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ClusterBusters

FunTimes

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FunTimes last won the day on July 16

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About FunTimes

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  1. FunTimes

    My CHer fiancé wakes up with CH & erection?

    If he has never had a head scan it would be worth looking into. No harm in ruling out tumors, aneurysm or any other head condition. As far as the clusters being different in this cycle that is totally normal. They will change all the time, some with each cycle and for chronics like I am they change almost monthly. One month I will get them in the mornings the next they are over night. What type of abortive does he have? Oxygen would be the most important thing and firs on my list to get.
  2. FunTimes

    Newbie here from Iowa

    Jeler my name is funtimes and I also am a user of 5hr drinks.. haha I never had anything like a energy drink prior to my clusters. I read about it here and did not have my oxygen set up yet so I figured I would try. I find the 5hr type drinks, you can use redbull or anything with taurine and caffeine, will slow down the ramp up time of the attack so I have better results using the oxygen when i get to it. I down the drink on my way to the O2. The O2 alone will change the game for you. You can abort an attack in under 20 minutes most times. I am chronic and have only been playing this game for about 6 or 7 years but prior to this site it was even more of a living hell. I tend to forget that sometimes. You will find all kinds of help here as you already seen. I also do the D3 with the Melatonin at bed time. I also will add Benadryl 3 times a day when things get real bad.
  3. I will be flying in on Thursday morning for my second conference. I am staying across the street at the Marriott with my brother in law. Looking forward to it!
  4. FunTimes

    Newb here

    Trucker I entered this party thinking it was my teeth and had a root canal done for no reason. That didn't fix any of my pain and was told by a different dentist it was the clusters causing the pain. Things got a lot more fun after that. I feel it in my upper teeth to the point I want to snap them off at the root! It will linger for a little after the attack is over sometime too. Some people drink cold ice water with a straw pointing to the roof of their mouth during a cluster to try to create a brain freeze feeling, I have pressed Ice to the roof of my mouth and on my teeth but it did nothing but aggravate me.
  5. FunTimes

    Newb here

    Here is a link for the D3 a member on here named Batch came up with https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people You will want to go get your blood test to see what your vitamin D levels are now and then again about 3 months after you start taking all the vitamins to see what changes have occurred. After that you can tweak things as needed to help better. A lot of people on this site have gotten relief and poster results and different things they may have added, search D3 on the upper part of the page under your user name and you will find a tun of information. You can click on the envelope on the top of this page next to your user name and send Batch a message with any question you may have after reading up on this and I am sure he will get back to you Are you using anything else to abort your attacks? You can do it without insurance, plenty do, by setting up a welding oxygen setup. You will want to get oxygen as soon as you can it will change your life for sure.
  6. FunTimes

    I need help from the veteran survivors of CH

    Getting on the D3 is the fastest thing you can start to do on your own. Do you have a doctor or headache specialist you see? Getting the oxygen setup would make a world of difference in how you feel and you most likely will not have the 2-3 hour hits. Oxygen if used correctly can abort a hit in under 20 minutes. I down a 5hr energy type drink on my way to the oxygen tank to slow down the ramp up time of my clusters. Other things you want to look at on this site are ginger, ice, hot foot bath, exercise. these are things that cost little to nothing and you can start today at home Busting is another option you can look into, this will take a little more time but has worked wonders for a lot of people. Poke around in all the forums and dont be afraid to ask questions.
  7. FunTimes

    New need info

    Oxygen is a must, without it I would go insane. I drink so much water I don't remember the last time I was thirsty. I just keep drinking it down all day and night. between that and the coffee I could be a fountain as some strange hotel lobby. One thing i learned about oxygen is you can not be to picky on what the o2 company gives you, take what they give you and you can find the rest online.
  8. As far as I know it is still going on and recruiting. I will try to find out and let you know. I do not know about the age limit on it either but will try to find out about that to if you want me to.
  9. I have dealt with Dr Schindler, She is doing the study at Yale, and she is great. I am sure if you emailed her she would be willing to answer any questions you may have. Let he know your a member of clusterbusters.
  10. Have you tried Verapamil as a preventative instead of the lithium? You can take this at a sumwhat lower dose and bust at the same time. What else do you use to abort your attacks? Oxygen D3 regimen also woll help cut down on your daily clusters, have you had your vitamin levels checked to see if you are D3 deficient?Check out this link for info on that https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people
  11. Gore Your best bet for getting mushrooms is to grow your own. you can find all kinds of information on the boards by searching MM in the upper right corner of this page and follow the link at the top of this page that says new users read here first. Figure out how you want to get started and ask alot of questions.
  12. FunTimes

    Hip Surgery

    yes, that is what they said it was. No evidence of it in the other hip so he said I most likely will not get it on that side.
  13. FunTimes

    Hip Surgery

    Thanks for the info. I will be asking for the oxygen to be close by even if I need to bring my own mask and regulator and to have a dose of sumatriptan at hand as well. It kind of sucks that my hip took a crap on me. They have no idea what caused this, I knew from the start that Prednisone could lead to this but I have only taken 1 or 2 dose packs in the last 6 years or so. I am only 43.. just have that much good luck I guess. Buy the bulk pack of Clusters and in the bottom of the box you find a coupon for a new hip!
  14. FunTimes

    New need info

    That is correct.. You can also find info here https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people
  15. FunTimes

    Hip Surgery

    I have been on the D3 with all its vitamin friends every day for over a year now. It has brought down the amount of pain and frequency of the attacks but not to a pain free level. I keep at it, every little bit helps. I didn't know if I should be asking for a certain type of anesthesia that would not trigger a cluster.
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