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Dallas Denny

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Everything posted by Dallas Denny

  1. Dallas Denny

    Finding the way here

    @CHfather. I found the old clustercluster.com site in 2007 by clicking the "clusterbusters" in the old ch dot com navigation bar.....it was strictly a website then with all of the info that's in Tommy D's files and there was one of those password protected "Yahoo groups" for discussion......I know the vast majority of us who joined this forum when it went live came from DJ's board because the launch was announced there so have no idea how we would have found this place thru a search back then!! Bless you DJ! Dallas Denny
  2. Dallas Denny

    Happy 10th Birthday to our forum!!

    I'm going to go ahead and post this a few days early as I may not have the time this weekend! This board went live on October 27th in 2009! I joined that day so it will also mark 10 years of active membership here for me as well!! We all owe a deep debt of gratitude to DJ for helping with getting the original yabb powered board up and running!! I can honestly say that being a part of clusterbusters this past 10 years has been by far the most rewarding experience of my life!! DD
  3. Dallas Denny

    The Jesus Shot

    Hey ya'll! This is a copy and paste of a thread that "Hollywood Dan" posted in a facebook group this morning. Let me say in advance that there are some naysayers regarding this subject due to the docs past legal issues, and I respect those folks reservations but we all have to decide for ourselves to what lengths we're willing to go to tame or slay the beast so wanted to make sure this info is available here as well. "Jesus shot update. So far, I believe 5 chronics and one episodic have tried the shot. It's a 3 minute process consisting of 2 steroids and vitamin B12. Dr Mike Lonergan in Weatherford Ok came up with this anti-inflammatory shot, and says Jesus inspired it; thus the name. I'm patient #1.... I had my shot on 5-11-16 and went from daily and nightly screamers to completely pain free immediately. I have not had a hit since. I had 3 nights of shadows mid November and got another shot 11-21-16. No noticeable side effects other than an increased appetite, which is great for me. Patient #2 RL. Ryan went from CCH to completely pain free, having one hit the day after his shot. His headaches returned after four and a half months. He got a "pimply rash" that the doctor said isn't that unusual for a young guy full of testosterone. Patient #3. DE. David is chronic. He had the shot twice with no results. He is the only complete failure, which breaks my heart. Patient #4 ET. Eric took the shot several months ago and didn't get complete remission, although he did get some relief. He scheduled a second shot, which the doctor DOESN'T charge for. By the time he got his second shot, he had become completely pain free, but went ahead and got his second shot. He is still completely pain free. No side effects that I know of. Patient #5. VR. Vale is episodic. She got the shot a few months ago. She is in her longest remission in her 13 years of ECH. No side effects reported. Patient #6. VA. Virginia got the shot a few months ago, and like Eric, didn't get immediate results. She got a second shot at no charge and is now 100% pain free. She is enjoying Prosecco for the first time in years, as alcohol is a sure trigger for her. Sorry I don't have exact dates, which I would really like to have. I'm posting this because I am completely pain free and want others to give this shot a try, if they find they are out of options. The shot costs $300 and is not covered by insurance. Dr Mike was convicted of money crimes and is x con. That concerns me less than a pimple on my ass. I will defend him, as he has helped me and the others in a huge way." Dallas Denny
  4. Dallas Denny


    Good to hear you're on the mend Brian! DD
  5. Dallas Denny

    2019 Conference how is/was it?

    Home safe!! Another phenomenal conference, we are so blessed by Bob, Eileen and and the many volunteers who tireless efforts give our tribe the opportunity to gather like this every year!! It was so very cool to meet sooo many 1st timers who are relatively new comers in this community!. Its amazing how much this thing has grown since my first in Portland 2009! The agenda has become so full of speakers that we need 1 more conference day so it's not quite as busy and we have more time to socialize! I'll post later about the highlights but for now I'm about to go lay on the bed and inspect the back of my eyelids for a couple hours!! DD
  6. Dallas Denny

    2019 Conference how is/was it?

    Quick update before I pass out!! Great turnout with many new faces!! Had an awesome time at the Presidents reception! I spoke to one of the clusterbusters board of directors (and official conference photographer) this evening and she will submit all of her photos to our Website person so she can make them available to the forum!! And, the film crew isn't coming til tomorrow so they'll actually be filming one of the grow demos that will be included in an upcoming clusterbusters documentary!! Tim made it already and 2 other folks gave up on getting out of the airport, took an uber to greyhound and are on a bus headed this way! And had the pleasure of meeting Freud and FunTimes......but theres severals that I haven't met yet although I know they're here! Looks like we'll easily top 200 attendees....don't think it will break the record but it's a long way from the 40ish bunch of us in 2010!! G'nite ya'll
  7. Dallas Denny

