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ClusterBusters

dmlonghorn

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dmlonghorn last won the day on July 4

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About dmlonghorn

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    Texas

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  1. dmlonghorn

    introducing my friend who just registered for the board

    Hey Spike, Come on in, have a look around.
  2. dmlonghorn

    Chronic Cluster a Year OR Longer?

    Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.
  3. dmlonghorn

    Here's a beer to avoid

    Hey BoF, As funny as that would have been, I didn't see any.
  4. dmlonghorn

    The alcohol test

    I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.
  5. dmlonghorn

    2019 Conference how is/was it?

    Not many people understand us, but when you're emersed in an environment where so many people "get it" - it's a truly special experience. It's like my family grew exponentially overnight. I can't wait to see everyone again in 2020. Thank you so much!
  6. dmlonghorn

    2019 Conference how is/was it?

    Yep! Safe and sound
  7. dmlonghorn

    2019 Conference how is/was it?

    This tropical storm is putting a damper on getting out of Houston. Hope to hit the road soon and safely
  8. dmlonghorn

    Do you know they're coming?

    My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start.
  9. dmlonghorn

    Quick update

    Dude! Scoreboard!!
  10. dmlonghorn

    Shame?

    @jon019 agreed! Start with your family and communicate... And then communicate some more. In my home, our own form of sign language is evolving. It helps when I'm about to get hit, getting hit, etc. Things like thumbs up, down, hat on backward, sunglasses on inside. I downplayed the hell outta CH at work, things only got worse at work. Try to get a mini plan at home that works and implement variants of the plan throughout other portions of your day to day life. Shame on CH, not you. Ya hippie!
  11. Can't wait to meet y'all!!
  12. I found this article interesting, I hope you do too. https://www.iflscience.com/brain/magic-mushroom-chemical-hyper-connects-brain/
  13. dmlonghorn

    Exercise / Running while in Cycle

    I've been experimenting with this for the past week. Body weight exercises, running, walking, etc. For me, CH does not discriminate against physical activity. But on the flip side, physical activity helps prevent complete CH attack manifestation.
  14. dmlonghorn

    Age? Altitude? Verapamil? Zomig? Exercise?

    Hey Andy, You're not alone here. I experience relief when I go running, but if I don't run long enough, it will continue build... 30 minutes is generally my sweet spot. If you have an oxygen tank, you can inhale enough oxygen to abort the attack within minutes and you won't even have to turn on the treadmill. Pain Free Wishes!
  15. dmlonghorn

    Emergency room experiences anyone?

    They wouldn't let me have oxygen, said it wasn't effective for cluster headaches. My discharge paperwork from the same visit said high-flow oxygen can be helpful for cluster headaches.
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