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Mum3115

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Mum3115 last won the day on August 24 2018

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About Mum3115

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  1. Mum3115

    Thanks

    Hope it’s over for you very soon!
  2. Mum3115

    Cycle ending signs?

    Hi everyone - my son's cycle looks like this: 1 hit per week for first 4 weeks, then dailies for 3 weeks, and now looks like 1 hit every 3 days. He's been on the D3 regimen for 3 weeks now (finished loading dose) so I am wondering if his cycle is actually ending? or is the D3 just reducing frequency? His hits are still pretty bad at a KIP 8. Anyone else have similar experiences? How do your cycles end? Thanks! Mom
  3. Mum3115

    Tylenol for Slapbacks?

    Thank you for the clarity CHFather!
  4. Mum3115

    Tylenol for Slapbacks?

    Can you take Tylenol or Advil for slapbacks? Busted with seeds last night - this morning one-sided headache, doesn't feel like a cluster. Is Tyelonol ok?
  5. Mum3115

    Vitamin D3 Regime Side Effects

    Just for the record - this was a one day occurrence and resolved. Most likely nothing to do with the regime in case anyone is wondering....:)
  6. Mum3115

    Neuro recommended Clusterbusters

    Thanks Racer - great information! I will let you know how it goes!
  7. Mum3115

    Imitrex Injections discontinued in Canada?

    Thanks CHfather and Pebblesthecorgi - as it turns out, bad information from the pharmacist (probably due to the trex shortages earlier in the year as per CHfather). We finally tracked some down! Thanks so much!
  8. Just left the pharmacy, where the pharmacist indicated that Imitrex injections are discontinued in Canada? Does anyone know if that's in fact true?
  9. Mum3115

    Neuro recommended Clusterbusters

    Thanks! I already bought him the clusterkit mask and we will arrange for the oxygen first thing in the morning. Hopefully they will set us up and teach us everything we need to know.
  10. Mum3115

    So helpful - thanks CHfather!

    You are 100% correct CHFather. I do indeed feel blessed in so many ways - that my son had a fast diagnosis and options for treatment. Then to have this community as a support - I feel blessed. So so blessed.
  11. Mum3115

    So helpful - thanks CHfather!

    How’s he doing? He’s on day 6 of the vitamin D loading dose and has had 2 kip 8 headaches. however we still think we need to give it time.
  12. I only became a member on Clusterbusters for a couple of weeks, but I cannot tell you how important it has been to be a part of this community. Today I took my son to his first appointment with a neurologist specializing in headaches. Quiet, soft spoken and required a little probing from our end but we left with hope. I was so delighted that he actually recommended Clusterbusters as a resource for help. He shared all the options we had to us, wrote a script for O2 with no hesitation, imitrex, and spoke to us about busting with seeds and mushrooms too. He also spoke with great optimism about Aimovig which just got approved in Canada. He said he’s had cluster patients on it during trial with great success! There is hope!! I have to thank CHFather, Batch, and Clusterheadsurvivor for all their support and guidance. I don’t know what I would do without this forum and their support.
  13. Such a great help and resource for newbies. Several PMs back and forth and I’ve gained a wealth of information on this brutal condition!
  14. Mum3115

    20 years and counting

    Reading your post has given me some hope. My son has just started. He’s 21. Did you CH just stop? What treatment worked best for you? Please help with any advice?
  15. Mum3115

    Vitamin D3 Regime Side Effects

    Yes, he's going to do that today. Should give us some answers. How is the D3 regime working for you?
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