin control panel
    1 like
  17. I do. I'm not sure if you would like the whole text or just want to make me aware. I will try and upload what I have. The GammaCore has some favorable data and shows some promise especially in episodics. Still waiting for "real world" impressions. Many new technologies get initial enthusiastic thumbs up only to find subsequent use dampens the enthusiasm. The non invasive nature, portability and potential as a triptan substitute make it attractive. My biggest beef is the planned obsolescence of the unit. In the US it stops working 33 days after activation. For episodic use that is frustrating because you might buy one to have handy use it a few times and go out of cycle and 30 days later it is garbage. external stim.pdf
    1 like
  18. Electrical stimulation is vastly over rated. (this is true even in non cluster headache conditions) Batch is right on. When you look at the data for implantable simulators and external simulators it is practically unimpressive. Basically it works partially some of the time. With implantable you run the risk of a complication that leads to not reversible changes and with the external the subscription model makes it financially unsustainable without insurance subsidy. All for partial relief some of the time. When you ask the "general population" of users there are very few long term happy campers. Better to explore options with better preventative track records like D3 or psychedelics. External stim (gamma core) may play a "special teams" help for thinks like unavoidable air travel but even then the 33 day model planned obsolescence model they employ makes it a bit unpractical.
    1 like
  19. there are many treatments on here and many have worked for me, vitamin d, Topamax, Elavil, imitrex injections and o2. the imitrex injections were a god send for me but they create their own problems, if you are seeing a Dr anytime soon I would try to get those as ive heard they work for migraines also but as I said don't use those as the only treatment or on a regular basis. caffeine may be a good way to tell as it usually helps clusters but I hear it makes migraines worse. I would start with melatonin and Benadryl at night and caffeine in the day along with the vitamin d treatment on here. the o2 is going the most recommended but its a bit of a pain to get started and I would hate to recommend going through that trouble if you don't have clusters
    1 like
  20. I wouldn't hold my breath... Neurostimulation, i.e., GON, DB, SPG and VN Stimulation all suffer from the same problem. They only work ~ 40 % to 70 % of the time while the CHer is awake and able to actuate the remote controller before the pain gets too high. No joy while sleeping... In short, they only address the symptoms and not the contributing factors...
    1 like
  21. Hi All, This cycle, I was finally able to get my doc to prescribe Imitrex in vials. It is much simpler and a lot cleaner compared to taking apart and "splitting" the cartridge injectors. Additionally, I find that .2ml is perfectly sufficient to abort most attacks under Kip8. And while the vials are labeled as .5ml, I'm able to get three separate .2ml injections from each vial. 1ml "insulin" syringes with thin 33-gauge needles work great. Don't let your doc or pharmacist try to convince you that you need a larger gauge for "draw up." It took some persistence to get prescribed - and a bit of searching to find a pharmacy that stocked them (my Rite Aid was able to do so with a generic sumatriptan - but I highly recommend vials if you have to use Imitrex. Craig
    1 like
  22. Adding just a little to what Jon said. . . . Here's a link to learn more about the D3 regimen: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 In San Francisco, UCSF Medical Center Headache Center is led by one of the world's leading CH experts, Dr. Peter Goadsby: https://www.ucsfhealth.org/clinics/headache_center/ It's hard for me to imagine how fresh air helped you, but as Jon says, the highly-effective, no-side-effect standard abortive is oxygen. Lucky for you (compared to many people), I think you can count on seeing a doctor at Stanford or in SF who will prescribe O2. For some people, sipping ice water through a straw aimed at the roof of the mouth, in order to induce "brain freeze," will stop an attack. Any other method that gets that roof very cold (such as holding frozen juice concentrate against it) will accomplish the same purpose. I'm not mentioning drugs or druglike things such as melatonin and Benadryl, since you say you don't want that. If you change your mind, let us know. Since your hits come at night, you could try sleeping in a recliner or in some more upright position (e.g., at a table with your head on pillows on the table).
    1 like
  23. I was taking sumatriptan about 5 times a day at one point. I had both the shots and the pills. Pills took about 30 minutes to set in the shots in about 5. I then found out about the O2 on this site and gave that a try and kept the triptan as a backup if I could not get oxygen or did not have it with me. I then read about how triptans can make things worse if taken to much and since I knew I was way over the recommended daily dose I figured I would stop them all together. I stopped on a Friday night and had a hell of a weekend rolling around in bed with non stop headaches but it was well worth it. I still am getting headaches on a daily basis and I am working on that with the vitamin D and M but I do not have them like I did when I was eating the sumatriptan for every headache! I actually had my first pain free day yesterday for the firs time in a long time. I still keep a triptan pill or 2 with me at all times just incase the shit hits the fan but only take that as a last resort. I maybe take one every other month. Finding a o2 supplier to get me enough delivered to my house as often as I need it was a hard thing to get done but with a little yelling and fighting I now have a place that will deliver next day for me with a phone call. Fingers crossed that they dont have a change of management and I need to start my fight over again. Best of luck to you and I would get that o2 tank in next to your bed as soon as you can.
