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  1. THANK YOU, Denny, for taking on that task. If I ever have free time again (maybe early next year), I'd be willing to work on updating the O2 doc and just tidying up the D3 post. As we always say, "If we can help just one person . . . " Maybe instead of a general start-here type post, it could just be "things you can do right now." This might actually have been the original idea Moxie was presenting.
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  2. G'mornin folks! Many good points and concerns Chf....AND....I totally understand your frustrations!!! Unfortunately, in my opinion.....and it makes me incredibly sad at times........the passage of time and advances in technology, the advent and popularity of social media and the manner in which it has become an integral part of so many folks fast paced lives, and the inherent fact that social media is such a dynamic platform for a support group versus an "old school" static message board or forum like ours! And it's not just us, our sister site ch.com has suffered the same decline in both newbies and active supporter/posters although I would imagine their active membership is larger than ours as it always has been. I know BobW had hoped that the board upgrade would help drive folks back from social media.....I have made personal plea's toward that goal but they've unfortunately been met by deaf ears for the most part......not bitching or pointing fingers in any way, just stating the facts as I see them....it's just the way of the world we live in today I reckon ya'll!! But, we are still quite relevant in my opinion.......we do still see a few new folks, particularly around the season changes and conference time....we do still see old familiar faces check in from time to time........and many, many folks in the Facebook groups that got to clusterbusters first, and who love clusterbusters and testify about it having saved their lives, post links on a very regular basis to our files!! For the most part though, they're no longer active here and quite possibly have no idea that they're linking to hard to read, corrupted files, full of broken links. So, I've been in contact with BobW and Jeff this week about the files issues and have taken on the task of editing all of the "Busting Files" to remove the place holder corruption from the upgrade and replacing all of the old yabb links to other internal files.........that process will begin in the next few days (gotta go buy a new laptop first).....its not going to be an overnight fix but we're going to attempt to get the issue addressed as soon as possible ya'll!! Along with that, let's continue this conversation here in regards to the thread topic, come up with a concensus outline of what the content needs to be, and I'll submit those ideas to Bob for his input! My heartfelt thanks and appreciation to all ya'll still manning the ship and being here to support those clusterheads who do find their way here! Much love and respect to all! Dallas Denny
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  3. Tpos, All, Conclusions from the 2008 survey of 1134 CHers by Dr. Todd Rozen, MD FAAN, that clearly apply to this discussion: Some of the results from the United States Cluster Headache Survey provide new clinical information on the characteristics of CH. 1. Eye color is not predominantly hazel but rather blue or brown 2. Female CH patients do not have CH triggered by alcohol as frequently as men 3. Weather changes trigger CH in more than 35% of CH sufferers 4. Auras occur in about 20% of CH patients (which has been documented) but aura duration is shorter than that seen in migraine and female CH aura is very short at 5 or less minutes 5. Bilateral CH pain occurs in 8% of CCH patients 6. All CH preventives are found to be effective in less than 50% of the United States CH population and 70% plus of CH patients have not tried most of the currently recognized CH preventive treatments 7. In the United States 50% of CH patients are not currently seeing a neurologist Take care, V/R, Batch
