FunTimes

Depends on if you want to meet and talk to other clusterheads attending or listening to speakers more. Friday will be more of a meet and great with everyone attending, Saturday is more structured and the presentations begin. You do have breaks and will mingle with others between speakers on Saturday.

What he said ↑ Go get that checked out. Don's think this is cluster related

I have also seen on Craigslist and other facebook free stuff type places people getting rid of empty tanks they have from older family members that passed away or just found in the garage. I grab them and add them to the mix for getting refilled. I figured if they are bad the refill place will know and trash them. It just adds tot he supply chain if they are good.

If you found a medical oxygen company that would service your area and it is just the insurance that is not approving ask about out of pocket payment. I do not use insurance to pay for my oxygen and it is actually cheaper for me paying out of pocket. Still need a script from the doc tho.

I was on Verapamil for about 10 years, got all the way up to 1080 a day and it sucks. Tapering myself down little at a time and I am now off all together. The higher dose did help with the clusters but like CHfather said above the vitamin D3 along with some other things has helped me get to the same place without the side effects. I did it on my own and told the doctor at each visit I went to what I was dong. He was not a fan but as long as I took it slow he said it should be fine. Doctors go to school for years learning things, I have only watched a few hundred hours of MASH, almost the same thing...

dhuddly I have never been tested for anything like this that I know of. Might be something to look into

Nice work guys.

Awesome to see ya back spiny. hope all is well with you and your wisdom is always needed around here.

Jimmy, I look at it as better me that anyone else in my family so I am kind of use to things they way they are now. I can not say that I have tried everything but I do stay up to date as best I can on this site and am not afraid to try anything. I have done several clinical trials to help the people that are much smarter that I am to figure out what may or may not work for future generations. I also try a lot of things that are more like myself on this site and have real life experience with what works for them. Things are much better now that I have a room full of tools to fight this and knowing that what works today may not work tomorrow I keep a little bit of everything on hand. I am glad your cycle has come to the end and hope that it stays away for a long time. Go enjoy the pain free time and hope you never need to visit this site again!

Jimmy, I get my oxygen by paying out of pocket, it is actually cheaper for me this way. I am chronic so I have tanks delivered all year round. Busting has not cured me in any way but does infact cut my attacks down in frequency and the pain is much less that pre busting. I am also one who will down a 5hr energy drink to help the oxygen kick in faster. It does not seem to keep me up at night. This can be different for everyone, the only way to know is to give it a try. Melatonin and Benadryl have helped me get a full night sleep also. All of the things I hade done over the years have faded in effectiveness or stopped all together. I have switched it up on busting substances, tweaked what and how I take things and kind of go with the flow. It is understandable that people tend to stop visiting the site when in remission and only pop in when in cycle, I wish I could be pain free and never visit this place again ( No offence) . As you know we are all here to help each other.. Welcome back

Jim Thorpe.. His grave site/memorial is not to far from me. been to it a few times. Small world! It is awesome that you keep in touch with several members on this and other cluster support sites, you have and continue to help so many people in so may facets of this game we all play. Keep up the great work you do and know that you are appreciated by many! Have not seen Spiny on here in a bit.. Hope all is well with her

This place has saved a whole bunch of life! We are all in it together.

Not from that area but did visit a few times. I have used Ron Andrews Medical.https://www.ronandrewsmedical.com/ they delivered to a hotel and picked up for me with a copy of my script email to them. No issues at all and I think it was something like 25 bucks a tank. I would call your PCP and ask them to write you a script for the oxygen, it does not need to be a neuro. It may be faster and they can send that over to get your tanks faster. Make calls and demand it, don't take no for an answer and you can get it done today if your motivated enough.

Dr Young down at Jefferson has been good for me. He is also a supporter of this site and attends the conferences. Him and his team will work with you well if you tell them your a member here. https://www.jeffersonhealth.org/find-a-doctor/y/young-william-b