dmlonghorn

Exact same thing happened to me. My first one as well. Scary shit.

H-Town!

Hi Luis, What dosage of Emgality did you start out at?

I am in a cycle and came down with a upper respiratory/sinus infection. When this happens my CH activity gets worse so I chose to do a Prednisone taper, in addition to increasing my D3 intake. While I hoped it would also end this cycle, it did not. This taper was only 5 days. My previous experience with an effective Prednisone taper started at 60mg over 5 weeks.

Forward this post to 10 of your friends or the "cure" will disappear forever.

Freud!!! It's good to see you back in the mix !

Hey Spike, Come on in, have a look around.

Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.

Hey BoF, As funny as that would have been, I didn't see any.

I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.

Not many people understand us, but when you're emersed in an environment where so many people "get it" - it's a truly special experience. It's like my family grew exponentially overnight. I can't wait to see everyone again in 2020. Thank you so much!

Yep! Safe and sound

This tropical storm is putting a damper on getting out of Houston. Hope to hit the road soon and safely

My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start.

Dude! Scoreboard!!