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Does anyone have a strong support group for Cluster Headaches? I've been trying to see if people are willing to start some type of support group. Maybe via zoom, or Skype call. I know that people that suffer from cluster headaches fall into isolation and it's hard to find other C/H patients. I would like to try and start a weekly zoom call if enough people are willing and discuss things like. Treatments Dealing with pain Depression Anxiety Loss of job Disability Dealing with family and friends Anything related to Cluster Headach
Hi all, episodic cluster sufferer here. I have had cluster headaches on the left-side of my head for about 9 years now. I have tried everything from triptan medication to prescription medical oxygen. The only thing that has really worked to abort the attacks is the oxygen, and that is only convenient when it is available and works completely. Recently, I have been doing a bit of research and experimentation regarding the trigeminal nerve and intranasal application of capsaicin (hot pepper extract). I have had great success with this, and my cluster headaches have been less frequent, as we
Hello fellow Clusterheads! This community has been super helpful in helping me to discover ways to better manage my chronic cluster headaches. Thank you! I've been in a great place with my cluster headaches now for a little over a month- which is huge for me. But, I am noticing I am starting to get more frequent migraines. I do have both, but I really haven't had migraines in years. Has anyone else noticed that a period of decreased/diminished clusters can increase migraine?
Hey all. I have been an episodic CH for 15 years. I am 34 years old As an integrative/alternative doctor, I have tried almost everything to treat this. Yes including all the psychedelics The past year I have found an amazing combo that hasn't cured me but certainly made it possible to have a wonderful normal life between attacks. I have learned what foods my gut is intolerant to and stay away 90% of the time (gluten, diary, almonds, bananas, caffeine etc), I have acupuncture from an excellent acupuncturist at least once a week, I live a clean life with as few toxins as possible (free range