    1 like
  24. Haha! I know the feeling exactly! I STILL refuse to drink Pepsi or eat fudge because one round of clusters started the night that I drank Pepsi for the first time in years and ate fudge for the first time in years. All other things were normal routine that night... Unfortunately, even completely omitting both from my diet ever since, had no improvement of clusters (that was about 15 years ago). My recent recovery was in no way related.
    1 like
  25. B1 back to is suppressing the ch, fantastic day yesterday, slept all night .
    1 like
  26. https://scholar.google.fr/scholar_url?url=http%3A%2F%2Fdownloads.hindawi.com%2Fjournals%2Fcrinm%2Faip%2F3901619.pdf&hl=fr&sa=X&scisig=AAGBfm1vtUTuZ_cQpBApdV3xiS688Nwr2A&nossl=1&oi=scholaralrt This link was posted on Facebook Saturday, a medical article about one patient using B1 for cch. I'm 11 years cch, o2, d3, lsa, I get some daily shadows and then 5 - 7 hit. I started taking B1 200 mg Saturday evening, Sunday took 300 mg with a very light pm hit, Monday took 400 mg through out the day, no shadows or 5 pm hit, Tuesday went back to 300 mg still no shadows or evening hit. I'm not sure of anything, but it's been a rough last 12 months, if B1 help one man... I will try it and see.
    1 like
  27. This is like being offered candy by a six foot tall Easter Bunny and believing it is candy! No, we do not accept candy from strangers. Your heart might be in the right place, but who really knows. Rather than delete your post outright, I am leaving it here for others to see and read - no buying or selling here - PERIOD! I re-iterate: DO NOT MAKE THIS TYPE OF POST!!!! EVER!
    1 like
  28. That would work for some, but not others... I have both cluster headaches advance multiple sclerosis, but my farther has cluster headaches but no other conditions.. I've also recently, been blessed with my longest remission from cluster headaches, that I've had since getting them. Mine have been once a year (4 months or so long) every year, and occasionally they skip a year.. I had the absolute worste bout last time. They lasted about 6 months, I had multiple clusters each day (normally only get 1-2 a day for 4 months).. They came on all night and day randomly, they were lasting longer than normal, and they weren't actually going away at the end of it, they were leaving a shadow in the corner where I could feel it's existence, but without the excruciating pain... After that round, I have now skipped 2 years.. October will be 3 years..
    1 like
  29. Anecdotal: I've had multiple autoimmune disorders...CH was the first....MS was suspected by several neuros....lymphoma and numerous environmental/food allergies followed. Antihistamines were helpful during my early ch career. I can't prove or attest to a damn provable thing...sometimes ya just "know"...I await the studies to affirm...... Best Jon
    1 like
  30. I would just like to add...to the always pertinent, consistent, and delightful support from CHf. O2 should be the first resort provided to ANY clusterhead...from ANY physician....and I don't care what their "training". The literature is OVERWHELMED by the evidence for its efficacy!!! Myself....I would estimate over 5000 hits aborted by OXYGEN (that may be a low estimate). My sanity...maybe my LIFE....owed to a few green headed tanks..... a proper non-rebreather mask...well defined technique....and folks like you will find here and at ch.com....................................... Best Jon
    1 like
  31. A week into the D3 Regimen and I woke up to a minor attack. This was the weakest Ch attack I've had. Pain was at a 5 and lasted about 10 minutes. I went back to sleep afterwards.
    1 like
  32. I got mixed feelings on "stopping" what seems to be working. Batch...our resident jet jockey does this on occasion...and I can't explain why...spits and giggles?...dunno...maybe he'll share...... While it is always interesting to evaluate whether...through trial and error...something seems to work....there are clusterheads in ditches all over the world who found something that worked...then it STOPPED WORKING...with no rhyme or reason....I'm much too much a wussie to challenge the beast to "bring it on!"....
    1 like
  33. Hey Tom, I'd really suggest you see one of the Coimbra Protocol trained physicians at the following link: https://www.google.com/maps/d/viewer?mid=1fATZJUEhOsYYJdBY41h48FBkLaQ&hl=en_US&ll=14.974129117547387%2C-42.780705499999954&z=2 In the mean time, starting the anti-inflammatory regimen is a great choice no matter the medical condition. You can download a copy at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted. V/R, Batch
    1 like
  34. Very glad to hear of this progress, sontye! With oxygen, you'll stop attacks in less than 15 minutes, so please don't rely too much on what's working okay now, when you could have something even better.
