CHfather

Just to follow up a bit more . . . If you have medical tanks (silver), the welding suppliers won't fill them with welding O2. But of course your medical oxygen supplier would. If you have welding tanks (green), and you don't tell them it's for medical use, the welding suppliers would be expected to fill them. If you tell them you want it for a medical use, as I've said they will turn you away. But maybe we're just not understanding your situation.

I'm not sure I am understanding this. Are you asking welding O2 suppliers for medical O2, or welding O2? It seems 100% impossible to me that welding O2 companies would only be supplying doctors -- that would leave a very huge hole in the economy.

Thank you, Busted'. That's helpful information to share. Would you mind saying (1) how long it typically takes to abort an attack; (2) whether you are also using it as a preventive, as the company recommends; and (3) how much you are paying per month (last I heard -- which was quite a while ago -- it was about $600/month)?

erin, probably your best bet for an overall view would be to type paroxysmal into the search bar at the top right of any page. There are no recent regular participants here who have a hemicrania (PH or HC), and I think it's safe to say that for those of us who are active, our knowledge is all second-hand. I assume you are using Indomethacin. my sense over many years of seeing people here with hemicranias is that busting doesn't help much unless it's a pretty constant thing, every five days or every week, which most people for good reason don't want to undertake. But you might get a different idea from what you find from a search. On the other hand, the vitamin d3 regimen has (as I understand it) been quite helpful. You can send a message from here to xxx, who is called "Batch," and he will probably let you know what he has learned about this treatment and PH (to send him a PM, click on the envelope icon (above the search bar) and put xxx in to "To" line).

It's a great story about a brave, brave man. It is remarkably true of people with CH that, as you say, they resist burdening anyone else with their struggles. It's also a sad story to me, because even then there were treatments that could have helped him, but it sounds like he got nothing from his doctors (another common theme for CH). Thank you for taking the time to write to us. I might be mistaken, but I think there has been at least one other person who experienced remission after cancer treatments.

Please remember to ask the dentist not to use anesthetic with epinephrine. If you do have CH, it will almost certainly trigger attacks.

Perhaps Batch @xxx will have suggestions.

I probably have said this before, but there's no harm in starting the vitamin d3-based anti-inflammatory protocol now. Since you're looking just to build up your level over time (to help prevent or mitigate a next cycle, if there is one), you don't have to do anything "drastic" like the loading process. D3 regimen - ClusterBuster Files - ClusterBusters

I think all of your doubts about the sinus headache diagnosis are justified. I agree with all that the others have said. Let us know what your CBCT shows. Sinus and teeth are such common misdiagnoses of CH. I looked at the Mayo Clinic page about sinus headache, and you don't seem to have had most of the symptoms. Under the heading "Treatment," this is the first thing it says: "Most people who assume they have sinus headaches actually have migraines or tension-type headaches." (https://www.mayoclinic.org/diseases-conditions/sinus-headaches/diagnosis-treatment/drc-20377584) They then go on to talk about treatment for migraine and tension headaches. The characteristics of yours, as we have said, suggest CH. If you DO wind up getting any kind of dental work done (which I think we all would advise against without a second opinion), be sure to tell the dentist not to use any anesthetic with epinephrine -- it's a wicked trigger for CH. I'm gathering that you are not having symptoms now? It's nice to know you can go back to this guy if you start getting them again, but I would also schedule an appointment, as the others suggest, with a neurologist from a headache center if that is feasible for you. Considerate as this doctor might have been, I do not trust him. You know pain. This was more painful for you than a burst appendix, and your restless reaction to the pain was typical CH reaction. In my opinion, you probably have CH. You are not a baby or a wuss. As Jeebs says, get things lined up now, just in case.

Of course, welding O2 is always an option, maybe even as a backup or supplemental system for what they give you (for example, so you go through the Es less quickly and maybe they stop hassling you about a concentrator, and meanwhile you're building that relationship with the delivery person or some executive at the company).

This might help you prepare for your neurologist appointment (and some sections might help you cope while you are waiting). https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ Do everything you can to get oxygen. Even though it is the #1 recommended abortive, many neurologists don't prescribe it (almost never for a good reason -- they just don't). And you probably should start the D3 regimen now (there's a link to it in the post I gave you in the first line up above).

A small new study shows reactions in the brain in people who were given psilocybin in a controlled setting. https://www.nytimes.com/2024/07/17/health/psilocybin-psychedelic-mushrooms-brain.html?unlocked_article_code=1.8E0.Lz64._rRTbzGppix-&smid=url-share

Great news, stella'! (In the US, Vydura is Nurtec.)

We hear about this from time to time. It seems like it's usually in Canada. Have you explored options with the pharmacy/doctor, such as sumatriptan in vials, with syringes, so you can do it yourself, or the lower-dose autoinjector, Zembrance, which has plenty for stopping a CH attack? Or a triptan nasal spray? Important info for when you get the Imitrex/Imigran: Extending imitrex - ClusterBuster Files - ClusterBusters Some people get Imitrex prescription filled when they are out of cycle to stockpile it. It lasts a long time.

I'm sorry that I can't answer your basic question about whether you can use psilocybin while on antidepressants. For the purpose here, there are two questions: (1) the one you asked, which is whether there will be side effects from taking both; and (2) whether taking antidepressants will interfere with the effectiveness of the mushrooms for treating your CH. I think the answer to (1) is no, but I am not certain. Here's one seemingly serious report that says that: https://psychable.com/mind-and-body/should-you-take-psychedelics-if-youre-on-anti-depressants But #(2) is just as important, and I do not know the answer to that. The old guidelines here only say weakly that one type of antidepressant, SSRIs, "may" interfere https://clusterbusters.org/forums/topic/687-6-playing-well-together/. BUT if you decided that you were not likely to have side effects, then you could try the shrooms (or LSD, or seeds) and see what happens. Because there are so many different kinds of antidepressants, it might be worthwhile for you to say the name of what you are taking, in case someone has specific experience with that medication and busting, or maybe with the category of medication and busting. I thought when you wrote in your first post "I have also tried D3 regime, also mushrooms,lsa,benadryl," you were saying that you had already tried mushrooms and seeds (the source of LSA) and they didn't work. This is not an "or" question. If you decide to try mushrooms, you can do both the D3 regimen and mushrooms. Lots of people do both. And yes, you should start the full D3 regimen as soon as possible. I think @BoscoPiko has a link to the latest information about that.