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dmlonghorn last won the day on July 4 2019

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About dmlonghorn

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  1. dmlonghorn

    Permanent cure

    Agreed. This thread can drift away.
  2. dmlonghorn

    Oxygen help

    15 LPM wasn't cutting it for me so I bought this regulator, very much recommended.
  3. dmlonghorn

    Prednisone weigh your benefits vs risks

    Exact same thing happened to me. My first one as well. Scary shit.
  4. dmlonghorn


  5. dmlonghorn


    Hi Luis, What dosage of Emgality did you start out at?
  6. dmlonghorn

    Prednisone Not Working

    I am in a cycle and came down with a upper respiratory/sinus infection. When this happens my CH activity gets worse so I chose to do a Prednisone taper, in addition to increasing my D3 intake. While I hoped it would also end this cycle, it did not. This taper was only 5 days. My previous experience with an effective Prednisone taper started at 60mg over 5 weeks.
  7. dmlonghorn

    What if there WAS a CURE?

    Forward this post to 10 of your friends or the "cure" will disappear forever.
  8. dmlonghorn


    Freud!!! It's good to see you back in the mix !
  9. dmlonghorn

    introducing my friend who just registered for the board

    Hey Spike, Come on in, have a look around.
  10. dmlonghorn

    Chronic Cluster a Year OR Longer?

    Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.
  11. dmlonghorn

    Here's a beer to avoid

    Hey BoF, As funny as that would have been, I didn't see any.
  12. dmlonghorn

    The alcohol test

    I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.
  13. dmlonghorn

    2019 Conference how is/was it?

    Not many people understand us, but when you're emersed in an environment where so many people "get it" - it's a truly special experience. It's like my family grew exponentially overnight. I can't wait to see everyone again in 2020. Thank you so much!
  14. dmlonghorn

    2019 Conference how is/was it?

    Yep! Safe and sound
  15. dmlonghorn

    2019 Conference how is/was it?

    This tropical storm is putting a damper on getting out of Houston. Hope to hit the road soon and safely