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FunTimes

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FunTimes last won the day on November 23

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About FunTimes

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  1. It does suck.. Welcome to the club! Like yourself we have all gone through this same type thing. You will find people that have had teeth pulled, nerves cut, tried all sorts of different medications and a few operations done to try to solve this. You will want to read up as much as you can here starting with the link that CHfater sent you, get oxygen as soon as you can to abort your attacks try a 5hr energy drink at the first feeling of an attack coming on can help buy some time and sometimes abort the attack on its own. read up on busting and the Vitamin D3. Oxygen is the best treatment for
  2. I will also stretch my neck out from side to side sometimes rubbing a ice pack on it. I don't know if it is just a distraction that I needed to cause relief or if it actually help, I don't care either way as long as the pain goes away! haha As far as the toothache goes, The way it was explained to me if your tooth had an issue you would feel that pain or pressure all day every day until it was taken care of, if it comes and goes most times like clock work the same times every day then it is cluster. But I am no doctor, I am just some guy having to much fun playing the cluster game.
  3. @Cast Iron, I was in the same boat at one point a few years ago. I finally figured I had nothing to lose and I spend a weekend locked in my room with no triptans and beat the shit out of myself all weekend. It was hell but I think it helped me in the long run. I now bust, do the D3 and have oxygen that I hit as soon as I feel that lovely sensation of a cluster coming on. I also always have a 5hr energy drink in my pocket to help the oxygen along and take a low dose of Verapamil. I was taking 2 and 3 triptan injectables a day and eating sumatriptan pills in between. I truly feel that all that w
  4. Dogo, I have the same type feeling in my upper jaw almost every hit. I actually started all this fun thinking I had a toothache and had root canal work done on a tooth that did not need it only to find out from the next dentist that I had clusters.
  5. I have found the prednisone will only help you when you are taking it, you stop taking is and clusters are back. That is given to bridge the gap when starting a new med like verapamil, it gives it the time needed to build in your system. But hey if it gets you a few days pain free and you have no issues taking it rock on.. I would do the same. Oxygen will be your best option to abort any attacks you get and the 5hr drinks can help that along if you get a stubborn one. I have tried the melatonin but have not come up with any set in stone results. The D3 did make a difference for me in the inte
  6. I use the small 5hr energy drinks or coffee type energy drinks if that is all I have. I can use them all times of day and night and they do not keep me awake. I run my oxygen reg at 25 lpm at first and dial it back as I get the cluster under control. If I catch it fast enough with the O2 I do not tend to need the 5hr drink and can sometimes abort in about 5 minutes. the longer it takes me to get on the oxygen the longer the abort takes. I will also add benadryl to the D3 regimen when things get bad for me you can read all about that on this site and XXX(Batch) will be more then happy to help y
  7. Here is the info to help you with the regulator and mask This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&
  8. Not much to add to all the post above. My wife will kind of be on standby in the background. check on my when she knows I am having a cluster just by walking by, if I raise my hand of make any type of movement in her direction she knows I need or want something. She has a idea of things I might want during a cluster and will just go through the list until I give a thumbs up or nod my head. It is very strange for both parties I guess. For me I don't want to disrupt anyone else life with my condition but at the same time I don't want to be alone. My wife does not want to bother me by sitting in
  9. Nice work Batch, I assume the participants need to stop taking all vitamins prior to the study, How long do you think that would take to clear your system?
  10. I have gotten the Flu shot in the past and have not noticed any change in headache frequency.
  11. The mask can be found here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit
  12. What is your current dose? It should be 300mg a month for clusters. I had 3 100mg shots when I was on it. I now have 3 unneeded sitting in a bag in my fridge. It did not help for me.
  13. I did it on a PC with Chrome browser but I do not see my response posted on the form. It looked like everything worked fine on my end, I thought maybe it took a day to post.
  14. Verapamil can help some. I was at one point taking a little over 900 mg a day with the slow release. I made the change over to the rapid release and worked my way down to 120 twice a day. You will want to have a doc keep an eye on your heart when changing dose and work up slowly. It will take about a week to get into your system so most will do a pred taper for the first week. When I was on the higher dose it effected the feeling in my feet along with a little swelling. If you are also using the D3 with all co factors you will want to space them apart a few hours, Verap is a calcium channel bl
  15. Sorry you and your sister are dealing with this but you are in a good place for help. I see you have done all the ct, mri type scans to rule out anything else and that is a good start. The oxygen is the number one abort by most for cluster attacks. You will want the cluster mask and a regulator that has a flow rate that will go up to 15 or 20 lpm. you can read all about this. energy drinks or strong coffee are also used to help at the onset of an attack to help slow the ramp up time so you can get to the oxygen. Read up on the vitamine D3 regimen developed by a member on thie that goes by the
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