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  4. Batch's whole document is here: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708. At the bottom of page 2 is the table showing the ingredients, which I can't/don't know how to insert here, but is a lot easier to read. Of course, you should read the whole document. I'm going to quote some core things from pages 2, 5, and 6, but I'm not saying I'm not leaving out anything important! These quoted sections do not include the "loading" process to quickly ramp up D levels, which is described beginning at the bottom of page 7. Page 2: Anti-Inflammatory Regimen. The suggested nutrients and their doses used in the Anti-Inflammatory Regimen for adults are shown in Table 1 and Figure 2 below. Children with CH should receive a vitamin D3 dose of 50 IU per pound of body weight. The other nutrients and supplements should be taken at RDA for the appropriate age group. > Vitamin D3 (Cholecalciferol) 10,000 IU/day (Adjust as needed to keep serum 25(OH)D near 80 ng/mL) > Omega 3 Fish Oil 1000 to 2400 mg/day (Minimum of EPA 360 mg/day, DHA 240 mg/day) > Calcium * 220 to 500 mg/day > Magnesium 400 - 800 mg/day (magnesium chloride, glycinate or oxide) > Vitamin K2 (MK-4 & MK-7) MK-4 1000 mcg/day, MK-7 200 mcg/day (MK-7 preferred due to half-life) > Vitamin A (Retinol) * 900 mcg (3,000 IU) for men, 700 mcg (2,333 IU) for women (Maximum Dose) > Vitamin B 50 ** 3 month course, after that, the 7 B vitamins in the Mature Multi will be sufficient > Zinc * 10 mg/day > Boron * 1 mg/day minimum, 3 mg/day optimum * Included in the Kirkland brand Mature Multi in sufficient quantity ** Vitamin B 50 is a single pill formulated with the seven B vitamins plus 400 mcg of folic acid. Dr. Stasha Gominak, MD, a neurologist at ETMC, Tyler, TX, suggests a 3-month course of vitamin B 50 to address any deficiencies among the seven B vitamins. The anti-inflammatory regimen can be used by itself or as an adjuvant therapy along with the Standards of Care recommended treatments for CH Page 5. Order the following lab tests to establish a baseline before starting the anti-inflammatory regimen: o 25-Hydroxyvitamin D3 [25(OH)D3]. CPT Code 82306. Quest Diagnostics Test Name: 92888- QuestAssureD 25-OH Vitamin D (Total), LC/MS/MS. 95% of CHers with active bouts of cluster headache will have a 25(OH)D serum concentration ≤ 47 ng/mL, (117.2 nmol/L). Any 25(OH)D serum concentration < 50 ng/mL, (125 nmol/L) is grounds for starting this regimen. o Vitamin B12 (Cobalamin). CPT Code 82607 o Parathyroid Hormone (PTH) Intact and Total Calcium. CPT codes 83970, 82310. Establish baseline. o CBC (w/ Differential and Platelets). CPT Code 85025. (Abs) Eos >350 indicates possible allergy o Eosinophil Count, Nasal. CPT Code 89190 o Lab results for Erythrocyte Sedimentation Rate (ESR) CPT Code 85652, C-Reactive Protein (CRP) CPT Code 86140 and plasma viscosity may prove useful if inflammation is suspected Page 6. 50 mg/day (25 mg twice a day or 50 mg at bed time) Benadryl plus additional vitamin D3 up to 50,000 IU/day may be required to maintain a CH pain free response during periods of high pollen count resulting in an allergic reaction. Caution patient that Benadryl (Diphenhydramine hydrochloride) can and will cause drowsiness and not to drive when taking it if at all possible. Some CHers have reported that 12.5 mg Children’s Allergy Relief Liquid Benadryl taken twice a day is also very effective with less drowsiness.
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  5. Hey J, Off hand, I'd say you're doing great and it appears the vitamin D3 loading schedule worked as advertised. The average gain in 25(OH)D serum concentration during the vitamin D3 loading schedule is 10 to 12 ng/mL for every 100,000 IU of vitamin D3 when starting around 30 ng/mL. Using that formula, you gained roughly 78 ng/mL. Adding that to your starting 25(OH)D serum concentration, we'll assume to be 29 ng/mL we get 107 ng/mL as your new total... That's close enough. At the end of this loading schedule, we drop back to an initial maintenance dose of 10,000 IU/day. 30 days after start of regimen schedule another set of labs with your PCP. You'll need labs for your serum 25(OH)D, total calcium and PTH (Parathyroid hormone). If you're CH pain free at that point taking 10,000 IU/day and your 25(OH)D is 80 to 110 ng/mL, I wouldn't change a thing. Regarding your 25(OH)D being above 100 ng/mL, it's no big deal. The normal reference range for 25(OH)D uses an overly conservative upper limit of 100 ng/mL. As 25(OH)D is a poor biomarker for vitamin D3 toxicity, going above 100 ng/mL to even 150 ng/mL or higher is NOT an indication of vitamin D3 inoxication/toxicity. If there was such a relationship, it would likely be