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Found 8 results

  1. Hi everyone, My name is Lou and I come from Belgium. An amazing person named Tony told me about this forum and also told me that I might be able to find help here. I will try to be as clear as possible to explain my problem because English is not my mother tongue, excuse me in advance. Dr. Bayard Horton has discovered two diseases that are both called "Horton's Disease". One of them is the Horton's Syndrome (Cluster Headache) and the other one is the Horton's Disease (GCA involving arteries). Apparently, the second is rare and less common than the first one. After serious exams,
  2. My Name is Michael, I would like to a acknowledge everyone who is suffering with the beast, I pray that my Son or anyone else out there will not go through the HELL I went through. I'll tell you my story, it's going to be about a pity party like no other. However, at the end I did find my cure and I hope you find yours. I was 22 when I was hit with headaches that didn't want to leave. Thank God, I had great insurance. I saw several ENT's - Ear, Nose and Throat Specialists, a Couple of Neurosurgeons, a couple of Chiropractors, an acupuncturist, some gentleman who put a hot iron o
  3. Hi all, episodic cluster sufferer here. I have had cluster headaches on the left-side of my head for about 9 years now. I have tried everything from triptan medication to prescription medical oxygen. The only thing that has really worked to abort the attacks is the oxygen, and that is only convenient when it is available and works completely. Recently, I have been doing a bit of research and experimentation regarding the trigeminal nerve and intranasal application of capsaicin (hot pepper extract). I have had great success with this, and my cluster headaches have been less frequent, as we
  4. Hi All, In the past few weeks, I've been doing a lot of renovations, and the fall is here, and I've started getting cluster headaches again. But this time I only had one full-on blown headache, and it was a 1 on the 1-10 scale of cluster headaches. I've had shadows 10 or 15 times, but I wouldn't call them full blown headaches. The frequency and intensity of the shadows has been decreasing, and they're almost gone after 2 weeks. So I'd like to share how I've come to basically eliminate cluster headaches from my life. I'm quite confident that knots in the neck are th
  5. I am curious as anyone experiences shadows on the opposite side of their head from the side they get attacks on? I seem to experience shadows on the left side of my head and behind my eye during my cycle more than on the right side in which my attacks occur. Is this normal or something others experience?
  6. Hi my name is Brian and I am new here and have a quick question! I am 28 I have been having cluster headaches since my early 20s and as you all know the pain is unreal. My question though is about the nature of my cycles as I seem to have 2-4 cycles a year lasting only from a single day or two up to 10 days (longest it’s ever been). Is this abnormal as everything I read about cluster headaches suggests cycles are much longer than just a few days, I have all the normal symptoms of the headaches, the triggers associated with the headaches as well but my cycles don’t seem to fall at the exact sam
  7. Greetings fellow clusterheads. Very grateful for websites and forums like these. Around the age of 12 I started getting the most brutal headaches I had ever endured. At the time we had no idea what they were. As most of you went through as well, I had all the tests, scans, sinus meds, the works. Eventually, on my own after the age of 18, I figured out what they were, and discovered that there was no cure lol. What a kick in the balls that was. Anyway, I'm now 35, in the middle of a cycle, after going 4 years since my last one. The older I get and the more I progress career-wise, t
  8. Hey. I haven't posted much recently, but am still around. Guess my beast has gone on a bit of a holiday, and isn't troubling me much. Or it's been scared away by the nearly daily headaches and migraines. Actually, they are worse than that, getting 2-3 a day many days. Sometimes my head seems determined to not let me have a break. But hanging in there. Cannabis in the evenings is helping me sleep, which reduces the migraines so that most mornings, I only wake up with a headache and not a thumping migraine. I've even had entire days that were pain free, or nearly so. Am trying to c
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