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Found 6 results

  1. hey everyone, thanks for accepting me into this group i have been misdiagnosed with migraines for years. The past 4 years i have been experiencing what i now know is episodic cluster headaches. it starts off with one attack a day and shortly escalates to 8+ attacks a day. I am on day 14 and going to the emergency department today to beg to see a neuro, get scans done and try the oxygen. I have had scans when i was 15 (25 now) and nothing was found. i have a referral to see a neuro but cant afford it/the wait times are too long for me. i have trialed numerous preventatives, currently trial
  2. I’ve had cluster headaches for over 30 years. I finally greatly reduced my headaches by going to a chiropractor to move a disc back into place that subluxates at C1/C2, which was great since I only had attacks a few times a month instead of 2-3 per day. Now, I’m suddenly getting more attacks. I’m off Sumatriptan cause it doesn’t work now, I’m using Rizatriptan but am not finding it effective and fear that I’m bringing on more headaches. I’m on Verapamil daily but it’s not working. No, oxygen doesn’t work for me. I’d be grateful for any other suggestions, this is getting rough.
  3. After 6 months of suffering from CH once, maybe twice every 2 weeks I was diagnosed with Cluster Headaches. The pain was so severe it was like nothing I had ever experienced before. I was to and from the doctors so many times and left with strange suggestions as to what it could be. After one night when I had 9 attacks on the bounce I went to visit the doctor again, it was then he advised it was CH and I was prescribed 25mg of Topiramate on the proviso that it would help improve the severity and frequency of the attacks (this was about 6 weeks ago). I had an MRI scan and I am awaiting re
  4. Hi All Is anyone (UK) suffering unnecessarily due to difficulties with speed of service. Last cycle was April time. Usual Verapamil treatment failed to work so I survived on Sumitriptan. Managed to get phone appointment with doctor and eventually face to face appointment once additional doses of Verapamil failed to improve headaches. Doctor booked a Neuro appointment but cycle finished before this appointment (August) Saw neuro in August who sorted new treatment plan including oxygen - but couldn’t do anything about it until next cycle began. Shadows started yesterday so I was
  5. I'm pretty new to this migraine business, but since they started they're pretty frequent. Pain killers work, but they're short lived and do nothing to prevent the attack. Besides, i'm worried about what these medications do to my liver. I want to try and unconventional approach. I talked to some redditors and found out about this place. Someone mentioned microdosing shrooms would work. My biggest problem with my migraines is nausea. I can stand the pain, but nausea cripples me. I'm willing to try anything that works. So does anyone have experience/suggestions in what to give a try? Plus a guid
  6. Has the CH community ever thought about a pre-planned legal fight to defend someone that had been charged with possession of any of these MEDICATIONS ?? I was just wondering if the CH community and/or organizations have ever stepped in to help someone that took or had in their possession MM (Or another alternative med)? I read in a thread somewhere that a man was arrested, charged, and eventually plead guilty to a lesser felony charge which left him on probation for years and ended up costing him alot of money. He posted that he wished he would've fought it against it tooth and nail becau
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