well above 200 ng/mL. There are a number RCTs concluding this to be the case. For reference, I've maintained a 25(OH)D serum concentration over the last three years of 140 ±50 ng/mL. My PCP just looks at my lab results and smiles saying... "Your vitamin D3 is elevated... as usual... but your total calcium is normal and PTH is low so I guess you know what you're doing controlling your CH this way." Accordingly, (for peace of mind if you're still concerned), what I would do is see my PCP for lab tests of serum total calcium and PTH. As long as the serum total calcium is within its normal reference range of 8.5 to 10.5 mg/dL, and PTH is in the lower third of its reference range, there's no vitamin D3 toxicity. Otherwise, I'd wait for 30 days after start of regimen for these lab tests. Prednisone has a slight negative effect on vitamin D3 metabolism. Once you've completed the taper, the shadows should diminish. Good move staying on the Benadryl at 25 mg every 4 hours during the day and 50 mg at bed time. I would do this for at least another week... 3 times a day was not enough for me. I've also taken 12.5 mg of the Children's Liquid Benadryl (Diphenhydramine HCL) allergy medicine and found it just as effective if taken every 4 hours as the tablet form. It also worked great in aborting shadows if you hold the liquid in your mouth and not swallow for 3 to 4 minutes as a buccal (between lower lip and gums) or sublingual (under the tongue) application. That's easy to say as the liquid form is terribly sweet and you'll be tempted to swallow it. You'll know when to taper off the Benadryl when you reach the 5 hour mark between doses and there are no shadows. At that point I extend the dosing interval to every 6 hours for a day or two, then every 8 hours, then 12 hours, then none... As long as there are no shadows at the new dosing interval, press on to the next longer dosing interval. If you remain CH pain free (that includes no shadows) for >24 hours after the last dose of Bendadryl (Diphenhydramine HCL), you'll know that it's the vitamin D3 that's preventing your CH. Again, I think you're doing great! Take care and please keep us posted. V/R, Batch .'
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  6. Hi Brian.....welcome...we're sorry you have to be here...but it's a good neighborhood!..... The range of "normal" or common for folks like us.... who are neither normal nor common.... is remarkably diverse. Even when you figure out what your typical cycle is...it up and changes...just to piss you off a little more. When episodic my "normal" was 6-8 weeks on/off for 20+ yrs....but within those years I had several cycles where the hits were less often...WAY more intense (each a 10) but lasting only 1 minute each. I contemplated a "deal with the devil" and thought..."I could live with this". Alas..."normal" returned...... Your pattern sounds a little different than most I've seen....but it is what it is..... Ask away......someone smarter than me will usually reply shortly....... Best Jon
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  7. The following link to a post I made in 2012, should help explain how and why a baking soda tonic helps prevent CH. Seltzer Water and the Baking Soda Tonic both produce the same bicarbonate ion, HCO3- per the following chemical formulas, but that's where the similarity ends. Seltzer Water has a pH between 3 and 4 due to the carbonic acid formed when CO2 is dissolved in water under pressure. A solution of sodium bicarbonate (Baking Soda Tonic) has a pH of 9.3 making it far more alkaline. In fact, the carbonate concentration of the baking soda tonic is 100 times that of the carbonic acid making it more effective in elevating a low systemic pH and in the process, preventing CH. Seltzer Water (Carbonic Acid) has the chemical formula CO2 + H2O <-> H2CO3 <-> H+ HCO3- Baking Soda Tonic (Sodium Bicarbonate) has the chemical formula NaHCO3 <-> Na+ HCO3- http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1025/#1025 In case you're wondering... I majored in Chemistry... Take care, V/R, Batch
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  8. This is way old but somewhat comforting. I’m episodic and am going on my 7th PF day after 35 day cycle. I noticed the tinnitus towards the last week or so of my cycle, only occasionally, but it seems to be getting worse since the clusters stopped. It’s almost constant throughout the day.
