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ClusterBusters

FunTimes

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FunTimes last won the day on December 13 2018

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About FunTimes

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  1. FunTimes

    How was your weekend?

    A few things that can be the cause of this. I did take the month of December off from busting and the weather is a little goofy in this part of the country. I also took a few days off of Verapamil, it is only 120 a day but now I know it does make a difference. I am ordering the blood test today and hope I can get that done this week some time. I did bust on Saturday and things seem a little better today so i am keeping my fingers crossed. I do not recall eating anything with MSG over the weekend, I did not eat anything other then the MM on Saturday and Friday was a normal day for me with sleep and diet. I think it was just a matter of time that I got a reality check and took a beating. Now that things calmed down a little it is nice to know I can still take a ass kicking and make it out alive. It was a dark weekend but I did make it through. I owe my wife a steak dinner after this weekend that is for sure.
  2. FunTimes

    How was your weekend?

    2 days, 13 clusters, 8 hours of pain, 12 5 hour drinks, gallons of coffee and water = FunTimes I must of pissed something off Friday night.
  3. FunTimes

    Vitamin d3

    Here is a link to the D3 regimen https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people I am sure Batch will be reaching out to you with more advice, he is the founder of this treatment. It did not cure me of my cluster but did help cut them in half on the amount I get a day and the pain level they hit. I am chronic and I take this year round.
  4. FunTimes

    Has melatonin made CH worse for anyone?

    I take 20mg about a half hour before I go to sleep at night and do feel it adds to me getting any more attacks. I have no problem getting up in the morning after taking them and if I forget to take them one night I do not think it makes a difference. I don't know if they help me at all but I do not feel that it is hurting me as far as clusters goes.
  5. FunTimes

    I can't make this one go away

    You can try to down a 5hr energy drink on your way to the oxygen tank! This will help kind of boost the o2 and you may be able to get some relief a little faster. I do this all hours of the day and it does not keep me up.
  6. FunTimes

    Oxygen supplier

    I use the 5hr energy brands you will find all over and I also use Eternal energy and hydroxycut I think makes a version that I get from Walmart.
  7. FunTimes

    Oxygen supplier

    Try a 5hr drink on the way to the o2 or even if you find the O2 slow to react and that will sometimes be just what you need to abort that attack.
  8. FunTimes

    Amitriptyline... Anyone heard of it?

    The E size tanks fit nice in a 2 litter soda bottle carrier the pepsi and coke guys use in the super market, they will hold 8 tanks and keep them from falling over when you store them. When your o2 delivery guy comes to drop off your tanks you can take the empties to him in that carrier and ask him if he can just refill the rack for you and you will keep it at your back door for him to make it easier for the next time he comes to deliver. I have done this a few times with only 6 or 7 bottles in it and he fills mine back up with 8 tanks. I have a few extra soda crates for the next time he comes to just trade them out with him. I have also had them not bring a larger M tanks and he gave me a few extra E tanks to hold me over for my next delivery.
  9. FunTimes

    Does nasal spray work for you?

    I know that some of the prescriptions are manufactured in a nasal spray form and work much better and faster then in pill form and injections working the fastest but I have never heard of a over the counter drug in any form abort a cluster. What is the brand yo are using? Maybe someone else will have more information for you.
  10. FunTimes

    Amitriptyline... Anyone heard of it?

    I would take the os script and fill that first, you can then get your own regulator from amazon to fit the tanks you get, 2 is better then nothing. I would then start working on the o2 supplier, I was given 4 e tanks when I was first set up with my O2 and after being very creative with the delivery driver and calling into the company for refills I am now up over 12 E tanks, 2 m60 tanks and 2 M tanks. The cost stays the same for monthly refills and it takes a little time to build up your stash but it is worth a try. Drivers dont care what you have and most of the time keep a few extra tanks on the truck. the youngsters on the other end of the phone taking orders dont care how many tanks you have and only type into the system what you order and most companys do not have the best inventory tracking software so they do not remember what you have. It may not be the most ethical thing to do but then again limiting you to only 2 tanks of something like oxygen is not the most ethical thing they can do either.
  11. FunTimes

    Hello (First Post)

    Brian- I smoke and have chronic clusters. I do not necessarily pace the room but I do not lay down. I use oxygen to abort the attacks so I sit in a recliner and kind of rock back and forth and squirm in the chair. most times I am exhausted after everything ends and I kind of relax a little if it is a day attack, at night I go back to sleep. If it feels like it is going to be a good one I down a 5hr energy drink as I am getting my O2 going. I hope you get this all sorted out and I am sure this site will help you with any questions you may have.
  12. FunTimes

    Newbie with 02, increase in attacks, any advice/help?

    Like Jon said, I have tried just about every technique mentioned on this site and every attack for me is a little different. Sometimes just relax and breath does the trick and other times hyperventilating and banging the arm of the chair helps. It is something you will have to mess around with and find what works for you . And I also always have a 5hr energy drink in my pocket to help kill off the pain no matter what time of day, night or morning it is.
  13. FunTimes

    Freezing

    I have had both the feeling of being cold and also sweating on different attacks. It is odd and I should keep track of that to see if it is a pattern.
  14. FunTimes

    Energy shots question

    I use the 5 hr energy shoot when I feel the cluster coming on. I then start my oxygen. If I am not close to my oxygen tank and a hit comes on the 5hr drink will give me a little time, it sometimes slows the ramp up of the hit down. A few times it has aborted the attack all together, now I am not saying that when it aborted the attack that is was only due to the 5hr drink, it could of went away on its own but for the 2 bucks for the drink I will not take that chance. I also can use them at all hours of the night, they do not keep me awake when using them for a cluster. I have never drank one as a preventative.
  15. FunTimes

    Nothing seems to work

    Agreeing with CHfather 100%. All of the things he mentioned have helped me out a little, add them all together and you have a manageable day. I take Verapamil at a low dose of 160 twice a day now, the vitamin D3, benadryl at 25mg 3 times a day drink lots of water and down a 5hr drink on my way to the O2 tank and take 20mg of melatonin before I go to bed. Sometimes sleeping in a recliner. I went from about 10 hits a day down to 1 or 2 a day. I then added busting cycle every 5 days and am now down to 1 or 2 hits a week. Other things people try are drinking ice cold drink with a straw pointed at the roof of your mouth on the cluster side, chewing fresh ginger and putting your feed in very hot water. You may of had a way that worked on your last cycle and need to tweak it a little. with all the mentioned things on this site you can hopefully mix up a system that works best for you and when you find that please share your story, it may help someone else.
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