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Guys, I think there are some important things that needs to be said here. First, histamine IS a trigger for CH, and in many cases foods high in histamine also contain other triggering agents. This includes all aged, preserved, smoked, cured, pickled and fermented foods and drinks, that are also rich in tyramine. Of course, this does not necessarily mean that a law histamine diet will make a noticeable change for many, but some may benefit. It won't help too many people because (a) histamine is only one common trigger out of many and (b) food is hardly the only source of histamine. Histamine is not only consumed but mostly manufactured in the body, especially during CH attacks. Benadryl is beneficial for some people as a short-term preventative, because it inhibits H1 receptors in the brain. It's also useful to prevent Vitamin D depletion due to allergic reaction, which is crucial for the D3 regimen in some people. So, not a cure and not for everybody, but Benadryl and low histamine diet may help some people.
- Today
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@ThatHurtsMyHead glad you decided to go, looking forward to meeting you as well. @spinyit’s still open!!! Daquirs To Go, 543 S Riverfront Blvd, Dallas, TX 75207 pribably 25 min from the hotel, but i do plan on getting fuel city tacos one night. It’s a must. We could go here as well. It’s just down the road.
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Simple Technique to Abort Headaches Right at Onset!
Brain on fire replied to manishkpratap's topic in General Board
Just a suggestion... I'll suggest this in a similar topic as well. Use the magnifying glass to search for histamine dump (it may sound irrelevant, it is worth the time). Please take your time to carefully review all of the posts that come up via that search. Warning!!! The post contains the word "CURE" (not my caps) & the word 'cure' doesn't apply to cluster headaches... yet. Therefore the use of the 'C' word can trigger suspicion (particularly in a 1st post) and outrage. Thanks. -
This helped me- hopefully will help others
Brain on fire replied to ClusterSwarm's topic in General Board
Just a suggestion... I'll suggest this in a similar topic as well. Use the magnifying glass to search for histamine dump (it may sound irrelevant, it is worth the time). Please take your time to carefully review all of the posts that come up via that search. Warning!!! The post contains the word "CURE" (not my caps) & the word 'cure' doesn't apply to cluster headaches... yet. Therefore the use of the 'C' word can trigger suspicion (particularly in a 1st post) and outrage. Thanks. -
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- Yesterday
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ROFL.. Now that's a scary bottle of wine... J
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Who’s going to Dallas this year?
ThatHurtsMyHead replied to Freud's topic in Advocacy, Events and Conferences
Looks like some of the old crew and many of the new crew will be there this year. I'll be there as well. Looking forward to pizza with DD, Bill, Spiny, Batch and of course some of our new active board members as well. (Freud, etc.).. Looking forward to it!! Cheers! J -
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Heh, when we all get together some day it's a round of super clusters on me!
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There was a place like that in Dallas as well. Run by some Jamaicans. It’s by fuel city.
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There's a great place in Shreveport where you can get a frozen margarita in the drive through and take it with you!!! They tape a straw over the hole in the lid and sell it as 'closed container'!!!!! We need a banner of drinks here.......... I am amazed they are still in business. I don't indulge when in cycle either! I can't take Trex, so that is not an option. I'll just cross my fingers and get there just fine. Or that is the mind set I plan to run with. Do all I can to make things go smoothly and then chill out. This will be my first flight in 15 years.
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I personally could care less legal, illegal. If it works, it has no to minimal adverse reactions/ is safe then I’m all for it. But drastic lifestyle modifications may work for some, but not me. Food, sex, and sleep are some of life’s simplest pleasures. I’m not willing to give up all three. CH has robbed me of 2/3. I’m glad it works for you and I hope it continues to.
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I'm a member since 2013 but I was a silent member who rarely came and never commented until very recently.
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This helped me- hopefully will help others
ClusterSwarm replied to ClusterSwarm's topic in General Board
No man I get that. What I am asking people to try involves no illegal drugs or legal drugs. I knew I would catch hear from people who have given up on ever finding a true cure. All I’m saying is give it a shot what have you got to lose. Hundreds of people have viewed my post and hopefully a few will stick to it and find relief . I’m not trying to ruin there good time suffering together I’m just trying to reach out and help . If the old timers don’t like it I could care less. -
You’ve been a member here since 2013? Newbie?
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@ClusterSwarm, don't take it too personally. You don't know what other people went through, what they tried and how much snake oil they been fed over the years. It's only natural that people are touchy about the language used to describe their condition and treatment prospects. There's a huge difference between saying "it works" and "it works for me". I'm also new here, but I', a "Veteran" at clusterheadaches.com, and flaming of newbies with revelations is as old sport. Take care.