    2019 Conference how is/was it?

    @dmlonghorn @Brain on fire Tim Flanagan is having issues getting out of Houston bound for big D on Greyhound as well.......a couple others have reported rain delays but are enroute......Freud missed his flight but will be here this evening! Hugged lots of old friends and made some new ones already....lots of first timers which is way cool!!! Just saw Batch when he arrived and got to visit with doc B for a spell Eileen and Andrew were able to get the pdf doc of the grow demos downloaded from my phone and clusterbusters is going to host it so it will be available via a link after the conference.....and.....BobW informed me yesterday that a film crew is coming today to film a run thru of tomorrow's grow demo sessions!! I wish to hell they'd hurry up cuz it's damn sure 5 o'clock somewhere and I'm gettin fairly damned thirsty! Great venue for a conference thus far and Presidents reception coming up shortly!! Since I'm severely technically challenged and have real issues with uploading pics here, I'm going to see if I can get a couple folks to send me their photos to put up on dropbox and will post the link! Later ya'll
  8. G'mornin ya'll! About to start loading up the car and get on the road....expect to get to Grapevine by mid morning!! I went to a 3 day music festival with all Texas bands (ZZ Top was the headliner!) In Grapevine during the summer of '71 but that's another story entirely.....the parts of I can remember anyway...lmao!! Already several folks there and quite a few more getting in this morning!! Safe travels to all and see ya'll soon!!!! DD
  9. G'mornin Ken Just spoke to our conference chairwoman to verify that you can check out an O2 cylinder to take to your room at the Hilton...needs to be returned by Sunday afternoon. DD
  10. Dallas Denny

    Quick update

    Hot damn Brian!! That is some OUTSTANDING FECKING NEWS dude!! When do you arrive in Big D? I'm leaving okieland early Weds morning for my 88 mile journey to Grapevine....all but the first 5 miles of gravel county road is major freeway and tollway driving and I don't even have to go thru the Metromess to get there!! Wooo Hoooo! Almost (but not quite) makes me feel guilty for saying that...lol.....I have two longtime clusterhead friends coming.....Lady A left Scotland for Germany this morning to hook up with Hans and fly on to Dallas.....she's already in the air and they won't get to Big D til early tomorrow!! Yeah, maybe I do feel a little guity!! Stopping along the way to pick up a case of Colorado Koolaid longnecks to go with that pizza!! Safe travels my friend and see ya soon!! DD
  11. Dallas Denny


    G'mornin Clovis! The regulator you have is insufficient for most clusterheads!! When I tried O2 for the 1st time it was with an 8 lpm reg and it wasn't effective! Most of us need a minimum of 15 lpm and many folks use 25 lpm regs. DD
  12. Dallas Denny

    Energy drinks

    Hey 8! I know several chronics that are having very good results with ketamine nasal spray. From my experiences with the VA that would probably be a hard sell with any of their docs though! When I still relied on the VA for medical treatment they let me have 9 imitrex dose packs per month....are they only giving you the imitrex pills? DD
  13. Hey Ken! Just bring your mask and E tank regulator.....clusterbusters will have O2 cylinders available to check out and take to your room! DD
  14. Clusterbusters will have O2 available Ken! I'll be looking forward to meeting you! This will be my 5th! It's an experience you'll never forget!! Dallas Denny
  15. Dallas Denny

    New to the group and suffering

    Welcome to the community Willy!! Sorry you had the need to join us! Good to see that you have O2!! I'd suggest that you clue your doc in on the sumatriptin (imitrex).......for the vast majority of clusterheads the pills just don't work fast enough.....the imitrex nasal sprays work a bit better, but if you have to resort to the use of trex, the best option by far is injections. The best thing you can do in my opinion is read up on the anti inflammatory vitamin D3 regimen in our files section......you can start on it immediately once you have acquired all of the co factors but you will need to have some bloodwork done to establish your baseline levels.......we've watched this regimen work in folks life with ch for closing in on 10 years.....works well for about 75 to 80% of folks to either reduce the frequency and intensity of their hits or become painfree!! The originator of the regimen, Batch, is active on the forum so ask any questions you might have and someone will have an answer! The last option is busting and you'll also find extensive info on that in the clusterbusters files or the share your busting stories section of the forum. Dallas Denny
  16. Woo Hoo!! Sittin on ready and rockin on go BOF!!! Looking forward to seeing old friends again and making many new ones!! Looks like there's gonna be a lot of 1st timers!! As she stated above, if not this year then start making plans to make it happen next year.....the experience of a lifetime for a clusterhead and something you'll never forget!! DD
  17. I'm honored to have the opportunity to share my knowledge and experience during 2 "grow demos" as part of this years conference agenda! I've been working on a PDF file documenting all of the Teks and processes that I'll be presenting for several months now and will be putting the finishing touches on it this next week! I've done it all on my Samsung Note and am too technically challenged to figure out how to transfer it to my laptop in PDF format....but our conference chairwoman has assured me that she'll "git r done" for me when I get to Dallas the day before the conference begins. All that to say this.....if you're planning to attend the conference and want to get the PDF, be sure to bring a thumb drive with you......the doc contains a lot of pics and is extremely large so I feel like that will be the easiest, fastest way to distribute it! See ya'll soon!! Dallas Denny
  18. Dallas Denny

