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FunTimes last won the day on June 8

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  1. Could also try real Frankincense oil drip on the tongue, that has helped me just as good as the energy drinks.
  2. Monster, redbull, 5hr drinks all can help and tend not to keep people awake when used for clusters. You can also try strong coffee at room temp, ginger tea, candy or chew fresh. feet in very hot water and ice pack on your head on the cluster side. hyperventilating like you have your oxygen tank on full blast. Vigorous exercise like pushups, running jump n jacks. Any one of the things listed can help but can also make it worse, only you know your system but try it all out and find something that will help out as much as you can. Best of luck to you
  3. I have thought about this as well. I have never taken it alone, only in energy drinks. I think the addition of the caffeine in the drinks along with the taurine is what helps but I have never heard of anyone trying it alone as a supplement along with the D3
  4. after using this a few times It does work. thing is when dealing with pressures you will only be able to equalize the pressure in both tanks. I am using a M tank to refill E tanks and the first one I get about 3/4 of the E tank filled the second E tank off the M tank is down to about half. It is better that nothing when they stop refilling your E tanks and you need something portable.
  5. just logged on after some time.. Sorry to hear this but glad things are getting better for you.
  6. I had you in mind when I found this. I also have one on order and will let you know how it works out for me.
  7. Has anyone tried this setup or anything like it to fill smaller E tanks from a larger M tank? https://www.amazon.com/Preece-Precision-Transfill-Aviation-Veterinary/dp/B09GL4YN3G/ref=cm_cr_arp_d_product_top?ie=UTF8
  8. Just for shits and giggles it would be great to find a man to go in and see this doc with all the same symptoms exactly as you described and see what that outcome would be. Compare notes and present them to this doc. Not that that would be possible and I am sure someone would have an explanation for the different between the male and female treatments, it would just be nice to shove it up this guys arse.
  9. Annette Tell them you are going to pay out of pocket and I bet you the price will drop and you get a better deal. You just need someone on the other end of the phone that is willing to work with you. I think mine went down something like 200 bucks a month by paying out of pocket. Things have changed alot in the last 2 years and it is a constant fight with my oxygen company but stay on them and they will most likely give in to you. Last time I had to call I was told due to the oxygen tank shortage they are saving it for people who really need it, I told that to say that again and listen to the words coming out of her mouth. I had my 3 tanks delivered the next day. I am no longer allowed to get the smalled E tanks so they now only bring me larger M and M60 tanks. Makes no sense but more o2 for me so F them!
  10. What other medications are you taking? How else do you manage your clusters? You want to look into getting oxygen now it will change and save your life. You can abort a cluster in as little as 5 minutes with the correct setup
  11. OXYGEN. Read all about it here and get it as soon as you can.
  12. Thanks for the links Juss. I did start this study last week but have not seen any huge change in my clusters just yet.
  13. As far as the oxygen and insurance goes I pay for it out of pocket and it is actually cheaper then if insurance covered it. Yes it does not help my deductible but oh well. You have the script I would start calling around and set it up as soon as you can. Tell them your paying out of pocket and work a deal up. Take what they give you, the tanks are all you will most likely get from them that will be of any use. The regulator you will buy on your own and also the mask. To hold you over you can use 5hr type energy drinks to help slow down and sometimes kill off a hit if you get it early enough. Hot water foot bath with ice pack on your cluster side of your head, Hyperventilate breathing tech, vigorous activity. People try all kinds of things and sometimes they work and sometimes not but it gives you some hope!. Stick with it and you will find help, This site if full of helpful people that have goin through it all just like you are now. Kind of sucks but this is the place all the cool kids hang out and help each other. Here are a few links to the O2 supplies you will want to look into getting if you do get some tanks. Also use the search bar up top and look up welding oxygen. Ask tuns of questions and someone will help. This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1 ~OR~ wtfarley.com/Oxygen-Standard-Body-Click-Regulator-CGA-540 The mask can be found here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit
  14. Another migraine med that they are trying out with a trial for chronic clusters in my area. Anyone try it or hear anything about it?
  15. @Dallas Denny How are you feeling? Any better news from the doc this week? Also Happy Birthday to an old tough Marine yesterday and happy Veratrin day to you today! Hope all is well
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