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Showing content with the highest reputation since 07/21/2019 in all areas

  1. 3 points
    Brain on fire

    Humanitarian

    https://m.facebook.com/photo.php?fbid=425636697647346&id=424897101054639&set=a.425636707647345&source=54&refid=13&ref=page_internal&__tn__=%2B%3D
  2. 3 points
    Dallas Denny

    Humanitarian

    My wife found some cluster related T's awhile back that I wanted but she didn't bookmark the site and I haven't been able to find it again but they had one that said, "Yeah, sex is great but have you ever felt the Beast leave!"
  3. 3 points
    ThatHurtsMyHead

    O2 trick

    O2 doesn't need a flame to spontaneously combust with hydrocarbons. I know lots of people do this, so I'm not knocking it. Just wanting people to be aware they should be very careful. Example: Say a mechanic comes in with oily hands and is getting hit.. He goes for the bag and bang... He's on fire in a second. Hydro carbons are all around us. Again I know lots of people do this without issue, but just wanting there to be warnings also. Cheers, J
  4. 3 points
    This thread is being locked. The content will remain available to all members as another method to try for pain relief. PFDAN to all members!
  5. 3 points
    I think my statement stands on its' own validity. 'Gang' means everyone - you included. It is not because I do or do not believe in your method. I have not tried and have no opinion at all. As a treatment, it works for you. And may for others. I support any treatment that is not harmful and helps anyone with CH. It is your rude responses that are the problem. And assumptions you are making as well.
  6. 3 points
    You are threatening your own thread. I have not challenged you or been involved. How is this response warranted? This is not Social Media. Nor is it a 'club'.
  7. 2 points
    spiny

    O2 trick

    I have feared the empty tank for years. Also, it made me a bit nuts when it was empty. However, there is a way to get some more O2 out of the welding tanks at least. Without the regulator, open the valve. I always hear a lot of O2 coming out with the regulator removed. In fear of running out one night, I took two garbage bags and set up a redneck bag. Just a garbage bag with a corner cut off to slip in the top and shoulder of a 2 liter bottle that I cut off. Then tape up the bottom so the bag is sealed except for the bottle opening. I held the opening of the two liter to the output of the tank and filled the garbage bag. It easily filled three bags with O2 left over. Those fluffy bags were waiting for me when I needed them. The bags do leak, so you may need to top them up so they last over a day. ATB!
  8. 2 points
    spiny

    Humanitarian

    I have a Cluster Warrior Tee. My only bumper sticker has been 'Odie For Presideent' with a hand drawn pic of Odie!
  9. 2 points
    Chadman

    Guest users. Welcome!

    Just signed up, not a bot... Thanks to all and all the great content!
  10. 2 points
    Brain on fire

    DMSO

    I used DMSO many years ago, never for a headache. It was in every barn, veterinary clinic, sports supply store & in every athletic arena. During the years I associated with athletes who had trainers/coaches, worked for a veterinarian & in barns I only saw it used topically. I believe the NFL bought it in 55 gallon drums. It had a strong smell & extreme caution was used with it. We were told anything on our hands when we applied it & anything on the skin where it was applied entered the body with the DMSO.
  11. 2 points
    Lets just back off this whole thing gang. It is a no win situation for all involved.
  12. 2 points
    There you go using the “C” word. Again, unfortunately you don’t learn. You didn’t cure anything, you eliminated a trigger for yourself. Your brain is just as fed up as ours, may be more. That’s great you found your major trigger. But. Triggers change, not everyone has the same triggers. keep in mind this is a site about busting, over the years people have added other helpful things, but this isn’t ch.com. So when you start posting about a “cure” and refuse to stop using the word you really offend people here! God knows we all want a cure but what you found is no cure. Even though (to the best of my knowledge) @Psiloscribe Has not had a CH in years he doses 2x a year but would NEVER say he has a cure! Same goes for @Batch with his amazing (data driven!!!) results with his vitamin D protocol would never have the bravado to claim a “cure”. You are in a site that was created specifically for busting, as a separate site from CH.com for the purposes of sharing knowledge about the use of psychedelics to treat (NOT CURE) CH. so when you come here saying you have a cure, don’t want to hear anything about busting, and still claim you’ve cured yourself. I again think you need to do a quick search (upper right of your screen) for “cure” start with the oldest posts first and work your way up to your cure...
  13. 2 points
    Teacher leave those kids alone... a Pink Floyd fan?
  14. 2 points
    spiny

    Guest users. Welcome!

    Bots are the reason we try our best to keep all references to some treatments in the closed threads. And why we move them. Google grabs them all and when someone does a search for one, our page comes up because a certain word was used. It is hunting for those things. Also why replies are limited when they are on a public thread or forum. Once it hits the ether, it is gone. They run non-stop and they are legion!!!!
  15. 2 points
    xBoss

    Guest users. Welcome!

    They are web crawlers mostly, just indexing sites and stuff for search. Some are hacker sniffers looking for old versions of forums and stuff. I have put up many forums and you would be surprised by the weird traffic. A quick check shows tons of them viewing random profiles. No way a real guest is all over profiles and ancient threads on page 50 etc. These are crawlers.
  16. 2 points
    spiny

    Emergency room experiences anyone?

