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Found 4 results

  1. This is my first time with CH diagnosis and I have been in cycle since July 4 (I may have carried this for years, thinking it was sinus headache - but this year has been almost unbearable). Can you experienced folks help me understand what you experience when you come to the end of a cycle? Does the cycle end come suddenly? Are there subtle changes? Can you normally sense when things are winding down? By the way, THANK YOU for all the great information and experience. I am finding some pain relief through this forum, as well as emotional strength through our shared pain!
  2. Hi All, In the past few weeks, I've been doing a lot of renovations, and the fall is here, and I've started getting cluster headaches again. But this time I only had one full-on blown headache, and it was a 1 on the 1-10 scale of cluster headaches. I've had shadows 10 or 15 times, but I wouldn't call them full blown headaches. The frequency and intensity of the shadows has been decreasing, and they're almost gone after 2 weeks. So I'd like to share how I've come to basically eliminate cluster headaches from my life. I'm quite confident that knots in the neck are th
  3. Hey guys, this is my first post here and I just wanted to say hello. I started a new cycle on September 4th. This is my fourth time through it. First one started in 2009 When I was 21. I Was diagnosed with CH maybe 4 years ago by my GP who recognized it right away. They come every other day, always at night although each cycle is a little different. Earliest was on Thursday it came at 7 pm. Those are not as bad as the sleeping ones. Last night was the worst. It started around 3, but I feel back sleep, woke up at 5:30 and it felt like my brain was bleeding. They have always been about 45 minute
  4. Greetings fellow clusterheads. Very grateful for websites and forums like these. Around the age of 12 I started getting the most brutal headaches I had ever endured. At the time we had no idea what they were. As most of you went through as well, I had all the tests, scans, sinus meds, the works. Eventually, on my own after the age of 18, I figured out what they were, and discovered that there was no cure lol. What a kick in the balls that was. Anyway, I'm now 35, in the middle of a cycle, after going 4 years since my last one. The older I get and the more I progress career-wise, t
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