Dallas Denny

Welcome to the community Horton.....sorry you had the need to join us though!! As to your questions, indomethacin is used as a diagnostic drug......if it stops your pain, you get a hemicrania continua diagnosis....if the pain persists, most docs DC the indo. O2 needs to be 100% in most cases......CPAP will not work unfortunately. My advice would be to read up on Batch's vitamin D3 regimen and start there ( ensuring you take all the co factors as written) and if you're on Facebook, ask to join the Australia, New Zealand Cluster Headache Support group........a good mate of mine is one of the admins......Give Dan Bailey a shout and he can get ya sorted on the O2 and other clusterhead information. Unfortunately, I can only think of a few members from down under in the almost 10 year history of this board..... Be well... Dallas Denny

G'mornin Dana! The answer to your question is ABSOLUTELY!!! My experience is that they usually have to numb you up for deep cleaning....which means (commonly) epinephrine resulting in injections around the upper teeth in close proximity to the trigeminal ganglia.....sometimes dentists will have a numbing agent besides the epi but they'll still be injecting close to the trigeminal!! Last time I had deep cleaning it definitely triggered some out of cycle hits!! DD

Very timely update miss Eileen!! DD

Yuppers... Oregon is next!! Who'd a thunk we'd see this...EVER!!!!

Welcome Bob! If you're close to Boston you can access a member here who is also a Neurologist with a specialty in Headaches.....bostonheadachedoc has been a hero in the cluster headache community for many, many years! I'll send him a message on Facebook and see if hell drop by and comment on your thread! Definitely agree with Pebbles and Chf that it certainly doesn't sound like clusters though Dallas Denny

G'evenin ya'll! Many good points here! As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information. I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files. I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery, we've completely lost bejeebers, Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence. At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up. DD

https://embassysuites.hilton.com/en/es/groups/personalized/D/DALEMES-CLU-20190918/index.jhtml

If.... IF....they're saying the have 5 Meo Dalt available then it is definitely a scam!

I'm episodic Phil.....been busting since 2010....was never successfull at preventing a cycle by maintenance dosing during remission and have never been successful at aborting a cycle already in progress.....but....although I have to dose through out my entire 20 week cycles, I get 2 to 4 completely PF days between doses and oxygen works much better than prior to busting! In 2017 I switched to a preemptive busting strategy in anticipation of a cycle beginning in late March early April at the earliest and as late as July/August......so, I began dosing with 1.5g every 30 days in late February and followed that strategy thru mid October.....never had the first twinge of a hit! In an effort to repeat that success, I've been on the same dosing regimen since mid February. I do powder and cap my doses to avoid the taste and resulting nausea. DD

G'mornin Phil As a guy about to turn 72, I can so relate....unfortunately, in my opinion, there's just not enough anecdotal evidence yet to show that micro dosing is an effective treatment for clusters.....a scant few claim success but 1/10th to 1/20th of a recreational dose (175 - 350mg) is not enough for most folks to reach a therapeutic trip level ! Dallas Denny

Indeed Pebbles!! I would have dearly loved to have had the opportunity to sit and chat a spell with Sasha! DD

It is a research chemical that a member of the forum researched and wrote a paper on several years ago now.....it was one of Sasha Shulgins creations and worked marvelously for many clusterheads.....unfortunately, it's manufacture was made illegal in China where most RC's are made and is now no longer available from any suppliers to my knowledge DD

Hey teach! I'm sorry but I can't remember what your ch history is off hand but if you've had clusters for a while and are now in a 4 month cycle that coincides with your neck injury, you may well have acquired a 2nd diagnosis of cervicogenic headaches as well!! They mimic clusters in many ways.....my good buddy Hollywood Dan of NatGeo fame has both dx's.....the good news is that he is able to get relief from the cervicogenic hits with nerve facet injections every few months! DD

Agreed Freud!! I'm a longtime daily toker.....it does wonders for my back and neck (5 herniated cervical and lumbar discs) and allows me to forego opiates 90% of the time. But it doesn't effect my clusters....not a trigger and doesn't exacerbate at hit nor does it abort a hit. DD

Hey dm If it's a large cylinder with cga-540 connection, you need to remove the regulator and transport with the neck cap on. I've carried my large weld ox tank in strapped down in the bed of my pickup many times......I could get pulled over, hook up the regulator, and be huffing in short order! DD