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  9. Hey Dan, You can download a copy of the anti-inflammatory regimen CH preventative treatment protocol with vitamin D3 at the following link. Just paste it in your browser. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 It would help if you could see your PCP for a lab test of your serum 25(OH)D and discuss this regimen before starting it. That way you're both singing from the same sheet music when the lab results come back. However, as nearly all CHers in cycle have a low serum 25(OH)D concentration and it looks like obtaining this lab test will take more than a few days, I would start it as soon as I picked up the needed supplements. You can always get this lab test and others listed in this treatment protocol 30 days after starting this regimen. If you have any questions or problems, sing out... Take care and please keep us posted. V/R, Batch
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  10. J, I totally understand your predicament. You need to be head-zup teaching class and the CH beast makes that difficult to impossible depending how ugly it jumps. It's your call on what to take to get through classes. Do what you need to do... Having the CH return at progressively higher severity attacks as you taper off the prednisone tells us you're still fighting a significant inflammation. Adding a 1000 mg tablet of vitamin C along with the Benadryl (Diphenhydramine HCL) every 4 hours has worked nicely for CHers in similar situations... A 1000 mg/day of Turmeric (Curcumin) can also be helpful in keeping the CH beast in check as it's a natural anti-inflammatory agent as well. I would also bump the vitamin D3 dose to 40,000 IU/day for 5 days then drop back to 20,000 IU/day as a maintenance dose to see what happens. Doing this will likely elevate serum 25(OH)D by another 20 ng/mL. Again, that's no biggie... I've maintained my serum 25(OH)D at 140 ±50 ng/mL to stay CH pain free for the last few years and that includes jumping on the Benadryl (Diphenhydramine HC) for a week to 10 days during allergic reactions at least twice a year since spring of 2015. Make sure you're drinking 2.5 liters of water a day... In all the hassle and confusion of a CH flurry, with the CH beast tapping out a tarantella on your eye several times a day... the need to drink enough water falls in a crack... I keep my water in an empty 2.63 liter NON-GMO Simply Orange plastic bottle and drain it completely every 24 hours. If you do all this and the CH beast continues to jump ugly, we need to take a look at diet. No sugars of any kind and no artificial sweeteners including Stevia. No gluten, peanuts, corn, soy, pasta or any food from a can or jar unless it says "NON-GMO" and "No Sugar Added." I try to cook and eat whole foods from the "Organic" produce section along with free range/organic beef, lamb, chicken and eggs. I've a freezer full of wild caught, fresh frozen vacuum sealed salmon, cod and halibut fillets from my Alaska fishing trips. The NON-GMO food types are gaining in popularity. It's only been in the last year or two that governments in Europe have contemplated a ban on foods containing Glyphosate... the organophosphate herbicide and dessicant made by Monsanto under the label "Roundup". In October the EU banned Monsanto lobbyists from entering the European parliament during deliberations on a ban of all Glyphosate products. What Monsanto has done is diddle (genetically modify) the genes of selected crops to make them resistant to Glyphosate, giving them the title "Roundup Ready." This allows these crops to be sprayed with Roudup to kill the weeds and not the genetically modified crops. In theory, this sounds like a good idea... However, given the basic laws of diffusion, these plants take up the Glyphosate so it is present in all Monsanto GMO crops including: corn, wheat, oats, barley, beans, legumes, fruits some nuts and the list goes on... Monsanto has claimed these genetic modifications only affect plants and not mammalian genomes including the human genome. The Glyphosates in these crops pass through the body unchanged so do not affect mammalian physiological functions. While this is true, it fails to account for the human microbiome... large colonies of friendly (symbiotic) bacteria and biota living in our GI tracts. They are members of the plant kingdom... Accordingly, the microbiome is affected by Glyphosate... and it kills off these friendly colonies of bacteria and biota... As roughly 70% of the human immune system is centered around our GI tract and microbiome, Glyphosate can and will damage or destroy our immune system with continued exposure. Lab tests conducted by Anresco were done on 29 foods commonly found on grocery store shelves. According to the report, glyphosate residues were found in: General Mills' Cheerios at 1,125.3 parts per billion (ppb) Kashi soft-baked oatmeal dark chocolate cookies at 275.57 ppb Ritz Crackers at 270.24 ppb (Uh Oh). While parts per billion (ppb) might sound like a