    1 like
  35. Thank you Batch...I have started that regimen it is making a huge difference!! Posting here so others know it is working!!! I'm so happy that everyone shared it, it's been amazing I have cut my attacks down from 1-3 hours to less than an hour, they haven't stopped being a daily thing but my hopes and faith are high that it will happen. I am very greatful for all the input and assistance. CHfather sent me the link right away and I had a ton of input so to all of you thank you for the support you provide to us it's so nice! -Sontye
    1 like
  36. Hi Batch, Thanks for posting this here. I'm actually aware of the D3 Regimen, CH father posted a link to your pdf file on this thread a while back. I've been vitamin D deficient for a long time, because I never go out in the sun and I've been having joint pain for years. I did do a few vitamin D test and some came back showing my vitamin D levels at normal. However, after reading that pdf file, I understood something and correct me if I'm wrong, but my understanding is that our blood stream does have enough vitamin D concentration but it's not getting absorbed? Also, I just started having these headaches 2 months ago and I've only had 2 attacks per week and pain is mostly at a 6 so I consider myself lucky when compared to the rest of you (or maybe it starts off that way for everyone? I'm not sure). I've already ordered all the vitamins and minerals that are mentioned in the D3 regimen through amazon and I will start taking them when they arrive tomorrow. Thank you so much for all the research that you and others have put into it. If this regimen works out for me, I will be eternally grateful to you.
    1 like
  37. I notice I'm still conditioned to cch, I reach for the red bull, rub between my eyes when I lay down and wait for my head to adjust to the pressure. prepare myself for 5 pm hit, and wait for how intense it will be, I'm still anxious at 5 pm cch the condition my condition is in 21 days for me with D3 and B1, cch is held at bay, it's still present but subdued by the D3 and B1 hope you have a pf day, peace
    1 like
  38. Dallas, Spiny, CHfather: Thank you! I will get the regulator/non-rebreather I'll see what I can get my hands on. Thank you for the strings and the d3 info buying everything today, I have some of it so will start and also ask my primary to pull my blood to see where I am to start with. Again I can't thank you all enough this has been a really good experience for me and I hope it's ok that i may be throwing a few more questions out there as time goes by. Thanks!! Sontye
    1 like
  39. The doc makes a lot of good points. Probably the best one is to try and get yourself to the conference. It might just change your life. I understand completely the lack of funds problem, you might want to look into the scholarship program clusterbusters has set up to help people who can't afford the trip. I have had clusters for about 20 years now as well. When I first got diagnosed the only things that seemed to help were triptans, opiates and sometimes cannabis. The opiates worked if I took a whole lot, (at first)... but it did not take that long for the situation to change for the worse. Before I knew it I ended up in the situation where the only time I was not in pain was if I was on opiates, and even then I was still in a shitty mood. I never had enough meds, had very little energy and I just went back and forth between cluster headache, migraine, cluster headache, on and on they went. Most of that changed about 7 years ago when I had my doctor changed from someone who had no idea what they were doing, to someone who actually had a clue. I was taken off the opiates and put on an intranasal ketamine spray. It has worked to abort most clusters, when it does not completely abort them the dissociative effect makes it actually pretty bearable. (This is something that I never really felt was possible, the idea that you can have a cluster headache and think about anything besides the cluster seems bizarre, but for me it has been true) The ketamine also seems to have a preventative effect on the clusters as well. I get so many less clusters it is ridiculous. My migraine attacks are still there but don't knock me down as much. Depression has been kicked to the curb. Before the ketamine I was in the ER almost once a month (not that it really helped) but since being prescribed ketamine I have not had to go once. And while I agree with the doc that you should get off the opiates, I would not blame you if the idea of it scares the hell out of you. One of the more amazing things that I found with the ketamine was that the lack of opiates never bothered me, not once. Other people have reported that ketamine has worked as an exit strategy for opiate addiction so this is not so surprising. Some would say this is just trading one drug for another but it is quite different. Most times I will go a month or so between ketamine prescriptions and still find that it helps my chronic clusters. Hope some of this helps. Any questions feel free to ask. -Ricardo
    1 like
  40. Dear Kristofer, Sorry to hear of your trouble. Some advice- if it is at all possible you should attend the Clusterbusters Annual meeting Sept in Denver. You will find out there are people who have had chronic CH for longer and all sorts of advice from many who have found success from an even worse position (like Bob Wold!). Seriously you need to be there. You need to talk to other chronic CH folks,- how many have you met? Opioids have no role in cluster headache. Before you construct a rebuttal to that, just think, how bad you are, on opioids and ask yourself, are they working??? Your body has been hijacked (by opioids) currently, but that can be dealt with. BTW The FDA does not have a maximum opioid dose, but may suggest a maximum for certain products like Actiq With the data we have, Gammacore has been shown NOT to work in chronic cluster headache, in 2 well conducted clinical trials. You need the CGRP antibodies, when they are released (theoretically can switch off CH) or BOL (I hear there will be an update soon on the status of this). I presume you are aware of the vitamin D protocol, melatonin etc. Peace and good wishes, BMcG
    1 like
  41. I too have been curious about "shadows", ironically, I just wrote this update to my family yesterday: "I still feel, what I call, 'tinges' of headache pain that typically coincide with the timing of what would be an attack, so 'The Beast' is letting me know he’s still hanging out, probably pissed off he’s had to sit on the sidelines while the steroids are getting all the attention. Hopefully, he won’t be ready to go full beast-mode on my dome when the steroids wear off." Thanks for connecting the dots Spiny!
