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Found 13 results

  1. Hi, I'm new to this forum. I have struggled with chronic migraines for 5 years, I have Botox every 12 weeks for them. I was recently diagnosed with cluster headaches and prescribed Verapamil and O2 therapy. I've been reading a lot on this page and am interested in busting. But, where do I start? How do you deal with the pain? I get so agitated and snappy during one, I feel like everything is moving. It's like I want to crawl out of my skin and find a new shell lol. I just feel very lost.
  2. Cluster headaches my natural remedies: lachnanthes tinctoria D6 3x5 Calcium phosphororicum D12 MSM 2x /Day minimum (in phase up to 20 spoons or capsules) Black cumin oil (takes out the inflammation) Carnosin (2-4) Nato (Makes blood thinner) Cortison homeopatic (worth a try) Q10 Wobenzym (German name of it) Psilocybin - Magic mushrooms) 1.5 - 3.5 and 4 Grams. Note: Not legal, but who the Fxxk cares. Oxygen 15L/Min - Helps short time for me Water fasting - I haven't tried but will My Triggers: Glycerin Cigarettes Beer Whine Others I am not aware of yet Cycle
  3. Hi all, episodic cluster sufferer here. I have had cluster headaches on the left-side of my head for about 9 years now. I have tried everything from triptan medication to prescription medical oxygen. The only thing that has really worked to abort the attacks is the oxygen, and that is only convenient when it is available and works completely. Recently, I have been doing a bit of research and experimentation regarding the trigeminal nerve and intranasal application of capsaicin (hot pepper extract). I have had great success with this, and my cluster headaches have been less frequent, as we
  4. Hi All, In the past few weeks, I've been doing a lot of renovations, and the fall is here, and I've started getting cluster headaches again. But this time I only had one full-on blown headache, and it was a 1 on the 1-10 scale of cluster headaches. I've had shadows 10 or 15 times, but I wouldn't call them full blown headaches. The frequency and intensity of the shadows has been decreasing, and they're almost gone after 2 weeks. So I'd like to share how I've come to basically eliminate cluster headaches from my life. I'm quite confident that knots in the neck are th
  5. I have been suffering from CH off and on for the past 7 years. I am currently in a phase where I get hit every single night between 7-9 pm, and again at some point during the night(typically around 3 am). They have gotten progressively worse, to the point where I’ll have a slight headache probably 85% of the day. I just started the D3 regimen today, but am looking for anything at this point. I’m becoming desperate, as I have felt my entire mood change throughout the day. I struggle to enjoy time with my kids and wife, because the only thing I think about is when my next CH will hit. Luckily I
  6. Hi everyone, I'm new to this site, and I'm wondering if many or any cluster headache suffers have also been told or been exposed to Lyme's disease? My husband had cluster ha's before getting Lyme's, but where in the past he would have the clusters, then they would stop for a time, he now has residual pain that never leaves. He struggles with sleep every night, cannot look at a computer screen or television, or bright lights. He no longer drives at night. He just started the D3 infusion yesterday, so we are holding out for relief from that. I am wondering if there is a Lyme's component the
  7. I am curious as anyone experiences shadows on the opposite side of their head from the side they get attacks on? I seem to experience shadows on the left side of my head and behind my eye during my cycle more than on the right side in which my attacks occur. Is this normal or something others experience?
  8. Hi my name is Brian and I am new here and have a quick question! I am 28 I have been having cluster headaches since my early 20s and as you all know the pain is unreal. My question though is about the nature of my cycles as I seem to have 2-4 cycles a year lasting only from a single day or two up to 10 days (longest it’s ever been). Is this abnormal as everything I read about cluster headaches suggests cycles are much longer than just a few days, I have all the normal symptoms of the headaches, the triggers associated with the headaches as well but my cycles don’t seem to fall at the exact sam
  9. Hello fellow Clusterheads! This community has been super helpful in helping me to discover ways to better manage my chronic cluster headaches. Thank you! I've been in a great place with my cluster headaches now for a little over a month- which is huge for me. But, I am noticing I am starting to get more frequent migraines. I do have both, but I really haven't had migraines in years. Has anyone else noticed that a period of decreased/diminished clusters can increase migraine?
  10. Has anyone ever tried antibiotics to treat cluster headaches? So, I thought I had sinus infections when I first started getting CH about 10 years ago. I wasn't diagnosed. I was in my 20's and I think my stepfather would get sinus infections so I came to the conclusion I had them too. I have none of the symptoms of sinus infections however, aside from the splitting headache. I also get migraines so I would confuse my CH for migraines, but the CH lasts for days, even about a week or longer. So I was going to a doctor about 1 every 2 months for these "weird headaches" other than my
  11. Finally! I have found way out! The medicine which helped! No more Cluster pain! I overcame the season which lasted for one year just in three pains! Sounds like a miracle but it is true. The cluster pains started in 2000. You know how it is. I have tried everything! The course of Prednisolone has damaged my health. Here in Post Soviet country lithium is also popular, I tried this too. Lithium just ruined my health, it limited my movements, I was handicapped and needed crutches, but the pain did not go away. Of course everyone knows the course of Verapamile, which I don’t even know why was inve
  12. Hello, been a while since I had Cluster attacks, was 2014 . I remember joining a group back then, but soon the attacks stopped, all seemed well, just a fluke, so I have been quite content. Even so, last week, these things came back. Landed at the EMC room twice, before I could get to see the Neurologist, As I did not keep appointments all this time, so now had to be a new patient, ouch! Lesson learned. I had some old sumatritan hanging around in the cabinet, but finally ran that out quickly, 4 pills two days, 100 mg. EMC gave me a 25 mg script, would not give me the 100, the ol bad for th
  13. Greetings fellow clusterheads. Very grateful for websites and forums like these. Around the age of 12 I started getting the most brutal headaches I had ever endured. At the time we had no idea what they were. As most of you went through as well, I had all the tests, scans, sinus meds, the works. Eventually, on my own after the age of 18, I figured out what they were, and discovered that there was no cure lol. What a kick in the balls that was. Anyway, I'm now 35, in the middle of a cycle, after going 4 years since my last one. The older I get and the more I progress career-wise, t
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