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ClusterBusters

FunTimes

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FunTimes last won the day on August 17

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About FunTimes

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  1. FunTimes

    Melatonin and clusters

    kat Have you had your bloodwork done yet to see what your levels are? Everyone is a little different and you may need to tweak a few things to get better results. I add benadryl the rest of the D3 vitamins in the spring and fall if I think some underlying allergy is messing with my head. I have never had allergy in the past but you may have a underlying symptom that you are not aware of that has no other symptom other then making clusters worse. If your D level is still low after the loading dose you may need to load again. you can always send batch a pm with the results of your blood work and I am sure he will get back to you with some ideas, he is great with that.
  2. FunTimes

    Surgery while taking Verapamil

    I take 120 once a day and just had a hip replacement. They did not ask me to stop taking it. I took it 2 hours prior to the operation. Good luck to you. I broke my collarbone in high school and all they did for me was reset it and put me in a brace.
  3. FunTimes

    Melatonin and clusters

    If melatonin is causing you other issues then yes I would stop taking it. if all you are dealing with at night without taking it is the cluster then at least you know what your dealing with. Mix in anxiety, nausea and vomiting with clusters and that sounds like a real party...
  4. FunTimes

    New, English and Confused .

    you can split your injections to extend them, you can find information here and on youtube on how to do that. You will also want to look into getting oxygen at a flow rate of 25lpm and a non rebreather mast, you can also find info on how to get that setup on this site as well. A member on this site has developed the D3 regimen that has helped countless cluster heads. Poke around this site, start bu clicking the blue link at the top of the page for new members. read as much as you can and ask questions and you will get answers. Busting is a big topic that has helped most bring clusters under control. Welcome to the site you will be happy you found it.
  5. FunTimes

    Females and O2

    MASH! HAHA the 4077 got me through a lot of busting nights.. Love that show
  6. FunTimes

    Energy drinks

    Being negative is all part of the game, it happens to me all the time. I am chronic so I do not have cycles but deal with this every day every year. I try to take a look at myself from the outside and find it kind of funny that I was chosen to deal with this and was chosen because I can deal with this. I am a big fan of the 5hr energy drinks or anything similar off brand type drinks like this with the caffeine and taurine. Walmart and dollar general both sell drinks like this. For some push ups, jumping jacks or some other vigorous activity can also help lessen the pain at the start of the attack. Oxygen is the biggest help, the faster you can get to it and the faster you can fill your lungs the better. Do you have the cluster mask and a high flow regulator for your tanks? Cluster headaches suck but you are in the best place to fight them. read this site as much as you can and ask questions. Look into the vitamin D3 like mentioned by the pros above and read up on busting it could change your and your partners life.
  7. FunTimes

    The ball keeps rolling....

    I am a big fan of clinical trials, I have taken part in 2 of them for clusters since I was lucky enough to be diagnosed including the Yale psilocybiin study. I do not do it for a cure for me but to help find a way to get one step closer to cure the future. I would like to be part of finding a cure for my children if they ever have to experience this shit storm of a life we all live.
  8. FunTimes

    Is cycle coming to an end?

    Oxygen is the best option for aborting. you will most likely need to order your own regulators for the flow rate of up to 25lpm you can get them from amazon. You will want at least a few E tanks and 1 M or M60 tank This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1
  9. FunTimes

    Is cycle coming to an end?

    I would not think your cycle is ending I think the Verapamil may be kicking in. It can take up to a week for you to start feeling the effects from that. Most times your doctor will give you a Prednisone taper to hold you over until the Verap starts to work. You are better off without the prednisone, that can do some harm to your joints.. MRI is good to rule out any other things that may be going on and like Freud said you will want to look into getting oxygen to abort your attacks. I also will down a 5hr energy drink at the start of a cluster to help the oxygen kick in faster for a quick abort or to help some of the stubborn ones go away. Tuns of information on this site and everyone is here to help so read as much as you can and ask questions..
  10. FunTimes

    Benadryl while busting

    I have taken Benadryl with the D3 and busted at the same time and never thought it blocked anything. I am chronic so I don't get a bunch of pain free days between bust, I did not notice any less relief with busting and taking benadryl and when I am not taking benadryl.
  11. FunTimes

    Question about prednisone

    I take both Verapamil and the d3 regimen. Verapamil around 6am and d3 between 12 and 1pm. I took prednisone about 3 or 4 years ago and just got my brand new hip! The only thing that the doc could think to pin the hip replacement on was the prednisone. I'm 43 years old. Be careful with that stuff. Dont over do it. It will keep most of the clusters away only when your taking it. Stop taking it and the clusters return. Just my experience.
  12. FunTimes

    Looking for advice

    When I first started out with my clusters I thought is was a toothache. It would bother me for a month or 2 and then go away for a month or 2. This pain free gap slowly shortened until I had this shooting pain every day but not all day. I had a root canal done and that did not fix the pain so I was refereed to another dentist who told me I had cluster headaches. You have already had the MRI witch is a great start due to the head injury. I would look to see a headache specialist to figure out if it is in fact clusters you are having. I would keep a log of each headache you get, what time it starts, what part of your head, runny or clogged nose, does your eye tear, and how long it last. See if you have some sort of pattern. Like Moxie said Clusters tend to come the same time every day and a diary will help the doctors figure out what is going on. If you do end up having clusters you are in the best place to fight this and we have a tun of people here that have dealt with this for a long time and tried just about every trick in the book. Things to look into will be preventives like Verapamil, abortive like oxygen and long term treatments like Vitamin D and busting. All of witch are covered in full on this site. Poke around and ask as many questions as you can and we are happy to help. Sorry you have to be here but this is a great place to be for help.
  13. FunTimes

    Short break

    Pebbles How far along are you in recovering from the hip? I am on day 14 and just ditched the walker and using a cane only now but it still feels weak and tired. I am doing the stretching a few times a day and walking as much as I can every hour or so. I have about 40 stairs in my house and am now doing them a few times a day. I kind of thought I would be doing better then this at this point. I still have not gotten into a car as I fell that would hurt. I hope your doing well and the clusters are letting you heal without issue..
  14. FunTimes

    Just a question

    Relaxing is a trigger for me. If I have a busy or stressful day I am fine until the stress or activity ends. I get in the car to come home and can get hit or I get home and sit down to watch some TV and get hit. seems like weekends when I am more relaxed I get hit more often also.
  15. FunTimes

    Vitamin d3 regimen

    Freud has you on the right track. I have stopped going to doctors because they have no idea what we as clusterheads need to control our condition. If you have a doctor who does not listen to you and/or says he can cure you from clusters it is time to move on. After you are 100% sure you do have clusters and not anything else going on in your head with a scan we have a tun of experience on this site to help you cope. starting the D3 regimen is a great start and can bring some to many pain free days, you can take it all year round to keep you clusters beat down. just remember your not cured, if you stop they will most likely come back. you will want to start looking into getting oxygen first then imatrex, 5hr energy drinks for aborting. Verapamil at high doses is given to help prevent attacks. Then read up on the different busting options. read as much as you can on the site and ask as many questions as you can, we are all here to help each other. I would also start a log of some sort to keep track of your attacks, just write down the start and stop times, how painful they are and what you did to abort them. You can add a million different thing to figure out what the cause was but that can make you nuts. People sometimes track what they eat, the weather and any sleep or activity changes that may have triggered it.
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