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  1. Today
  2. It is no wonder these things are so hard to figure out, they vary with time and people.. this is only the third time I have had access to O2, but have yet to get one I could not stop with enough O2. But most of my 40 years with CH's has been ice packs and dancing.
  3. Thank you @Bejeeber! I love your understanding! @RushI think you're right about chronic clusters still having at least short breaks between them, at least what I've read on this forum.
  4. As a fairly textbook episodic CH'er I can say that once an attack has gotten a real foothold I've never been able to knock one back with O2 It's more of a catch it at onset or forget about it deal, so I feel like I understand where you're coming from @trjonas with not being able to tell if O2 would be of any use, since your onset was months ago!
  5. Yesterday
  6. No I Haven't... (on the indomethacin ). But with a CH it is "better" to start at onset, but there have been times (like now) that my CH's are not as intense and sometimes very short, so if it is like a KIP 4, I will try to ride it out, but if it hit's 45 minutes or so, I will throw in the towel, because then I know it might be one of those 3 hour jobs. But I can get on the O2 with a KIP 9, and it will stop it, it's just not as quick if I don't start at first sign. But I am speaking for myself here :).. I imagine it may vary by person. I may be wrong, but it was my impression that Ch
  7. @RushI know! But that long after onset, I think the oxygen doesn't have a chance. Either that or I have (a) pure HC or (b) HC and chronic migraine instead of HC and CCH. Have you trialed indomethacin yet?
  8. Last week
  9. Wow, no help from O2... There are not many people with CH that don't at least get "some" relief from it.. I had to look up the HC (whether it is CH HC I, like everyone else, will grasp all straws :\...) I have been in cycle since 12-9-20, so I wanted to look into the HC just to make sure. Beginning to think I am going chronic arghh.. It does sound like you made some head way though. GOOD LUCK!!
  10. Hi @Rush, you're so nice to ask! This is what I just posted on another thread: I also trialed indo at the suggestion of other (wonderful) folks on this forum. It took 2-3 weeks of titrating up to 225 mg but I did have a partial response of about 50% improvement, which, since I've been at a 10 since late January, felt WONDERFUL. I assume that because I only partially responded, I must also have an underlying condition of CCH or chronic migraine, but now you make me wonder, @Siegfried! Thank you for posting about that. It's possible that the longer I stay on the indo, the more
  11. I also trialed indo at the suggestion of other (wonderful) folks on this forum. It took 2-3 weeks of titrating up to 225 mg but I did have a partial response of about 50% improvement, which, since I've been at a 10 since late January, felt WONDERFUL. I assume that because I only partially responded, I must also have an underlying condition of CCH or chronic migraine, but now you make me wonder, @Siegfried! Thank you for posting about that. It's possible that the longer I stay on the indo, the more I'll respond. Also, I'm now busting to try to get out of this 10 cycle or exacerbatio
  12. Could we all see the latest version of the protocol? So far, alas, it hasn't done anything for me, but I'm on the original one. (Have been since January or so)
  13. I know this thread is about a month old, but just wondering how you made out with the O2?
  14. i will b e getting tanks from a medical o2 supplier. that mask looks good, but it $25us and shipping is $32us , that’s over $70Canadian i wonder if a similar mask is available to us Canadians.
  15. ....hi IFB...welcome....you've heard great stuff already...if i repeat, oh well... My GP has changed the scrip this time to 15L/min with a non-re-breather mask, which I believe is what you're suggesting i should use. .....some go (much) higher to find relief...don't limit yourself ...the script is just the "ticket to ride"...we each find the best flow that works...nobody else knows or cares what that is. a non-rebreather type is vital...just make sure you are not out running the bag....better yet would be a demand valve or direct from a tube. there are various breathing techni
  16. Energy beverages (the 8 oz or larger drinks and the smaller "shots") work because they have a lot of caffeine in them. Some people credit other ingredients, such as taurine. I'm not persuaded about that. So straight strong coffee might work, as it does for some people. A 5-Hour Energy shot is very potent (about twice as much caffeine as a Red Bull, for example), and you can swill it down fast. Some people say the colder the better. Surprisingly, I'm going to say that 85-90 percent of people can get back to sleep quickly after taking it during the night. A non-rebreather mask is fine.
