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A Way Out

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  1. Speaking from a scientific standpoint, it seems early to say that CH is caused by the hypothalamus, though it's clear the hypothalamus is involved in some fashion. From a treatment standpoint, I'm exceedingly confident that treating trigger points in the neck and shoulders is an effective remedy for CH, in some cases. And I'd give pretty good odds that it's an effective remedy in most, even all. Unfortunately, there's a dearth of research in this area, despite excellent preliminary findings. On the other hand. It's a treatment that's available for most sufferers. Find the trig
  2. No, it appears that there was no further research. The NIH should be funding this kind of study, because the preliminary evidence suggests trigger points are a major factor and treatment of trigger points is very effective. But it appears they're not, or the researchers lost interest. Most of the large studies are funded by pharma/device manufacturer cash, for obvious reasons. Even then, treatment for something that effects a small number of people, like CH, is difficult to fund. The best bet is through foundations like Cluster Busters. https://www.frontiersin.org/articles/1
  3. Hi All, In the past few weeks, I've been doing a lot of renovations, and the fall is here, and I've started getting cluster headaches again. But this time I only had one full-on blown headache, and it was a 1 on the 1-10 scale of cluster headaches. I've had shadows 10 or 15 times, but I wouldn't call them full blown headaches. The frequency and intensity of the shadows has been decreasing, and they're almost gone after 2 weeks. So I'd like to share how I've come to basically eliminate cluster headaches from my life. I'm quite confident that knots in the neck are th
  4. I'm quite confident that knots in the neck are the primary cause of the cluster headache. I use a trigger point cane massager to relive the knots, and this has prevented cluster headache for a couple years. If you're just starting a cycle, it can provoke shadow-type cluster headaches, but rarely full-blown. It is not an effective treatment IN THE MIDST of a cluster headache, but it doesn't do any harm and the pain couldn't be much worse, anyway. I discovered this relationship after 20 years of cluster headaches, with a cycle every 2 or 3 years. Many people experience knots in the neck dur
  5. I really think the secret to cluster headaches is dealing with what I believe is the underlying cause -- severe muscular tension in the neck. I'm confident that massage, moderate upper body exercise with rowing machines, and constant work on relaxing the shoulders and neck will likely stop the cluster headaches.
  6. Hey all, This is my second post. I've had cluster headaches for about 20 years, but they usually only come at times of high stress. I currently think that the headaches are caused by extreme muscular tension in the neck, and I'd like to know whether or not other sufferers have similar tension? Do you have a knot in the muscles of your neck, hard as a rock, on the side that you get the cluster headaches? It might be so tense that you can't tell the difference between the muscle and bone, and even if you press on it, it doesn't really hurt. Please answer if you do, or if you don't,
  7. Fascinating -- this definitely seems related to my muscular tension hypothesis. Do you have an incredibly tense muscular knot in your neck, half-way between the shoulder and skull, on the side that you get the cluster headaches?
  8. No, I haven't been formally diagnosed. I'm quite confident, though, that they're cluster headaches. It's always on one side, it feels like someone is jabbing a spike repeatedly into one eye and temple, with that nostril getting both clogged up and a bit runny and that eye turning bright red and watering. When they come, they almost always come at the same time of day for a period of weeks. I always thought they were migraines until I looked up the symptoms I was having and was pointed directly to cluster headaches. The fabulous demon image on Wikipedia perfectly represents my experience. I
  9. Hi All, this is my first post, but I've spent a lot of time on the site reading posts. It's a great community, thanks so much! So here's my hypothesis: I'm convinced that cluster headaches are caused by extreme muscular tension in the neck. If you eliminate the muscular tension, you eliminate the cluster headaches. Here's how we can start to test this hypothesis: I would love if each person who reads this checks themselves. My bet is that every one of you has a knotted muscle in the neck that's so tense it feels like a bone. And it's especially bad on the side where you get the headaches.
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