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CHfather last won the day on February 28

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About CHfather

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  1. CHfather


    Gail', Batch is very insistent that if the full D3 regimen is followed strictly, there are no calcium-related issues. I can see why you might not want to test that regimen again, but if you do, you can and should contact Batch directly for more information. (Open the "envelope" icon at the top of the page and type Batch in the "To" line.) This file discusses welding O2 in some detail: https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/
  2. Can't really learn much from the abstracts, but I don't have access to the full articles . . . so just FYI: https://www.docguide.com/deep-brain-stimulation-modulates-hypothalamic-brainstem-fibers-cluster-headache-case-report?tsid=5 https://www.docguide.com/neurosurgical-treatment-craniofacial-pain-syndromes-current-surgical-indications-and-techniques?tsid=5
  3. CHfather

    Gammacore Non Invasive Vagus Nerve Stimulator

    Frilling, did one or both of them try busting, as was discussed in response to your post last year?
  4. CHfather

    Benadryl to bust imitrex rebound

    Effective oxygen and the D3 regimen are your friends. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 If you do use trex again, consider splitting your doses: https://clusterbusters.org/forums/topic/2446-extending-imitrex/
  5. CHfather

    Pain / Symptom Tracking Apps

    Have you looked at this? Started by a fellow with CH, who persisted here for quite a while but didn't get much traction, and who still is persisting (I mean that positively -- God bless all those who persist in search of better treatment). He has a Facebook group, too. This tracks a lot of things, as I understand it, so maybe it's too much for what you're looking for.
  6. CHfather

    Is ch linked to dental work?

    What Freud says is basically correct -- as many people have learned the hard way, having work done on your teeth is very, very, very unlikely to help your CH. Serious tooth work (extractions, root canals) have indeed set off CH in a bad way for some people. Dealing with a cavity probably isn't at that level. However, the anesthetic used by dentists while treating a cavity or doing other tooth work has been shown to cause attacks for many people. Anesthetics containing epinephrine (such as Xylocaine) have been identified by some people as triggers. Ask your dentist to use something else: Prilocaine seems not to cause bad effects. Some people find that nitrous oxide ("laughing gas") is okay as an anesthetic (I remember someone here actually trying to get hold of some as an abortive), but some people have said it's a trigger for them. I think you dentist's office is likely to have O2 on hand (I've noticed tanks in my dentist's office). You might check into this (do they have it; tank size; flow rate; mask type) or bring your own O2 setup if you have a portable-size tank.
  7. CHfather

    Copying/pasting question

    Thanks, you two. FWIW, if I just copy the URL and then go to the chain link icon, I can then paste it into both boxes and it's all good. No clipboard intermediation required. I know I could also type text into one of the boxes, but I like my links here to be more in your face than that.
  8. CHfather

    Portland Oregon sufferers?

    Monica, try sending a PM to 1961mom. She's in PDX, or maybe Eugene. She's a great CH advocate. Hasn't been at this site in quite a few years, but is still very active on Facebook. I'm not comfortable posting her actual name here, because that would defeat the purpose of anonymity, but if she doesn't respond to your PM promptly, let me know and I'll try to give you more info by PM. To send a PM, click on the envelope icon that you see when you scroll to the top of a page, then click on "Compose New," and type 1961mom into the "To" line. It might help a tiny bit if you tell her that CHfather suggested you should contact her. I'll bet she knows other people nearby to you. I lived in PDX for a few years. My favorite place to live in the country (I've lived in 8 different states). Sorry that you're suffering so much now. Also, please -- as Freud suggested -- tell as more about how you are treating your CH. We might have some suggestions.
  9. CHfather

    Copying/pasting question

    I like to include links in my posts whenever it's useful. I find that at this site -- unlike any other sites I use -- I have to go through the process twice each time. Go to the link, copy it, go back to my message here, click paste. Nothing happens. Repeat the process and the link appears. If this is just something I'm experiencing, okay; if it's a fixable system issue, can it be dealt with?
  10. CHfather

    Oxygen concentrators?

    I'd suggest that you might as well get a welding regulator, which will go to 25 lpm and above. The small issue is that it doesn't have any actual lpm settings, so you have to feel your way to the flow rate you want. This is a very small issue. Maybe the $20 one at Amazon will work, but I guess I'd consider this one: https://www.amazon.com/Oxygen-Regulator-Harris-Large-Cutting/dp/B00WH3Q5N4/ref=sr_1_15?ie=UTF8&qid=1549467482&sr=8-15&keywords=oxygen+regulator+welding A small issue that can become a bit of a hassle is that you want one with a barbed fitting like the one in this photo to attack your mask tube to. Some don't provide that. You can buy an adapter at a hardware store or online if you get a reg without it.
  11. CHfather

    Oxygen concentrators?

    "Redneck bag": https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/
  12. My daughter has been using 5-Hour Energies with good success for aborting (along with O2) for many years. Sometimes her attacks break through and last a long time (couple of hours), and she often uses more than one 5-Hour Energy. That many 5-Hour Energies, as many as four or five a day some days, makes her feel pretty crappy. About a week ago she just couldn't take another 5-Hour, so she went with some coffee she had sitting around. Got a very fast abort with it and O2. Since then, she's been using coffee and consistently aborting pretty quickly (~10 minutes), and her gut feels 100% better. I suppose it's possible that like other meds, too much of whatever's in energy shots might turn out to be counterproductive. (Or, as you all know, it could be any number of other things. For example, she was taking hemp oil for the CBD right about until the time she switched to coffee; so maybe the oil/CBD was making things worse instead of better.) She doesn't use triptans or any preventive except D3. She's also been drinking ginger tea every day for about a week. Maybe that has something to do with it.
  13. CHfather

    Ginger for preventing or aborting?

    Thanks for reporting about this, F'T'! Every bit of information helps.
  14. https://www.docguide.com/sphenopalatine-neuralgia-independent-neuralgia-entity-pooled-analysis-case-series-and-literature-rev?tsid=5 "The clinical characteristics of SN [sphenopalatine neuralgia] might mimic cluster headache with the exception of cluster pattern and treatment response to oxygen. The typical duration of pain episodes in SN was several hours to several days; and in some cases, pain was persistent."
  15. These are the first published results that I have seen from the big questionnaire-based study that Larry Schor and others carried out, which many people here contributed to. Nothing particularly shocking to us, but very important that it's out in the medical community. Thank you, Larry and others!!!! https://www.docguide.com/effectiveness-oxygen-and-other-acute-treatments-cluster-headache-results-cluster-headache-questionna?tsid=5