Dallas Denny

Medicare actually reversed this ruling in just the past couple of weeks and will be covering O2 for clusters now! Remains to be seen as to when the change will actually go into effect.....since I've already paid for my tank and refills are so cheap I'll probably continue to huff my weld ox but this is huge for the clusterhead community! DD

Understand your sentiment @Brad! Finding this place 12 years ago in Oct definitely changed (if not saved) my life!! It's been one helluva ride! Dallas Denny

@Archimedes My hits are 95% nocturnal and I'm a classic 90 min after going to sleep clusterhead.....after the 4th hit I usually say f this and just stay up so sleep deprivation is part of the game ....I've had clusters for 37 years and I avoid daytime naps like the plague when I'm in cycle cuz it's always a trigger!! However, I sometimes get so tired that I'll resign myself to a couple of daytime hits just so I can get 3 hours sleep. Dallas Denny

Actually, just the opposite for me....I was already in a cycle when I got my Pfizer jabs but got 4 glorious days of reprieve after getting the 2nd....but the Beast returned to his wicked ways after the short intermission Dallas Denny

@MaxHead Loved Ashville!! I was stationed at Cherry Point for a year in 65/66 before deployment to Nam....met a chick from Ashville on a weekend trip to Myrtle Beach.....hitched my way to see her several times!! Dallas Denny

@mit12, I've had both jabs of the Pfizer vaccine.....I've been in a cycle since shortly after Christmas.....actually got a 4 day break after my 2nd shot!! DD

@trjonasI know several clusterheads in NC and Virginia but can't think of anyone from SC Dallas Denny

@amardeep, We had a young man from India who attended the clusterbusters conference in Austin, Texas a few years back....although he's a member here, he's not very active. I know I've seen your name in the Facebook group and he is a member there as well. I'll send him a message and ask him to either check in here or reach out to you on Facebook if he can help guide you.. Dallas Denny

Welcome to the community @ERICA! Looks like you've had some good suggestions but I'll reiterate Ch father's advice on Oxygen and the vitamin D3 regimen! Dallas Denny

Happy Anniversary @xBoss!

This study is being conducted by Dr Emmanuelle Schindler who has been a speaker at several clusterbusters conferences and who also is conducting the psilocybin for cluster headaches trials! https://newatlas.com/health-wellbeing/psilocybin-migraine-psychedelic-clinical-trial-promising-results/

@Patheticfern I can't recall any members on the forum from UT, however, I met a fellow at the 2019 clusterbusters conference who lives in SLC so sent a message to him on Facebook messenger for doc recommendations this evening. Dallas Denny

Just read an announcement on the clusterbusters Facebook page for this conference to be held in Milan,Italy in May of 2022!! DD

I'm glad you've found something that helps you @Kenny scott, but I am in total disagreement with your view of the efficacy of cannabis in the treatment of clusters!! I know entirely too many clusterheads for who cannabis is a trigger, and I know many more like myself who aren't triggered by its use but who find zero help from it either. Dallas Denny

@xxx, can you help here Pete!! DD

@Geisha The old timers told me I got here to continue dosing every 5 days until I was completely painfree....that's the protocol I've always adhered to when in a cycle. Dallas Denny

@ClusterHeadTim What area are you located in? I have several longtime michigander clusterhead friends who might be close and able to guide you if you're looking for a "med ox" supplier. As CHf mentioned though, in my experience, you'll find it much easier (and probably cheaper as well) to source your own weld ox rig.....My large M sized equivalent tank cost me $300 and refills are $23......my weld ox regulator came from harbor freight and at the time (10+ years ago) ran about $50.....the one they stock now is in the $80 range which is still much cheaper than a welding supplier will chg. I've been using it for over 13 years and I personally know folks that were using it several years before that....never suffered any ill effects and it damned sure beats the hell out of having to deal with docs and suppliers! You just can't let them know that you intend to breathe it! Dallas Denny

@Rose W I was able to chat with Colette....please check your inbox for a PM from me! Dallas Denny

@Rose W So sorry to read this! I'm going to copy your post and forward it to the t shirt lady so please don't donate them as I feel sure she'll make it right if its her error Dallas Denny

Just received a message from the t shirt lady.....total of 49 shirts ordered.....$539 raised to be donated to clusterbusters!! DD

The board will be down for a few hours this coming Monday, November 2nd for a scheduled update. Dallas Denny

Recieved mine yesterday and am very impressed as well! She's supposed to give me the final tally on the money that was raised for clusterbusters tomorrow. Dd

The t shirt lady posted this update today.... "Wanted to give everyone a quick update - so far we have sold 36 shirts! That is $396 to cluster headache research!!! Our store will remain open until 10/9/2020 if you would like to purchase and help out this great cause. Remember a minimum of $11 per shirt sold gets donated to cluster headache research through clusterbusters" DD

@Rose W I just messaged the t shirt lady with your questions....she said they are relaxed fit and very true to size Dallas Denny