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FunTimes last won the day on June 16

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  1. jfrillin That does suck and I do whatever I can to stay away from the ER. only made one worthless trip and said never again for the same reason you have now. Not sure of your past but maybe re evaluate your tools. D3 has had a few updates to it over the years and maybe some of them can help you out. I also have tried the Emgality and it seemed to work the first month but did little at all the few following months. Sometimes I get lazy with my oxygen breathing technique and my wife needs to point it out that im doing something different to get me back on trac. I also down a 5hr energ
  2. I was not the best in school the first time around but I think I could pull this one off! Think they will give scholarships to people like us who have a little experience?
  3. I had both shots done and no change in my clusters at all. Pfizer is the one I had if that makes any difference.
  4. Welcome Paula, What other things have you and your husband tried for his cluster? Any preventatives? Verapamil is the most frequently used at a high dose. You should read up on the D3 regiment, that should slow the hits down and lessen the pain but can take a few days to kick in. Oxygen is the best for aborting clusters with no side effects. If your doctor will not prescribe it for you we have a tun of information about home setups using welding oxygen. That should be the thing you try to get set up today! I will also down a 5hr energy drink when I feel a cluster coming on to help the oxygen w
  5. Like the others have said, I don't think it would lengthen your cycle but it may add a hit to your day. I have had days that I just can not stay awake any longer and took a nap, the short ones like you said about 29-30 minutes are ok most of the time but do not hold you over when your only sleeping 2-3 hours a night. I find that the lack of sleep is also a trigger so I will sometimes take a day off of work or waste a weekend day and try to sleep all day waking up every 90 minutes or so dealing with the cluster and laying back down. After a day of this I seem to get back on track with my normal
  6. unfortunately I have that same urge to just hang out and have a few beers with friends and family myself. A few years back I tried it and it lasted about an hour, then I was on the o2, 5 hr drinks and ultimately imitrex injection to stop most of the pain about an hour into the hit. It was much worse. I am chronic so no off season for me. I have tried wine with the same outcome. Brown whiskey is a little better and I can sometimes pull that off with a little hit or nothing at all but I can also get crushed. Clear drinks like vodka are just a tad better but still make me nervous so I kind of ten
  7. is you have a script for the 02 it is sometimes cheaper to pay for it out of pocket. Adding Benadryl to your D# li CHfather said will help also Read up on the site as many people have a bunch of little tricks with things around the house that may help you out
  8. This is interesting. I will put a little piece of paper towel or tissue with Frankincense oil on it and press it to the roof of my mouth for about 3 minutes to help abort an attack. Used like a 5hr energy drink along with the oxygen and it does seem to help me. My wife found out about this on some essential oil website a few years ago.
  9. Welcome tot the club, glad you found us and we are all here to help as you can see. The first think I would say is get your hands on Oxygen, you can and may have read all about it on this site. Vitamin D3 is another thing you can get started today with one trip to a local vitamin shop, walmart or rite aid type store. 5hr type energy drinks can slow the onset of an attack, putting your feet in a hot water bath, ice pack on the cluster side are all tricks people use to help slow or stop the pain. Read up on the site for an hour and you will have a ton of information that may be helpf
  10. I have taken Emgality along with MM and did not notice any change in the effectiveness with MM. As far as I know they work within you body on 2 different levels and should not interfere with eachother. I gave the Emgality about 4 months and called it quits as it did not help me out. I would say give it a try along with your other normal routine and hope for the best. Make sure you are getting the full dose for clusters, 3x the migraine dose. You will need to use 3 100mg needles and make sure they are room temp! I did not wait long enough after taking them out of the fridge one time and they hu
  11. Clustergm I was thinking about going to the Keys for a few weeks and this is a place I found that would rent me tanks. They have a few locations but I don't know if they would deliver up that far. Give them a call, maybe they can help you out. The first tank would cost me $25 and $15 for each additional tank. They only offered me E and D size but may have other options for residential delivery contracts. Medical Care Services Florida Keys 91884 Overseas Hwy, Tavernier, FL 33070 Phone: (305) 501-2306 https://www.mcskeys.com/
  12. Clustergm I would not let insurance hold you back from getting oxygen. I was given a price from my company with using insurance and then asked the cost out of pocket. MUCH less paying out of pocket for me so that is what I do. you can also look at the welding link CHfather has sent to you. looks like the boost cans go for about $2.50 each, i would think 8 to 10 cans might abort your cluster if you can somehow contain the O2 in some sort of trash bag setup. At 20 to 25 bucks you can get a much larger welding tank that could last you days of fun filled aborts.
  13. This is my second trip up for this study. I would think the travel expenses are what would be holding back the enrolment. Also most of us that already use MM for our own treatment have nothing to gain from this other then stopping home treatments, getting back to baseline hell then crossing your fingers on what you get from the study. I like to torture myself from time to time so I figured why not try this again. No other vacations planned with this pandemic so sitting in a hotel room for 2 weeks cant be that bad. Give me new walls to stare at. In all reality I do sign up for studies wh
  14. Heading back up for another round with this study. https://clinicaltrials.gov/ct2/show/NCT02981173 Might not help me much but it will make things a little better for the future.
  15. Correct! a lot of people have hade great success with using the D3 regimen. For some it have stopped clusters all together others like myself it has cut down the amount of hits per day and the severity of each attack. You will need to get your bloodwork done to kind out what your levels are and make some adjustments but it is worth giving a try. XXX Formally known as Batch on this site, is available to help you out with any questions about this.
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