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ClusterBusters

dmlonghorn

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dmlonghorn last won the day on July 4

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About dmlonghorn

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  1. dmlonghorn

    Shame?

    @jon019 agreed! Start with your family and communicate... And then communicate some more. In my home, our own form of sign language is evolving. It helps when I'm about to get hit, getting hit, etc. Things like thumbs up, down, hat on backward, sunglasses on inside. I downplayed the hell outta CH at work, things only got worse at work. Try to get a mini plan at home that works and implement variants of the plan throughout other portions of your day to day life. Shame on CH, not you. Ya hippie!
  2. Can't wait to meet y'all!!
  3. I found this article interesting, I hope you do too. https://www.iflscience.com/brain/magic-mushroom-chemical-hyper-connects-brain/
  4. dmlonghorn

    Exercise / Running while in Cycle

    I've been experimenting with this for the past week. Body weight exercises, running, walking, etc. For me, CH does not discriminate against physical activity. But on the flip side, physical activity helps prevent complete CH attack manifestation.
  5. dmlonghorn

    Age? Altitude? Verapamil? Zomig? Exercise?

    Hey Andy, You're not alone here. I experience relief when I go running, but if I don't run long enough, it will continue build... 30 minutes is generally my sweet spot. If you have an oxygen tank, you can inhale enough oxygen to abort the attack within minutes and you won't even have to turn on the treadmill. Pain Free Wishes!
  6. dmlonghorn

    Emgality

    Hey Freud, Yeah, I'm not sure of the MOA either, but it's how my neurologist described the relationship between Verapamil + CH before I began my 3-week taper. You're right, it would bring you back down to your baseline level, not make CH worse.
  7. dmlonghorn

    Emgality

    Verapamil increases one's "trigger-threshold". Overtime, if Verapamil were no longer effective, then your trigger-threshold would be reduced.
  8. dmlonghorn

    Emergency room experiences anyone?

    They wouldn't let me have oxygen, said it wasn't effective for cluster headaches. My discharge paperwork from the same visit said high-flow oxygen can be helpful for cluster headaches.
  9. dmlonghorn

    My latest Vitamin D Results

    10,500 IU / day
  10. dmlonghorn

    This helped me- hopefully will help others

    Indeed!
  11. dmlonghorn

    My latest Vitamin D Results

    @Batch hasn't responded yet, lol - j/k. I just passed this info onto my neuro, awaiting to hear his thoughts.
  12. dmlonghorn

    My latest Vitamin D Results

    @Freud I read about what I think @Batch referred to as the cascading effect or something like that, so I started introducing benadryl to my routine. I ended up taking 25mg every 4 hours and before bed I took 50mg. I did that for about 2 weeks until $hit started to hit the fan and I simply started forgetting to take them. The infection piece crossed my mind but there are no current indicators and my kiddos are typically the first sign of an infection that's about to wreak havoc on the home, but they're fine. I'll keep my feelers out there. As additional info, I checked my D3 results back from August 2018, they were 47.9 ng/mL, so progress is being made for sure.
  13. dmlonghorn

    My latest Vitamin D Results

    In Feb of this year, my vitamin D levels were at 74.6 ng/mL. I started @Batch's D3 regimen roughly two months ago. I just had my D3 levels checked earlier this week and I'm now down to 70.0 ng/mL... craziness!
  14. dmlonghorn

    This helped me- hopefully will help others

    I've been on a paleo "diet" for almost a year. I did this to combat the "early stages" of Rhuematoid Arthritis (RA). I just visited my rheumatologist who confirmed my blood no longer has enough inflammation in my body to show up as being positive RA. My first thought was "Eff you a$$hole, why didn't YOU suggest changing my diet?" Thanks to my wife's diligence, we took control of my care. This quack outlined a treatment plan that included a lifetime of methotrexate. Excuse the rant, I still have clusters.
  15. oh man, that would mean I had the chance to be referred to as "Mister Awesome" in public... so many regrets!
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