very minute quantity... researchers have found Roundup can cause liver and kidney damage in rats at only 0.05 ppb, and additional studies have found that levels as low as 10 ppb can have toxic effects on the livers of fish. The other, more insidious property of organophosphates like Glyphosate is they do not break down and will lay around for years until taken up by another GMO plant. That means the GMO Roundup ready crops used as feed will result in Glyphosate being concentrated in the animals eating that feed... butter, eggs, cheese, farmed (shrimp, prawns, tilapia, catfish, cod, and salmon), chicken, beef, lamb, pork, bacon and sausage... Oh No... Why all this discussion on Glyphosate... Simple, cluster headache has many triggers... No sense in adding more when they can be avoided for the most part. Sooo... I stick with wild caught fish and shrimp, free range critters, and NON-GMO organic crops. I even buy NON-GMO highfructos-free ketchup Take care and please keep us posted. V/R, Batch
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  11. Amon10, There's likely a good reason why 89-90% of CH attacks hit while sleeping if you're an ECHer in cycle or a CCHer... even if you're working swing or graveyard shifts. For starters, I've found several studies indicating the CH syndrome is pH sensitive. More on this later... Secondly, during sleep, our respiration rate, lung tidal volume and alveolar ventilation drop to their lowest levels while still on the good side of the air-grass barrier... Basic respiratory physiology tells us that under these conditions, our blood chemistry changes as follows: The arterial partial presser of carbon dioxide (PaCO2) elevates significantly and at the same time our arterial partial pressure of oxygen (PaO2) drops significantly. This combination represents a perfect storm for CHers. The high PaCO2, termed hypercapnea, translates to a drop in arterial blood pH below the normal range (7.32 to 7.42), making it more acidic in the chemical reaction where carbon dioxide, the byproduct of normal metabolism, combines chemically with water in the blood essentially creating carbonic acid as illustrated in the following chemical equation, CO2 + H20 <-> HCO3 + H. Blood gas chemoreceptors in the medulla oblongata (brain stem) sense the elevated PaCO2 content and lower arterial pH then signal control centers in the medulla and pons to adjust the respiration rate, increasing it slightly, the heart beat to increase slightly and vasculature to dilate in order to increase the loss of CO2 from the lungs. These are some of the basic and more rapid homeostatic mechanisms the body uses to maintain pH in the normal range. The following chart illustrates the four phases/stages of sleep we go through on a cyclic bases during a typical eight hours of sleep. While we're awake in a resting state, we have an average minute volume of lung ventilation with inspired air of 7.66 liters/minute. During steady state Non-Rapid Eye Movement (NREM) sleep, our breathing is regular, both in amplitude and frequency. Steady NREM sleep has the lowest indices of variability of all sleep stages. The minute volume of lung ventilation decreases by 13% in steady stage II sleep and by 15% in steady slow wave sleep (Stage III and Stage IV sleep). At Stages III and IV, the average minute volume of lung ventilation of inspired air drops to 7.18 liters/minute. That's enough drop in the minute volume to increase PaCO2 by 3-7mmHg, shift PaO2 lower by 3-9mmHg and SaO2 drops by ≤ 2%. The increase in PaCO2 translates to a drop in arterial pH to 7.32 and lower. While that may not seem like much, it translates to a much lower pH in tissues throughout the periphery and in particular the nervous system. That spells trouble for CHers with a hypersensitive trigeminovascular system as it sets the stage for the CH beast to jump ugly at the slightest provocation. Where CHers get into more trouble is during REM sleep. This is where respiration rates become Irregular, breathing with sudden changes in both amplitude and frequency at times interrupted by apneas (stopped breathing) lasting 10–30 seconds. The overall net affect is a drop in the minute volume of lung ventilation to an average of 6.46 liters/minute, 15% lower than the 7.66 liters/minute of air inspired while awake in a resting state. This drives arterial pH even lower below 7.32 increasing blood acidity to the point it can easily trigger the CH beast to jump ugly. Getting back to CH being sensitive to pH... Several studies have found a lower than normal pH triggers the release of vasoactive intestinal peptide (VIP) from the gut and the release of calcitonin gene-related peptide (CGRP) from the dorsal ganglia. Under normal conditions, for otherwise healthy people, this results in vasodilation to help increase the flow of CO2 to the lungs. For ECHers in cycle and CCHers, it's a different story. This is where VIP and CGRP trigger neruogenic inflammation and the CH beast to jump ugly giving us pain we know as cluster headache. If you