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Everything posted by dmlonghorn

  1. dmlonghorn

    It looks like it has started

    Get all your tools together and keep up the fight! Sending you positive vibes brother!
  2. dmlonghorn

    Ping pong

    Hey Tony - I always get mine on the right side, however, just the other day I felt it trying to punch through the left. The sensation was foreign but familiar at the same time. Fortunately, it didn't fully manifest and it went back to doing what it does to my right side. It was like the beast was exploring its options. I chalked it up to the MM doing its thing. Hang in there man. PFW.
  3. dmlonghorn

    Cluster and Weather correlation

    Yup, just before storms come through, I'll get CH activity. I picked up on the pattern earlier this year and it's been consistent since.
  4. https://phys.org/news/2020-09-scientific-psychedelics-key-brain-cell.html
  5. dmlonghorn

    Aftermath effects

    Yup. Same ballpark, 6 feet away listening to the same ringing.
  6. dmlonghorn

    Question about D3 + other

    Grab it on Amazon if you can... https://www.amazon.com/dp/B000A0F2B2/ref=cm_sw_r_cp_apa_i_-bgpFb8TH1FR3
  7. dmlonghorn

    cluster headaches and exercise

    @Tomas I've experienced something similar when running to abort attacks. If I stop running too soon, the attack will build and sometimes really fast. But if I run a full ~20-30 mins, it will pass. This works best when I first feel the attack creeping in, it turns into "get up and go!"... I can't always bolt out the door, but it's good to have this "tool" available in certain situations. Good luck
  8. dmlonghorn

    I think it's official

    I feel ya Mox. Similar shit going down in my world right now. Hang in there.
  9. dmlonghorn

    Anyone need a Zoom Chat?

    It was great, would be cool to do more.
  10. dmlonghorn

    Beast wants to come back

    @Luis Sorry to hear that. It seems we're in the same boat, mine are ramping up as well.
  11. dmlonghorn

    Permanent cure

    Agreed. This thread can drift away.
  12. dmlonghorn

    Oxygen help

    15 LPM wasn't cutting it for me so I bought this regulator, very much recommended.
  13. dmlonghorn


  14. dmlonghorn


    Hi Luis, What dosage of Emgality did you start out at?
  15. dmlonghorn

    Prednisone Not Working

    I am in a cycle and came down with a upper respiratory/sinus infection. When this happens my CH activity gets worse so I chose to do a Prednisone taper, in addition to increasing my D3 intake. While I hoped it would also end this cycle, it did not. This taper was only 5 days. My previous experience with an effective Prednisone taper started at 60mg over 5 weeks.
  16. dmlonghorn

    What if there WAS a CURE?

    Forward this post to 10 of your friends or the "cure" will disappear forever.
  17. dmlonghorn


    Freud!!! It's good to see you back in the mix !
  18. dmlonghorn

    introducing my friend who just registered for the board

    Hey Spike, Come on in, have a look around.
  19. dmlonghorn

    Chronic Cluster a Year OR Longer?

    Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.
  20. dmlonghorn

    Here's a beer to avoid

    Hey BoF, As funny as that would have been, I didn't see any.
  21. dmlonghorn

    The alcohol test

    I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.
  22. dmlonghorn

    Do you know they're coming?

    My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start.
  23. dmlonghorn

    Quick update

    Dude! Scoreboard!!
  24. dmlonghorn


    @jon019 agreed! Start with your family and communicate... And then communicate some more. In my home, our own form of sign language is evolving. It helps when I'm about to get hit, getting hit, etc. Things like thumbs up, down, hat on backward, sunglasses on inside. I downplayed the hell outta CH at work, things only got worse at work. Try to get a mini plan at home that works and implement variants of the plan throughout other portions of your day to day life. Shame on CH, not you. Ya hippie!