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ClusterBusters

FunTimes

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FunTimes last won the day on March 19

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About FunTimes

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  1. FunTimes

    Teetering on the Edge with Verapamil

    DM I have been on Verapamil for about 5 years now. I was at one time taking 240 3 times a day of the slow release. I changed over to the fast release and weened myself down to 120 one time a day. At this point I feel it is having the same effect as the 240 3 times a day was if not a little better. I have tried to stop taking it all together in the past and the shit hit the fan with clusters all day. I try to change things up with busting, D3 and verapamil to see what works the best for me. I add things like drinking ginger tea adding benadryl and melatonin to the D3 regimen. I will stop taking one thing to see if it makes any difference and I do this a few times a year to rule out any coincidence with the timing of me stopping any one thing. The bottom line is that it all sucks but you need to try all different things and stick with what works for you. My feet get numb from the verapamil but it is better then getting hit with 6 clusters a day so I stick with it. With my current medication plan I am getting 2 to 3 pain free days a week and that is something I have not had in a few years.
  2. FunTimes

    Verapamil

    Theory and implantation and share your busting stories is a good place to poke around for new ideas. You will find info on all kinds of alternate treatments. Ask whatever questions you have on that part of this site and people will answer you as it is a closed part of the board only open to members.
  3. FunTimes

    Psilocybin grows new brain cells

    Some have tried microdosing but I have not read many posts that it works as well as taking a larger dose every 5 days. The standard practice is taking at least 1 gram every 5 days for 3 doses. Some take more and do more then the 5 doses until it busts the cycle.
  4. FunTimes

    .

    You should start the D3 regimen as soon as you can, no harm in taking vitamins and seeing how they work for you. If that is all you need to keep your clusters down then that is great. You can use oxygen to abort the attacks and not need to worry about getting in any trouble. You can also take this as you try most other busting options without any blocking effects. As far as shrooms stop being effective? People on here have had that happen to them. They may not work for one cycle and you need to switch it up a little to get positive results. One thing with clusters is they are not the same for everyone and they can change for each cycle you have so you always need a few tricks up your sleeve to fight them off.
  5. FunTimes

    Electronic Aspirin

    I did this as a clinical trial in my area. I lasted just about 2 years and had it removed. It may have helped with a few clusters but I do not think my placement was correct so it had poor connectivity. Now I am left with numbness feeling in my upper lip, roof of my mouth and nostril on that side of my face. Lost a lot of my sense of smell and taste. Would I try it again? Probably if I was in the same place mentally I was when I signed up for the study just before I found this site. BOF.. No barcode but you do get a little card to get you through a meddle detector
  6. FunTimes

    Traveling (driving) with an Oxygen Cylinder

    I keep a m60 in my car a lot of the time. I built a little box that it sits in with 2 E tanks. You can just strap them to a seat back to make sure they do not fall over and break the regulator.
  7. FunTimes

    Cluster Itch..

    I will sometimes feel a itch or twitch and know the shit is about to hit the fan. That is when I start drinking down the 5hr drink and looking for the oxygen tank
  8. FunTimes

    POSSIBLE FIX

    e3r I have not changed any diet for verap. I eat like crap most of the time and smoke a pack of cigars a day. I can not drink beer anymore because that is a trigger but I can sometimes pull off a whiskey drinking day. Interesting enough, when I tie a load on with Whiskey I tend to get 3 days pain free after that.
  9. FunTimes

    strange changes to my clusters

    The oxygen concentrators do not put out enough pure oxygen to help abort your attacks. Concentrators will put out about 5 or 6 lpm max, you need up to 25lpm with a larger reservoir bag. You can make arrangements to have oxygen delivered to your hotel or you can pick it up at your destination but it will take a lot of calling around to make sure you get what you need for your vacation. I went on a cruise last year and was able to have o2 tanks delivered to my room on the ship. I had to tell them how many tanks I wanted and it was use it or lose it, no refund for unused tanks. You will need a prescription to show or send to the company you use at the destination you are going to so you might want to make a few copies to keep on hand.
  10. FunTimes

    POSSIBLE FIX

    I was on Verapamil 240mg 3 times a day but it was slow release and made my feet look like balloons. I have changed over to the fast release version and worked my way down to 120 once a day. I read on here that the fast acting works better for most so I figured I would give it a try so I had to change doctors to one who knew what I was looking for and what do you know.. people here really do know what they are talking about. This site is great. you will find all kinds of new information here that will help your life go just a little better every day.
  11. FunTimes

    Just ANY help.

    I would go find a good headache specialist to confirm you have cluster headaches. Clusters do not normally linger for days at a time, they come on in a instant and it is the same time of day every day. They can last a few months or Chronic (all year round). they go from zero to full blast in 5 to 10 minutes if untreated. Oxygen is used to abort the cluster and is taken at a high flow rate with a non rebreather mask to eliminate all outside air. 25lps regulator and the cluster mask are key to getting the oxygen to work. 5hr or other energy drinks are used to help slow down the attack so you can get to your oxygen tank and can some times abort the clusters. The D3 regimen is a few over the counter vitamins to get your vitamin d levels up into a normal range. Search around the site for a day or so and read up an as much as you can and ask questions as needed. This place is full of people willing to help you out.
  12. FunTimes

    POSSIBLE FIX

    what is the dose of the Verap that your taking now? Alot of people on this site have tried and need very large doses for any relief. Also have you tried oxygen to abort your attacks? High flow oxygen at 25lps with the proper non re-breather mask know as the cluster mask can abort a cluster in as little as 5 minutes. if you add a 5hr energy drink to the first sign of pain you can maybe get off the other meds that you are using to abort.
  13. FunTimes

    Hello - First timer

    Welcome to the party! Sorry you have to be here. A few things you will want to look into. Vitamin D3 posted on this site by Batch, this has helped alot of our members here and is just vitamines you can get from a local drug store like CVS Rite aid or Walmart Oxygen to abort your attacks with a high flow regulator and the cluster mask. This will help you get off some other abortive medications you may take. 5hr energy drinks can help hols a attack off until you make it to your oxygen and can also sometimes stop a cluster from developing into a full attack. Melatonin at bed time can help you sleep a little better and will help your overall mood from lack of sleep. and look on the members only boards, Theroy and busting stories, they will give you some ideas on how others use alternative methods to keep cycles from starting. Lots to read here and ask all the questions you have someone else probably already had that same issue and can tell you what helped them
  14. FunTimes

    Benadryl to bust imitrex rebound

    Do you have oxygen to abort your clusters with? Hi flow oxygen at 25 lps can abort a cluster in 5 to 10 minutes without causing any rebound headaches. I will down a 5hr energy drink and head to the O2 the first sign of a headache coming on.
  15. FunTimes

    Ibuprofen, d3 question

    I take all of the recommended suppliments for the D3 and sometimes add Benadryl if things flare up a little. I also take melatonin before I go to sleep at night. I am chronic so I do not get many days without getting a hit but I can tell you things were much worse before I added the D3 regimen and started busting.
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