look at the sleep stage chart, you'll see this happens between an hour and two hours after falling asleep. This same sleep stage pattern occurs three more times during the remainder of an 8 hour sleep cycle... Sound familiar? That was a long-winded explanation why and when we get hit during sleep... One of the better solutions to this problem for an ECHer in cycle and all CCHers, is to sleep in a recliner chair when the CH frequency is high, so the head is elevated 8-10 inches above the heart. This causes the heart to work harder pumping blood up to the brain. The increased work load translates to a slightly higher respiration rate keeping the PaCO2 and arterial pH closer to normal. This lowers the potential for the CH beast to jump ugly while sleeping. When you do get hit, jump on oxygen therapy at flow rates that support hyperventilation, i.e., an oxygen flow rate of 15 to 25 liters/minute. An oxygen flow rate of 40 liters/minute results in even faster aborts. Alternatively, you can try the latest oxygen therapy procedure where you hyperventilate with room air for 30 seconds at forced vital capacity tidal volumes then inhale a lung full of 100% oxygen and hold it for 30 seconds. Four to seven cycles like this are usually sufficient to abort a CH. This procedure also consumes a lot less oxygen from 280 liters at a flow rate of 40 liters/minute down to 28 liters... If you think about it... this method of oxygen therapy triggers the reverse in blood gas chemistry of what occurs during sleep. Intentionally hyperventilating blows off CO2 from the lungs faster than it's generated through normal metabolism. This causes PaCO2 to drop elevating arterial pH to 7.42 and above making it more alkaline. The elevated pH causes blood hemoglobin to have a greater affinity for oxygen which elevates PaO2 even further and in the process, super-oxygenates the flow of blood to the brain. This results in vasoconstriction and rapid oxidation of CGRP, the wonderful combination that aborts CH more rapidly and reliably than sucking oxygen from a non-rebreathing oxygen mask at 7 to 12 liters/minute. An even better solution is to start the anti-inflammatory regimen CH preventative treatment protocol. You can download a copy at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 To date, readers of this VitaminDWiki website have downloaded 3,939 copies of this treatment protocol since 21 January of this year. Take care and please keep us posted. V/R, Batch
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  12. That's beautifully written and of course very tough to read. I'm sure everyone here can relate. You're not asking, but if I had to give you advice for what to do on a very limited budget I would suggest starting the vitamin D3 regimen right away. I suppose the initial cost might not be low, and the monthly cost might be close to that gym membership, but I'd expect you to get pretty good results from it, as most people with CH have (including people with chronic CH). I'll list the ingredients at the end. You can read more about it here: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I'd also suggest considering busting with rivea corymbosa (RC) seeds. You can buy the supply you need for under $20. Read about busting in the numbered files in the ClusterBuster Files section. RC seeds are covered in the file on LSA. Supplements in the D3 regimen: > Vitamin D3 (Cholecalciferol) 10,000 IU/day (Adjust as needed to keep serum 25(OH)D near 80 ng/mL) > Omega 3 Fish Oil 1000 to 2400 mg/day (Minimum of EPA 360 mg/day, DHA 240 mg/day) > Calcium * 220 to 500 mg/day > Magnesium 400 - 800 mg/day (magnesium chloride, glycinate or oxide) > Vitamin K2 (MK-4 & MK-7) MK-4 1000 mcg/day, MK-7 200 mcg/day (MK-7 preferred due to half-life) > Vitamin A (Retinol) * 900 mcg (3,000 IU) for men, 700 mcg (2,333 IU) for women (Maximum Dose) > Vitamin B 50 ** 3 month course, after that, the 7 B vitamins in the Mature Multi will be sufficient > Zinc * 10 mg/day > Boron * 1 mg/day minimum, 3 mg/day optimum * Included in the Kirkland brand Mature Multi in sufficient quantity ** Vitamin B 50 is a single pill formulated with the seven B vitamins plus 400 mcg of folic acid. Dr. Stasha Gominak, MD, a neurologist at ETMC, Tyler, TX, suggests a 3-month course of vitamin B 50 to address any deficiencies among the seven B vitamins. The anti-inflammatory regimen can be used by itself or as an adjuvant therapy along with the Standards of Care recommended treatments for CH
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  13. I tried Gammacore for a month for $498.00 (yes, it's $498.00 per month and it shuts off by itself on the last day and insurance will not pay). I found the device to be totally useless. I consider it as over-priced snake oil. I am chronic, but I don't think that would matter. I find that sumatriptan injections and oxygen are the only abortives that work for me. Nothing works as a prophylactic for me and I've tried nearly every med that you can think of. Sorry if I burst your bubble.