  17. Hi ifb, glad to see you got the super expert advice from CHf! sucking ice cubes (especially when placed on the CH side of the roof of the mouth) has worked for me as a helper for aborting attacks when I'm not in in a high raging phase of a cycle, but it's been an adjunct when also breathing freezing cold air at the very first sign of an attack. In warm weather this can be done by going out to the car (if you have one), blasting the A/C, sticking your shnozzola up the the vent, and doing some serious nose breathing. Then around the time a gloriously delightful in comparison ice cream type
  18. So. I wrote that blurb at the office and I appear to have skipped over some things. My original scrip for O2 was 8-12L /min, as was prescribed by my neurologist. My GP has changed the scrip this time to 15L/min with a non-re-breather mask, which I believe is what you're suggesting i should use. My Verapamil was increased last year to 240mg slow release. I was taking so much Zomig, that my benefit plan started capping it. Here in Ontario, Canada, the cost is $28 each spray. When I got below 3 boes (of 2). I would literally start to panic that I wouldn't be able to fin
  19. Welcome, its'. As we say, sorry you have to be here. First things first. It will make a difference. Sounds like you had a useless system the last time. What is the current flow rate? It's rare for a doctor to prescribe more than 15 lpm, but most people find that flows higher than 15 lpm make for better aborts. Throw down some coffee or an energy shot as you start of the O2, use a good breathing technique, and your life is gonna start changing. Consider getting the mask that's made for people with CH: http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&
  20. Hi, this is my first post so take it easy on me :-) I have suffered with CH for about 20 yrs, but was only correctly diagnosed about 6 yrs ago. I had an addiction to Advil Cold and Sinus pills as a preventative measure for about 10 yrs, 3 extra strength with breakfast and 3 before bed. Looking back, I don't think they worked very well. I had an Ear/Nose/Throat specialist perform Sinus surgery to try to alleviate the pain, to no avail. My GP, after diagnosing me, prescribed me Zomig nasal sprays and as a preventative measure, Verapimil Slow release, 120mg/day. 2 yrs ago
  21. This is interesting. I will put a little piece of paper towel or tissue with Frankincense oil on it and press it to the roof of my mouth for about 3 minutes to help abort an attack. Used like a 5hr energy drink along with the oxygen and it does seem to help me. My wife found out about this on some essential oil website a few years ago.
  22. Happy and successful busting to you xBoss. May the bust abide indeed - good one jon.
  23. .....yeah, an albuterol trigger wouldn't surprise......damn steroids are so active! if so, stinkin' thing is you did nothing wrong....an appropriate action to deal with your needs.......one that any NON clusterhead could do w/o a second thought or consequences......sheesh. ....try some antihistamines (old school work for me) for spits and giggles too...it IS springtime! ....may the "bust" abide j
  24. Hey all, It's been pretty good for the last few years but I have a cycle trying to ramp up. Last night I got to about a level 6 of a full blown attack. Dosing as soon as this tea cools off. I used my wifes albuterol inhaler a few times last week because I was smoking some cruddy weed. I wonder if the albuterol triggered this mess? At any rate, time to slay this beast! GL warriors!
  25. during cycle i abstain from heavy lifting...had to learn the hard way by suffering brutal hits while at the gym, no bueno. when in cycle i now just stick to cycling (cardio) without going into anaerobic. when out of cycle i resume my lifting.
  26. Hi all, upfront sorry if that would belong into theory and implementation. I have tried the search function for "SSRI withdrawal" but nothing directly related showed up. (*disclaimer for those I had no interaction with yet, i have a correct o2 setup, zomig nasal emergency packs, am on the d3 regime, have added Quercetin, am ware of triggers etc. My career is nearly 16 years or so). I have not busted yet because I am afraid to worsen things but would be open at this point.No option right now because of the SSRI intake anyways. My Neuro is on sick leave for a longer time so I have no o
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