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CHfather last won the day on May 27

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  1. This is good news, Jeff, particularly the part about you having no side effects. Thank you for letting us know.
  2. Fascinating. I feel like this is the first time I've heard of doing it that way. What strength are the pills that you use? (You're doing this instead of the V8 Energy, or alternating them in some way???)
  3. Interesting . . . Thanks, Denny. I'd just note that it contains a lot of aspartame, which would concern some people, and another controversial sweetener, acesulfame potassium (and controversial food colorings), and it has about the same caffeine as 8 ounces of coffee. Coffee + a taurine pill might work just as well, in a similar cost range, with maybe less health risk.
  4. You do you. Bold experimentation got many people at this site to the better place where they are now, so no one is going to deny your privilege to do the same. If you reach the grail and share it, we all will benefit. But I'd be careful about putting too much stock in the quotes you provide here, since they are from a study of people who don't absorb vitamin D or absorb it very poorly -- "patients with malabsorption syndromes" as the article's title says. So it stands to reason that they can cite the research you mention showing malabsorption in these patients, but it doesn't say anything at all about people with normal absorption. One reason I looked at the study is that the quotes you provide so are contradictory to what has been observed time and again with the D3 regimen, where D levels go up significantly as people take more D3 (and not D2, which is the stated product in one of the quotes). The "minimal erythemal dose" mentioned in one quote means "the minimum amount of x-rays or other form of radiation sufficient to produce redness of the skin after application, regarded as the dose that is safe to give at one time." You would have to create a whole lot of redness, or mild sunburn, all over your body day after day, to get to a substantial daily dose of D. The increases reported in this study from using the sunlamps for eight weeks might be beneficial to the patients in the study, but they are trivial in relationship to getting D to a level where it makes a difference for CH. Plus, it appears that the tanning machine (not cost-free) couldn't sustain increases. Maybe the first quote, about sunlight, is accurate. But there have been many people here who have believed that their pattern of daily activities, from working outside to a lot of daily outdoor recreation or gardening, would have given them a satisfactory D level -- and were surprised to find out that they were at or below even the minimum level, let alone the substantially higher level needed to combat CH. I don't know what they are considering the "daily body requirements" in that quote, but the level of D required to combat CH is substantially higher than what medicine considers to be the "daily body requirements." Like I say, bless you in your search for a "non-invasive & cost-free preventative." Something is working for you now, which is great, and who knows what you might discover.
  5. The link at the top of this post will take you to a page updated by Batch (xxx) in February of this year, and the post and replies contain more information: https://clusterbusters.org/forums/topic/1308-d3-regimen/ This should cover the basics, but, as I say there, I'm not confident that I am fully up-to-date on all of the current revisions.
  6. You really should go back to your doctor and ask for the oxygen .I promise you it will become your best friend !!!!!!!! I love seeing my tanks of o2 in my house it gives me great comfort to know they are their What Shaun said is just what I was thinking (I notice that my thinking apparently contains a lot of typos!) You can't run away from having it, but when you face it, you can do wise things to make it a whole lot less bad. You clearly are searching for those things, as everyone here is, and coming up with some interesting discoveries. But it's hard for me to see a reason why you wouldn't go for the D3 regimen full-bore, give busting a try, get oxygen, and maybe even give the new CGRP medications a shot (among other things).
  7. Some notes that might be pertinent to some of this discussion. The predictable recurrence of CH cycles seems to have been greatly exaggerated. In Rozen's 2010 study, "Cluster Headache in the United States," of 1134 people with CH, he reported, "In 41% of the survey responders, their cycles varied during the year, and there was no particular month the cycles would always begin." In that same study, 22% reported having just one attack per day. Regarding the effects of light, there was this interesting thread here a while back about glasses preventing CH: https://clusterbusters.org/forums/topic/8739-glasses-to-treat-ch/?tab=comments#comment-78836 In that same Rozen study, 6% of people reported having a father with CH. Hereditary data are all over the place, but overall, the chances that your daughter will have hereditary CH are very low. A JAMA 2020 report said "Across the 22 large cohort studies, the positive family history rate of cluster headache varied between 0% and 22%, with a median of 8.2%. The largest 5 studies had a positive family history in 18.0% (numerator not provided), 5.1% (40 of 785 cases), 10.0% (numerator not provided), 2.0% (12 of 609 cases), and 11.2% (56 of 500 cases), respectively. https://jamanetwork.com/journals/jamaneurology/article-abstract/2764341#:~:text=Meaning Per this systematic review,as well as environmental factors. [Note that this is family history, which could be anyone in the family. If you limit it to fathers, the percentages are much lower.] Since I have a daughter with CH (but -- for those who don't know -- do not have CH myself), I understand your dread, and I think Bosco' was right about the advantage she would have from your knowledge, in the very unlikely event that she does develop CH.
  8. Monica, I'm story #3 in that booklet, so my situation is different, and I'm probably not material for what you are thinking of writing. I wish you the best with it.
  9. Monica, this booklet doesn't do all of the valuable things you are aiming to do, but it does have brief Living with CH - 8.5x11 - 9-15-14.docxpersonal accounts from people with CH. This was created more as a way of educating family/friends/co-workers/etc. about CH than telling people with CH what they already know. (I didn't think the link was going to get pasted right in the middle of that sentence, but it seems to work.)
  10. Like everything else here, the kitten hypothesis is just an idea that is being tested by the citizen scientists. Or maybe your image reads as a kitten's eyeball. Or maybe one eyeball = one kitten, but two kittens are more efficacious.
  11. Speaking of Shaun as we were, I have to say that I looked up your image, Jeebs, fascinated by the idea of kitten jelly. Turns out that this product is made in the UK and sold to customers in the US by a company that proudly declares: "British Essentials was founded so that more people around the world could enjoy the taste of British Food & Drink, without being restricted by where in the world they may live. Our core mission is to make British Food & Drink accessible to everyone around the world." I have often warned my wife that if she continues her spendthrift ways we will be reduced to eating catfood in our late(r) years. Now at least I know that we will be able to vary our diet with the finest of British Food & Drink.
  12. OMG! (a whole bunch of fuel cats)
  13. You can be a hot dog!
  14. All cats all the time here -- Jeebs, B'P', me, and of course there's no cooler cats than jon019 and S'b'.
  15. I had been trying an adorable profile pic to see if I could get more leaderboard likes that way, or at least raise my rank to be a little closer to yours, Shaun's, spiny's . . . and everyone else's. Apparently a Jigglypuff was not cute enough, or perhaps there is some hidden Pokemon animosity here. So now I'm all in! How can you not like this!
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