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  14. I am due to get my free two month trial on Friday: 2 - 31 day supply or 2- 300 doses, whichever comes first. Insurance probably won't cover anything after that. Cost to purchase, with Discount is 498.00 for 31 days or 300 doses. I will see how it goes, and keep you all posted!
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  15. Brianh. One of the best answers to your question comes from a survey of 1134 CHers conducted by Dr. Todd Rozen, M.D. FAAN October - December 2008. 1134 individuals completed the survey (816 male, 318 female). 868 patients had episodic CH (male: female 2.9:1) while 266 had chronic CH (male:female 1.8:1). A. Age of Onset: 71% had their first ever CH at 30 years of age or younger, 35% 20 years of age or younger, while 20% of CCH started after age 40 years vs 10% ECH - 45% of female CH patients had age of onset 20 yrs of age or younger vs 32% of male CH patients B. Eye Color: Predominant eye color in cluster patients was blue 33%, brown 33% and hazel 21%. Brown eye color was the most common in ECH while blue eye color was the most prevalent in CCH. No difference in eye color distribution in male and female CH patients C. Diagnosis: CH diagnosis was typically initially made by a general practitioner or a general neurologist (non headache specialist) . - Average time to correct diagnosis was usually either less than 1 year (25%) or 10 years plus (22%). Pain location - 49.1% right-sided - 44.1% left-sided - 3.1% bilateral pain: CCH 8.3% vs ECH 1.5%. - 30.5% stated that pain has changed sides since onset of CH - 8% stated that pain shifted sides during an individual CH attack Hope this helps, Take care and please keep us posted. V/R, Batch Edited to add: There may be other good answers... That said, from my 22 years experience with CH, the only thing consistent about them is their inconsistency... In other words, what you're experiencing is normal SOP for cluster headaches.
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  16. All, Wondering what (if any) countries have not made shrooms illegal? Thinking maybe There's somewhere I could go on a busting vacation and not have to worry about the unpleasantries of dealing with cops? Just looked at Erowid's site and it doesn't look there are any listed (except maybe Brazil). And it seems that since ClusterBusters was founded, it looks like more and more countries are making them illegal > I wonder if there's any correlation. "By God! These people are taking business and money away from doctors! And self-medicating! We gotta stop that! Who cares if they commit suicide to make the pain stop?" Thoroughly Discouraged, Disgusted, and Depressed, Gaius Hell, maybe if there is such a place a group or groups of us could go there and have a busting vacation/conference?
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  17. Well I didn't have any shadows yesterday at all so i was hopeful went I went to bed last night. I was actually looking forward to going to sleep instead of being terrified of it. Went to bed at 2am (I'm a late nighter) and wouldn't you know it at 5am I had to jump out of bed. The difference was this time it was because of my 61 year old bladder. Did my business and back to sleep. Woke back up at 10am this morning after another restful night other than the bladder call. I gotta tell you I am almost in tears right now. After 15 years of fighting the beast I've never had a break like this during a cycle. Hoping it continues. I did download the new D3 info and will look through it today. I also want to state for anyone reading this that I have been on this site for quite some time but never really post. However if it wasn't for this site and the information I've gained from it I may well be another reason they call CH suicide headaches. I've had cycles so bad that I've literally banged my head against the door jam to the point of bleeding just to try and focus the pain elsewhere. I thank God for this site and the people who work so hard for all of us who battle this beast and I thank God for the woman who has stood by me through all of the terrifying nights we've been through. So thank you to all of you from the bottom of my heart.
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  18. please watch Dr. Shevel's bit in the video above.. he's right on in my book.
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  19. ok sorry ,, you can see videos on the left here http://www.frequency.com/video/classification-of-migraines-enews-dr/54227671/-/5-9598892
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  20. Hi I just orderd some mexicana truffles from Amsterdam. They ship worlwide their web page is: www.buy-magic-mushrooms.com. My undesrstanding is that 10 grs of fresh truffles equals 1gr of dry shrooms. Eli
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