    1 like
  42. Looks to be a made by Teva Generics, same ones I have. I'm assuming the purpose to open these up is to self-administer variable amounts? Is it possible to ask your doctor to prescribe the vials? If so, Walmart has sumatriptan 5 vials (0.5ml) 6mg/0.5ml for $122 on www.goodrx.com
    1 like
  43. No ch hit yesterday, no shadows, no ch pressure on right side or presents of a ch, an awesome day for me, slept all night the last two nights, I'm having positive results, yesterday took 100mg x4 through out the day, still researching how B1 is acting on ch, found this last night " B1 helps the production of cellular energy and has a calming effect on histamine related headaches ". I had a dexalog shot in okc and it had a B complex with it, not sure of dosing.
    1 like
  44. Just finished a 25 1/2 hour migraine and had tinnitus all the way through, the headache is gone but the tinnitus is still going.
    1 like
  45. Tinnitus on my ch side seems are omnipresent during the cycle and they will last for 2-6 weeks after the cycle is done.
    1 like
  46. This is way old but somewhat comforting. I’m episodic and am going on my 7th PF day after 35 day cycle. I noticed the tinnitus towards the last week or so of my cycle, only occasionally, but it seems to be getting worse since the clusters stopped. It’s almost constant throughout the day.
    1 like
  47. I have used the Gammacore for the last month and it works great as a preventative treatment for me, I use it for 4 minutes twice a day. I paid $598 for the gammacore device that has 300 two minute sessions and a 30 day shutoff timer that shuts off the device after 30 days of use (or non-use.) Once activated the gammacore expires in 30 days, I used it 90 times in a month so 300 uses is more than enough for anyone in a month. I also underwent Botox for a year prior but the side effects of Botox were too much for me so I prefer the gammacore. I am a retired Electrical Electrical Engineer that served on a nuclear submarine so I know a little about acoustical energy, I took the gammacore apart and the 2 silver round electrodes on top are actually sonic transducers that emit sound waves - NOT electrical waves. Underneath the electrodes are two clear plastic balls filled with a gel in which the sound wave is transmitted into the vagus nerve. 2 electrode screws are inserted into the gel to transmit the sound energy and the frequency is adjustable. This stimulation of the vagus nerve is by sound, quite similar to the Yoga chant "oooohhhhmmmm" that also can vibrate the vagus nerve slightly while the gammacore can REALLY vibrate the vagus nerve! The Gammacore is powered by 2 three volt batteries in parallel so if you know what you are doing you can "bypass" the 30 day shutoff timer and use the single gammacore for months and save thousands. You will need a couple electrical jumpers and a small rheostat to adjust the sound frequency, can get at radioshack for $5 bucks. I will post the detailed instructions and photos as to how to bypass the gammacore timer and have a permanent device, I cannot recommend this for novices due to safety risks and always wear eye protection when working around batteries. And I predict gammacore will start selling a permanent gammacore device soon, $598 a month is ABSURD!
    1 like
  48. Color my previous "no" as definitely 100% WRONG now, thank gawsh. There is forward motion again with BOL-148, as revealed on 9/20/2014 at the clusterbusters conference. There will be the formality of toxicity tests, then a plan for initial trials in Europe. My impression was that "if lucky" the program to bring it to market it could take 5 years or so. No ironclad guarantees were issued regarding whether the efforts would ultimately be fruitful. Sorry I didn't retain more info about it, but I believe there is to be an announcement this monday 9/22/14 at http://www.savanthwp.com// The same company is working on a non-hallucinogenic version of ibogaine: http://www.savanthwp.com/SFBusinessTimes_Jan2013.pdf The only downside to me about any of this is that animal trials will be involved. Sorry, but IMO that is completely unnecessary and uncalled for with BOL-148 (it may be required by the FDA though....?)
    1 like