Dallas Denny

I'm episodic Phil.....been busting since 2010....was never successfull at preventing a cycle by maintenance dosing during remission and have never been successful at aborting a cycle already in progress.....but....although I have to dose through out my entire 20 week cycles, I get 2 to 4 completely PF days between doses and oxygen works much better than prior to busting! In 2017 I switched to a preemptive busting strategy in anticipation of a cycle beginning in late March early April at the earliest and as late as July/August......so, I began dosing with 1.5g every 30 days in late February and followed that strategy thru mid October.....never had the first twinge of a hit! In an effort to repeat that success, I've been on the same dosing regimen since mid February. I do powder and cap my doses to avoid the taste and resulting nausea. DD

G'mornin Phil As a guy about to turn 72, I can so relate....unfortunately, in my opinion, there's just not enough anecdotal evidence yet to show that micro dosing is an effective treatment for clusters.....a scant few claim success but 1/10th to 1/20th of a recreational dose (175 - 350mg) is not enough for most folks to reach a therapeutic trip level ! Dallas Denny

Indeed Pebbles!! I would have dearly loved to have had the opportunity to sit and chat a spell with Sasha! DD

It is a research chemical that a member of the forum researched and wrote a paper on several years ago now.....it was one of Sasha Shulgins creations and worked marvelously for many clusterheads.....unfortunately, it's manufacture was made illegal in China where most RC's are made and is now no longer available from any suppliers to my knowledge DD

Hey teach! I'm sorry but I can't remember what your ch history is off hand but if you've had clusters for a while and are now in a 4 month cycle that coincides with your neck injury, you may well have acquired a 2nd diagnosis of cervicogenic headaches as well!! They mimic clusters in many ways.....my good buddy Hollywood Dan of NatGeo fame has both dx's.....the good news is that he is able to get relief from the cervicogenic hits with nerve facet injections every few months! DD

Agreed Freud!! I'm a longtime daily toker.....it does wonders for my back and neck (5 herniated cervical and lumbar discs) and allows me to forego opiates 90% of the time. But it doesn't effect my clusters....not a trigger and doesn't exacerbate at hit nor does it abort a hit. DD

Hey dm If it's a large cylinder with cga-540 connection, you need to remove the regulator and transport with the neck cap on. I've carried my large weld ox tank in strapped down in the bed of my pickup many times......I could get pulled over, hook up the regulator, and be huffing in short order! DD

If I'm remembering correctly, scholarship applications will open sometime in April.....Eileen will announce it and provide a link in this thread. DD

G'mornin Big Mack I shudder to think about what my life would be like if welding oxygen wasn't an option! Unfortunately, here in the US we don't have a NHS and since Medicare doesn't recognize O2 as an effective treatment for clusters many private insurers follow suit. I've been using welding oxygen for 10+ years with no ill effects.....both medical and welding oxygen comes out of the same faucet, the difference is that medical tanks are vacuumed prior to being refilled while they just give welding bottles a sniff test for acetylene cross contamination. Dallas Denny

Registration complete!! Bitchin hotel location Eileen!! Woot!!

Hey boatman! I would urge you to order the Clustero2kit mask....the Cadillac for clusterheads....and it comes with a mouthpiece as well! I always shudder when I see folks posting about breathing O2 straight from the tank hose cuz accidents do happen!! http://www.clusterheadaches.com/ccp8/ DD

Hi Sicnic! Thank you for your service! I'm an old jarhead and Vietnam vet. I didn't have a TBI but in July of 1967 our bomb dump at the Da Nang Airbase was blown up with a direct hit from a 300mm rocket.......I was a little over 1/2 mile away.....it was 3 am and suddenly it was daylight and you could see 500 and 1000 lb bombs flying thru the air like matchsticks........the concussion threw me 40 ft thru the air and it was almost 2 years before my hearing returned! Curiously enough, my first cycle occurred shortly after the Tet offensive about 6 months later.... IMHO, when medicine has clusters figured out some day, I think they'll find that they can have several different causes. I've known folks whose clusters started..... after a TBI or head trauma......immediately following sinus surgery and cch from day one......or, it could be a wonky hypothalamus ultimately causing a chemical imbalance our brain......we have a longtime member whose clusters began as she transitioned from a testosterone to estrogen based system so probably need to add hormonal causes (could be why some women experience remission during pregnancy).......and they may find others! I also think this is why what works for one clusterhead doesn't necessarily work for another! DD

Welcome Sicnic! If you don't have it, high flow oxygen is the best abortive method for most of us! The anti inflammatory vitamin D3 regimen works very well for many folks. You'll find documents on both in "Clusterbusters Files" section of the forum. Dallas Denny

Hey Big J I don't use the D3 regimen so can't relate personal experience, however I've known Batch since before he developed the anti inflammatory regime.....I'd reccomend shooting him a PM here and I'm sure he'll give you some input! I do know from just watching his posts that it is important to include all of the co factors in the regimen for maximum efficacy and the "sweet spot" for most folks is a 85 ng/ml level on the 25 (OH) D test. I'm sure there will be some other folks along shortly with personal experience...good luck! Dallas Denny

Hi clusternana! Prior to finding out about oxygen in 2007 and busting in 2009, when my hits were still in that 45 to 90 minute range, the more agitated I got included crying the worse the attack got.....since combining O2 and busting, I've experienced just 3 or 4 crying, snot slinging Kip 10's......the vast majority of hits over the past 10 years never got above 3-4 and were easily aborted with O2 and hot coffee or tea in 5 to 7 minutes and oftentimes less than 5 minutes.......still the same on agitation though as far as exacerbating the intensity of a hit! Dallas Denny