    Conference Cultivation Workshops

    @Freud Yup, will touch on important points of PF Tek, coir/verm substrate Tek, substrate pasteurization process, dub tub Tek using BRF cakes spawned to coir substrate, growing LC in karo/water via MS inoculation, and drying and storage procedures without using a dehydrator......a lot to try and cover in an hour and a half so I'll probably have to do a separate question and answer session sometime on Saturday if it can be worked in.....I'll be getting to Dallas mid morning on Weds so I can get everything prepped and set up
  19. @BKP Exactly why I never use the term "headache" outside the confines of these online support forums or in the company of another clusterhead! I have a neurological disorder called Trigeminal autonomic cephalalgia which causes extremely painful head and facial pain. And, I also use the brain freeze analogy when describing the pain to a non clusterhead! DD
  20. Dallas Denny

    Open letter to major chemical companies (BOL-148)

    Yes, unfortunately I did Jerry! TBH, my take from the whole deal was it was more about "bruised egos" than anything else! Having met him, I was really quite fond of John and have the utmost respect for doc Sewell so I didn't take sides but was incredibly sorry to see dedicated cluster advocates at such odds with one another! Dallas Denny
  21. @BKP I just recieved a T shirt that I ordered from Amazon for the conference next month....sez "Yeah, sex is cool but have you ever felt the Beast leaving after a bad attack?" DD
  22. Dallas Denny

    Open letter to major chemical companies (BOL-148)

    G'mornin Jack! Thank you so much for your interest and desire to be of assistance to the clusterhead community! Glad to see that you're in contact with our fearless leader and my personal hero! I had the pleasure of meeting and visiting with Doc Halpern at our annual patient conference in Portland in 2010! The thing that struck me most during those conversations was his compassion and desire to help all cluster headache patients....but he said he was driven most by the thought of sufferers in developing countries who had limited access to health care and medicine, no access to the internet.....folks who were destined to live their lives in agony with no chance of relief! As a man in his late 30's and early 40's, I lived that life for 7 years....reduced to rolling around on the floor at times, crying like a baby, begging my wife to blow my head off, enduring the exquisite pain that is clusters for an hour or more with each attack, and experiencing 4 or 5 individual attacks in a 24 hour time period!! Not a pretty picture and I'm so grateful that I found clusterbusters and alt meds......clusters now are more like an annoying inconvenience for me....and, because I have this affliction, I've been blessed to meet and become friends with some of the kindest, most compassionate and caring folks on this planet!! As to the efficacy of the CGRP meds like Emgality and Aimovig.....Eli Lilly has been a conference sponsor for several years so we've had a front row seat throughout the development and trials of Emgality......from what I've observed thus far in the online clusterhead support communities it is much like most other pharma meds for ch....works extremely well for some and poorly or not at all for others......but, it's progress and we'll take all of that we can get! Onward!! Dallas Denny
  23. Dallas Denny

    Is cycle coming to an end?

    Welcome to the community sammers! If you're in the US getting O2 and getting insurance to pay for it can be a real PITA! I'm on Medicare and they won't cover it for clusters....so, I bought a large cylinder of welding oxygen, a welding oxygen regulator, and the Clustero2kit mask and set up my own rig....cost me about $375 and refills/exchange runs $23. O2 is a clusterheads best friend! Rules and regulations vary in other parts of the world.....very easy in some and hard in others! Dallas Denny
  24. Dallas Denny

    Open letter to major chemical companies (BOL-148)

    G'mornin Jack and welcome to our community! My, my...you did resurrect an old thread....it was started just a few months after our 4th annual patient conference in Portland in 2010...Bol-148 was the major topic and we were all very excited!! Funding never came thru however and the compound is rarely discussed anymore! I will message our founder and President, Mr Bob Wold and make him aware of your comment....curious as to the reason that CH has become personal to you? Dallas Denny