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ClusterBusters

xBoss

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xBoss last won the day on March 28

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About xBoss

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  1. xBoss

    Is there something about Australia?

    It's def. a good idea to change regions if you are chronic and at your wits end with CH. That is if you have the ability to change regions. My headaches changed as I moved around North America.
  2. They can change but my episodic cycles were the same for 20 years before they got a little worse. They went from 2-5 week long cycles to 8-11 weeks. Other than that it's about the same. I beat them with mushrooms last year and only went about one week of pain. This year the goal is even less pain!
  3. xBoss

    Just diagnosed with clusters

    Hello MrsKgood, welcome to the forums. The theory & implementation forums is where the busting talk takes place. Sorry that you have to join our club BUT, you found a great place for relief!
  4. xBoss

    Warning about vaping

    Vaping has issues, you can get a lung infection as well.
  5. xBoss

    New here but not new to the evil!

    Hey Bob, welcome to the forum. This is a great place to be. You will find at least some form of relief here. Hang in there!
  6. xBoss

    Describing CH to non-believers

    I don't even suffer as bad as most and CH still makes me cry. I have never cried over any injury in my adult life including broken bones.
  7. xBoss

    Describing CH to non-believers

    The molar pain struggle is real.
  8. xBoss

    Make this site as accessible as possible. :)

    The problem with any forum is that you can answer the same question 100 times in 100 different ways and new people will still show up and ask it again without even 30 seconds of research. It's not like we are selling widgets here, this is important stuff for a rare group of people. Anybody in bad shape needs to invest the time. After 17 years of owning and running forums I have found that about 50% of forum users are helpful and the other 50% wants all info handed over to them on a silver platter.
  9. xBoss

    “Cure”

    Probably need to up the dose.
  10. xBoss

    Work and CH

    O2 never worked for me but I'm lucky in the work dept. The CH usually comes right after work when I relax.
  11. xBoss

    Describing CH to non-believers

    The word headache is the wrong word. It lumps us with the rest. Proper terminology would be something like Brain on fire syndrome then they would take us serious!
  12. xBoss

    Why can't not being in pain be a good thing?

    The PTSD is real with CH.
  13. xBoss

    Describing CH to non-believers

    Tired of people that say stuff like yeah, I get headaches too.
  14. xBoss

    CH related to tumor

    I really need a brain scan to settle it as i am self diagnosed but im on year 21 or so and its pretty obvious at this point that i have ch. I also match everybody here for pretty much everthing. Tumors are 10 times more rare than ch
  15. xBoss

    Shadows

    Usually the two months before my cycle I get some shadowy symptoms. Tension headaches, sore muscles. I feel great right after the cycle ends.
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