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Found 4 results

  1. hey everyone, thanks for accepting me into this group i have been misdiagnosed with migraines for years. The past 4 years i have been experiencing what i now know is episodic cluster headaches. it starts off with one attack a day and shortly escalates to 8+ attacks a day. I am on day 14 and going to the emergency department today to beg to see a neuro, get scans done and try the oxygen. I have had scans when i was 15 (25 now) and nothing was found. i have a referral to see a neuro but cant afford it/the wait times are too long for me. i have trialed numerous preventatives, currently trial
  2. Hello Clusterbusters! Comforted/distraught to be among you. Here is a brief history of my life with clusters so far, leading up to my diagnosis and including the treatment I am currently undergoing. Perhaps it will provide some succor to other suffers, as many of your stories have for me. I would also appreciate any advice regarding my current and future hopes for coping and treatment. I was recently diagnosed with CH, but have been suffering from attacks for at least four years. (For demographic interest, I'm a 42-year-old white male.) The first CH cycle was the worst, both because the
  3. Greetings fellow clusterheads. Very grateful for websites and forums like these. Around the age of 12 I started getting the most brutal headaches I had ever endured. At the time we had no idea what they were. As most of you went through as well, I had all the tests, scans, sinus meds, the works. Eventually, on my own after the age of 18, I figured out what they were, and discovered that there was no cure lol. What a kick in the balls that was. Anyway, I'm now 35, in the middle of a cycle, after going 4 years since my last one. The older I get and the more I progress career-wise, t
  4. Hey all. I have been an episodic CH for 15 years. I am 34 years old As an integrative/alternative doctor, I have tried almost everything to treat this. Yes including all the psychedelics The past year I have found an amazing combo that hasn't cured me but certainly made it possible to have a wonderful normal life between attacks. I have learned what foods my gut is intolerant to and stay away 90% of the time (gluten, diary, almonds, bananas, caffeine etc), I have acupuncture from an excellent acupuncturist at least once a week, I live a clean life with as few toxins as possible (free range
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