    I went. Once. I called Neuro before going and he was going to tell the ER doc what to do for me. Well, the ER doc was arrogant as hell. When I told him my Neuro was waiting for him to call , he said ' I am your doctor now.' and refused to call him. Sent a woman in to take blood to check for a stroke! She drew blood and left. I paced the hallways. I caught her about 10 minutes and asked about the test. 'Oh, that takes 30 minutes.' Terrific. I left immediately in as much pain as when I arrived. Now, put that next to my scope experience: I advised the doctor of my Ch and requested that O2 and mask be waiting for me post scope. That changed. I got hit while sedated and out. Thrashed around so much they had to administer general to finish the scope. I woke to find a nurse in recovery holding out the O2 mask for me! And yes, sedation put my brain to sleep, but did not give relief. They got a bit of education that day. My husband had been told that I would be in recovery for at least half an hour. Surprise - I was up in less than 5 minutes! Amazing what CH can do.
  17. 2 points
    Ummmm, nah.....don't hold a candle to that day near Red Beach when I spent a few hours laying on the floor of a hooch takin tokes off a hookah with a big ol bowl filled with China white......or, to my LAST day in country before coming back to the world..lol!! Actually, my first day in country was pretty damned memorable as well! Got to the living area around 7p and hooked up with a buddy who was part of an advanced detail and who'd been there a couple weeks......he immediately hands me a j each of Cambodian red and Vietnam black and a big gin screw driver.....I was 19 and had never toked before!! And before the nite was over I swore that I never would again!! Lmao! DD
  18. 2 points
    G'mornin BOF! Although I've hit the fire station a few times for O2, I've never gone to the ER for clusters.....however, I was transported to the ER at the Dallas VA in 94 for a suspected heart attack! So, the doc does an initial evaluation and I give him my history and meds (all a part of my VA health records), they get me in a gurney and put me in a room, a nurse comes in, asks my pain level....told her a 3, so she gives me a nitro and asks again.......my answer, my heart is racing and I'm about to pass out!!! She called a code and the flippin room filled up with doc's and nurses.....evidently the nitro along with the blood thinner "Enderol" DO NOT play well together! Threw me into an arrhythmia so they wheeled in this machine, hooked me up and shocked the living piss outta me several times.....big enuf jolt that I was bouncing off the feckin gurney! Did I mention that I was in cycle?? Well, I was, and by the time they got thru they had triggered a monster hit! Surprised that the morphine didn't at least make the pain tolerable for you.....that was their remedy for me and it did get me thru that hit and several others for the 3 days I was in the cardiac ward waiting for a heart cath and presumably stents or a bypass....yup, you heard me correctly....3 dammed days!! AND....it wasn't even a heart attack! Veins were clean as a whistle!! Wound up being a large hietal hernia and my stomach had been clamped down on by my diaphragm when it ventured thru the tear!! I did wind up in the ER on Jan 15th and again on Feb 6th of 1998 as a result of suicide attempts related to my worst ever cycle, functional alcoholism, and Vietnam era PTSD but that's another story! DD
  19. 1 point
    I ended up in the ER once about 4 years ago, my story is a little more positive. I was in a bad, dark place getting no relief from imitrex or O2, probably stuck in bad rebound. I had gotten little sleep in 4 days and was throwing up from the pain and fatigue, totally ready to cash out. Hit the ER on a quiet morning, about 4am I think. The Doc was ok, not really sympathetic at first, until he pulled up my history. They eventually hooked me up to an IV bag and turned it on, giving me relief I hadn't ever felt. After asking him what it was, he said it was a concoction of several things including an anti-histamine. Still very curious what all was in that. I went home and slept pretty much all day, it was wonderful....
  20. 1 point
    Batch

    2019 Patient Conference

    I'm booked... See you there. This should be a hoot! V/R, Batch
  21. 1 point
    Brain on fire

    Guest users. Welcome!

    Um, I often read ancient threads. Usually begin with the 1st post, work back to front & I stopped crawling when I was... Oh wait, I do crawl around occasionally... On the floor. I haven't crawled a mountain for awhile.
  22. 1 point
    Looks like some of the old crew and many of the new crew will be there this year. I'll be there as well. Looking forward to pizza with DD, Bill, Spiny, Batch and of course some of our new active board members as well. (Freud, etc.).. Looking forward to it!! Cheers! J
  23. 1 point
    I've been on a paleo "diet" for almost a year. I did this to combat the "early stages" of Rhuematoid Arthritis (RA). I just visited my rheumatologist who confirmed my blood no longer has enough inflammation in my body to show up as being positive RA. My first thought was "Eff you a$$hole, why didn't YOU suggest changing my diet?" Thanks to my wife's diligence, we took control of my care. This quack outlined a treatment plan that included a lifetime of methotrexate. Excuse the rant, I still have clusters.
  24. 1 point
    greeneyes87

    Cbd oil

    My husband brought some home today for me to try... has anyone used this before and if so had any success with it?
  25. 1 point
    CHfather

    Cbd oil

    I feel like reports regarding CBD oil are all over the map -- different types, different uses (aborting vs. preventing), different levels of success. If you just type CBD into the Search bar near the top right of the page, and be sure it's set for "All Content," you'll see more than 100 posts, which you can browse through. Enough reported successes, I would say, that it's worth trying.
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