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I've managed to prevent most of my nocturnal attacks with either Amitriptyline (25mg), Melatonin (2-7mg), oral Imitrex (25-50mg) or combinations of them. I used to have episodes of 8-15 weeks with 1-3 hit every night, for years. That's on top going on and off of being chronic in the past 20 years, and episodes that included 3-6 hits around the clock. As for O2 - in some point I followed Batche's advice and tried hyperventilating with 25lpm. Later, I realized lower flow rates (10-12lpm) also work for me, as long as I'm lying in a certain way, breathing in a certain pace, leaving the oxygen in my lungs for a few seconds every time and clearing my mind. I know, it sounds like something Potter would make fun off...
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This helped me- hopefully will help others
ClusterSwarm replied to ClusterSwarm's topic in General Board
You can change the title to “ this has a one in a million chance at working” I could care less. If one person finds relief it was worth the fight . -
This helped me- hopefully will help others
ThatHurtsMyHead replied to ClusterSwarm's topic in General Board
ClusterSwarm, I rarely ever edit posts, but I changed the title from "Cured" to "helped". Claiming a cure is a bit of a sore spot with Ch'ers. Many have claimed to be cured, and rarely does the said cure work for anyone else, or it stops working for the person claiming the cure. CH is a nasty condition. It changes all the time. When I was episodic I went 2 years between attacks (cycles) once and other times it was 1 month between cycles. It's great that you think you're cured. It's always good to stay positive. Just remember that CH does just stop (or pauses) for most everyone from time to time. It's just what it does. No one knows why. Cheers, J -
This helped me- hopefully will help others
ClusterSwarm replied to ClusterSwarm's topic in General Board
I think your twisting my words. All I’m saying is there are a lot of people going headache free by dumping all caffeine products and reducing the amount of histamine rich foods they take in. I know what these headaches feel like and there are a lot of people taking in caffeine to help relieve the pain and it does help “short term” but the long term affects are more headaches and longs clusters. Im trying to help people. Further more my title was “ this help me hopefully it will help others” so for people to say I’m misleading thru my title and “we could have a had a conversation “ go back and re-read the title. I think it’s pathetic that your knocking this approach before you’ve tried it . -
@SHG I have a carried response to oxygen. Sometimes it works and others it does not. I’ve tried all different breathing techniques and such but the only thing that made a difference was getting 25LPM regulators. My response to psychedelics is varried bc if a med that I was on that is a strong blocker and has a 16.5 month elimination time. My last dose was oct 2018 so I’ve got some time until I can really say they work or don’t work for me. Lately I have gotten a much needed reduction of my nocturnal attacks but I’m dosing every 5-7 days again. Other than not responding to the caffeine/ energy stuff. I’m pretty normal on my responses.
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Simple Technique to Abort Headaches Right at Onset!
ThatHurtsMyHead replied to manishkpratap's topic in General Board
manishkpratap, I'm also in the camp of only sometimes I get a blocked nose or sinus. It's also always after I'm hitting a Kipp 6 or higher, never before. So I'd suspect the sinus inflammation is a result of the attack, not cause. I can definitely appreciate your sharing what works for you. On the other hand if the blocked nose or sinus was the cause of the attack. Wouldn't it stand to reason that anytime we get a cold, flu etc, then we'd also get attacks when we're sick with a blocked sinus or nose? Just thinking out loud. Again, I think it's great that you found something that works for you. Cheers, J -
@Freud any surprises with other abortives / prophylactics?
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This helped me- hopefully will help others
ThatHurtsMyHead replied to ClusterSwarm's topic in General Board
ClusterSwarm, I think what you have stumbled across are trigger foods, not necessarily a cure. It's a known fact that foods high in a chemical called Tyramine are highest on the CH trigger list. Alcohol, Chocolate, Fermented Cheeses (the processed stuff is ok, since it's not really cheese and not made by fermenting milk), Aged or preserved meats, etc. All of these are high in Tyramine, as Tyramine is a byproduct of food breaking down. Case in point: One person might be able to eat a banana without a CH attack, but another person it's a trigger for a CH kipp 10 attack. Why? One person ate the banana when it was just starting to ripen (low in Tyramine). The other ate the banana when it was fully or overripe. The overripe banana is VERY high in Tyramine. Now, why Tyramine is a primary trigger has yet to be identified, but it's a fact that foods high in Tyramine are also the most common CH food triggers. Cheers, J -
For sure, many have come here making the same claims about keto diets, but like you said. Some things work for some people some times. Then wala, their “cure” doesn’t work any more. I’ll stop spamming this thread and the other cure thread. It just erks me when people come here touting cures and don’t even know what busting is or have never tried it. For the life of me I don’t understand why they aren’t willing to try it. No drastic life style modifications, just a few doses and wala, most episodics can abort a cycle....
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To be fair - many treatment options are only researched after there's anecdotal report of a surprising recovery. I think if ClusterSwarm had come here and told his story, with less interpretation and a better title, it could have lead to an actual conversion.
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I’ve tried drinking just one cup in the am, then just when I get hit for months and no change...
