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dmlonghorn last won the day on July 4 2019

dmlonghorn had the most liked content!

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About dmlonghorn

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  1. dmlonghorn

    Anyone need a Zoom Chat?

    It was great, would be cool to do more.
  2. dmlonghorn

    Beast wants to come back

    @Luis Sorry to hear that. It seems we're in the same boat, mine are ramping up as well.
  3. dmlonghorn

    Permanent cure

    Agreed. This thread can drift away.
  4. dmlonghorn

    Oxygen help

    15 LPM wasn't cutting it for me so I bought this regulator, very much recommended.
  5. dmlonghorn


  6. dmlonghorn


    Hi Luis, What dosage of Emgality did you start out at?
  7. dmlonghorn

    Prednisone Not Working

    I am in a cycle and came down with a upper respiratory/sinus infection. When this happens my CH activity gets worse so I chose to do a Prednisone taper, in addition to increasing my D3 intake. While I hoped it would also end this cycle, it did not. This taper was only 5 days. My previous experience with an effective Prednisone taper started at 60mg over 5 weeks.
  8. dmlonghorn

    What if there WAS a CURE?

    Forward this post to 10 of your friends or the "cure" will disappear forever.
  9. dmlonghorn


    Freud!!! It's good to see you back in the mix !
  10. dmlonghorn

    introducing my friend who just registered for the board

    Hey Spike, Come on in, have a look around.
  11. dmlonghorn

    Chronic Cluster a Year OR Longer?

    Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.
  12. dmlonghorn

    Here's a beer to avoid

    Hey BoF, As funny as that would have been, I didn't see any.
  13. dmlonghorn

    The alcohol test

    I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.
  14. dmlonghorn

    Do you know they're coming?

    My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start.
  15. dmlonghorn

    Quick update

    Dude! Scoreboard!!