All Activity
- Yesterday
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Jglass joined the community
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Terry S. joined the community
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URGENT: Travelling to NYC and Need Oxygen
Ryanbell replied to TorontoCanada's topic in General Board
I think you are talking about the "oxygen for rent" when you have to go a trip. I saw a source where all the rental equipment are available in very cheap rate. You must have to visit here and get your needy equipment for rental. -
Ryanbell joined the community
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Are you sure it wasn't nitrogylcerin? you are totally right, it was nitroglycerin
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Are you sure it wasn't nitrogylcerin? That's what is usually used to deliberately trigger an attack. There have been people here who thought that nitrous oxide ("laughing gas") was a good abortive for them.
- Last week
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nirvanayogaschoolindia joined the community
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They gave you one on purpose??? That seems cruel & unusual
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Thank you both so much!! I have a lot of dental work coming up so I’ll make sure it’s with the epi-free stuff. My dentist says it doesn’t numb as long or as well, but it should still be a better experience overall than the one I just had. Hopefully it just triggered a few unpleasant days rather than a whole cycle
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had a cycle start after getting a tooth fixed. can confirm
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many moons ago when i was in the hospital for ch diagnosis, during an active cycle, the doc used nitrous oxide to trigger a hit. took less than 5 minutes for a full blown kip 8 attack. alas the test was positive...
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Yes, it's the epinephrine. This is from the "Triggers" post in the CB Files section: "Anesthetics containing epinephrine (such as Xylocaine) and nitrous oxide have been identified by some people as triggers. Ask your dentist to use something else: Prilocaine seems not to cause bad effects. Another person has mentioned carbocaine as an anesthetic that didn't trigger his CH."
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hannah3141 started following dental work triggers cluster?
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I’m a little late to this post, but I also had the same problem. I had a root canal started yesterday on the same side that I usually have cluster pain. As the anesthesia wore off, it was quickly replaced with cluster pain around a 7 or 8. I’m not in a cycle right now, and mine usually take weeks to ramp up when one starts, so this is out of the norm for me. Any guesses on whether it’s because of the root canal itself, or because of the epinephrine in the anesthesia? I have several more dental procedures on the non-cluster side of my face coming up, so I’m not sure how to handle those. Also, isn’t epinephrine sometimes used to treat cluster headaches?
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JenMia joined the community
- Earlier
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abennett79 joined the community
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psjrn joined the community
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Exactly All good, I got really scared while taxiing but it all turned out to be fine IMG_2659.mov
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jpwilliamson21 joined the community
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Looking forward to a report of a smoooooth flight, no CH issues! Flight fingers crossed.
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We’re taking off… OMG I’m terrified, see you guys in a couple of hours
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Some SSRIs like Lexapro block the effect of MM, so that's something to consider. Like others here, I did not have luck with antidepressants and CH.
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If your gonna take antidepressants as a preventative for CH, all I can see coming from that is you will end up addicted to antidepressants ans still have CH, oxygen first and foremost to abort varapamil as a preventative and triptan injections as last resort to abort
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Well....many antidepressants have been sister medications for migraine and Ch. You did not specify the medication/antidepressants scripted but most are not effective for CH. Your doc should have first and foremost scripted oxygen as an abortive then maybe verapamil.. which currently is the so called gold standard of treatments not that it means much in the way of CH. The D3 regimen should be looked into as it has helped many more than verapamil..
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Bejeeber started following Steroid taper and beast hits more
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I won' t be receiving any awards for sharp memory or perfect recall, but I do not recall any other reports of the initial high dose phase of a prednisone burst causing CH to get worse (you're on day 2 at 60, right?). Reports of CH worsening following the taper down, yes, but not at peak dose. I would hope you still may encounter some of the expected relief any minute.
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Finally some input, thanks for the response!
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Was prescribed Paxil many years ago. Didn’t do much. In theory they should have a positive effect as they typically target the serotonin receptors, like a lot of our treatments.
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Since 98 here. One thing clusters are well known for is changing and stuff that used to work does not work anymore.
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Cluster sufferer since 1996. Last cluster cycle was February 2023 until this current cycle. I have been in this cycle since beginning of august. On second steroid taper 60 for 3 days then 50 for 3 days and so on till done with taper. Feel like the beast is coming in full force and I am on day 2. Second month of emgality been on and still on verapamil. Oxygen tanks all over the house and my classroom. Truvaga should be here by Friday. Also had steroid and nerve block injection on head September 6th. Has anyone had this happen? Praying it is kicking them out and will get better but losing hope quickly.
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My experience worked out that time without my head acting up. I made a point to take some treatments prior which I believe made the difference.
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I'm off to Tenerife tomorrownight and I'm pretty scared for the flight. When I drove to the south of France this summer I definitely felt the elevation while driving through the pre-Alpes. What was your experience during that trip? I'm going to take Imitrex and caffeïne-gum on board. I hope it'll keep me on my feet for the entire flight in case the bunny shows up.
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sorry to hear that. mine are usually more late summer than early fall so hopefully this is it
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Ideation, yes. For the numbers on this board, I have no idea. I know we as a demographic are more likely, I mean thus the name. If you have a plan I implore you reach out to a friend, a help line, a doctor, someone, the step from just thinking about wanting this shit to end permanently to having a specific set of steps in mind is a huge step and rather large red flag, so talk to someone, reach out.
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Awesome, mine are right on schedule. Last year was oct- mid december. Shadows have been happening lately. Ah well, time to start busting.