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jules posted a topic in General BoardI’ve had cluster headaches for over 30 years. I finally greatly reduced my headaches by going to a chiropractor to move a disc back into place that subluxates at C1/C2, which was great since I only had attacks a few times a month instead of 2-3 per day. Now, I’m suddenly getting more attacks. I’m off Sumatriptan cause it doesn’t work now, I’m using Rizatriptan but am not finding it effective and fear that I’m bringing on more headaches. I’m on Verapamil daily but it’s not working. No, oxygen doesn’t work for me. I’d be grateful for any other suggestions, this is getting rough.
I only became a member on Clusterbusters for a couple of weeks, but I cannot tell you how important it has been to be a part of this community. Today I took my son to his first appointment with a neurologist specializing in headaches. Quiet, soft spoken and required a little probing from our end but we left with hope. I was so delighted that he actually recommended Clusterbusters as a resource for help. He shared all the options we had to us, wrote a script for O2 with no hesitation, imitrex, and spoke to us about busting with seeds and mushrooms too. He also spoke with great optimism about Aimovig which just got approved in Canada. He said he’s had cluster patients on it during trial with great success! There is hope!! I have to thank CHFather, Batch, and Clusterheadsurvivor for all their support and guidance. I don’t know what I would do without this forum and their support.