FunTimes

I keep them in the car, the office and any other place I might be going to. I even take them on vacation with me. I figure they do enough work for me they deserve a little vacation too.

Poke around, read up and ask questions. You will be amazed at how many people are willing to help and share experiences. Key in on Oxygen and Vitamin D, they are the most recommended treatments to get started with.

Agreeing with both above! I was put on Verapamil at the start of my cluster journey. Wish I never started it to be honest. I have had no issues with my heart or anything like that but it did mess with the feeling in my legs when I was up at around 1040 mg a day. I have slowly tried to take myself off of the stuff and am now down to 120 one time a day. They say that that does nothing for clusters but I can tell for sure that s not true. I have cut that last dose out and was clean of all verap for about 5 days before I started getting my ass handed to me in a big way and jumped back on it. And because I love to torcher myself I have done this a few times with the same results. When I was new to the cluster game I did not know anything about them at all and like everyone else dealt with it thinking it was a toothache or something. I would get hit ere and there but nothing consistent. I started the Verapamil and an now chronic. I am not saying that is what made me chronic (my wife may say different) but it has been no lookin back since. Oxygen will be your best friend! 5hr drinks are your side hustle go to that you will tend to keep in your pocket at all times, Vitamin D helps a bunch of people and I feel does bring the pain down a few notches on that kip scale. Busting is not for everyone but definitely read up on it and not in the micro feel good about my life types, you need the cluster type who are trying to achieve a pain free life. Triptans are handy to have around for when you get stuck in a bad place and need that quick relief, and injection is the way to go for that. Just my 2 cents, I am not a doctor, this is just my experience. We are all different and you will need to tweak it as you go but the people on this site are pro's.

https://youtu.be/A8bA8sUG2Ig Just a little YouTube link to share with others about a few doctors discussing how they go about treating cluster patients. Not sure it was supposed to be shared but it may help someone or give another option that was not tried yet.

I think we all just learn to deal with it and take it as it comes. Not like we can really do much to avoid a hit, they come when they want to and hit as hard as they want to. Some have had success with busting other not so much. Sometimes it brings the pain down, makes it go away for a period of time or does nothing at all. No rhyme or reason that we know of. Just when you think you have it tamed things change and we blame it on the weather, moon or life event. I truly believe that we were all just picked to have clusters because we can deal with it like no others can. We are all the lucky ones that can honestly say they have a high threshold for pain and back it up by the countless hours we spend every week, month or year banging out head into our hands, walls floors or anything else that looks fun to take your mind off the devil inside you trying to escape. It is what it is but we are all lucky to have this site to get it out in the open with others that understand it. Just do your best and keep moving forward in hopes that someday we will have a cure for this infliction.

I feel I am lucky to have an employer that understands what I deal with. Maybe not 100% but they let me come and go as needed, keep oxygen tank in my office and work from home when needed. I am 100 % honest with them and they work with me. When shit hits the fan and I am in a bad cluster bout I work less, when things are good and I can I will make up he time I cut out when I could not make it a full day. I am chronic and get hit every day but the timing is still predictable but changes from day to night on occasion. I take the D3 regimen, oxygen, 5hr drinks and bust. Tweaking everything to find the best method for me. It still sucks and I still go into that dark place from time to time but it always works out in the end. If I did not have a understanding employer I do not know what I would do. Maybe you could employ someone to work for you so you can be more "hands off" when things flare up? Adjust your schedule around your clusters and let people know what you are dealing with. It could be a good way to spread awareness? Try to think of ways to make this shit condition work in your favor?

I use empty prescription bottles I have. I fill up as many days as I need to take with me and have kept them in my carryon bag and/or checked baggage. I have yet to be asked any questions. I only have flown in the US but have taken cruises wit no issues either.

I have also put regulators on my go to list when people ask me what I want for birthday/Christmas or anything else. Also mix in a mask once a year. I keep "extra" in the car home and work.

The last regulators I purchased a few years ago were here: https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator-CGA-540 I have no complaints. I did have one fail in the past and they did replace it for me.

I will sometimes have leg cramps but I think the cause is to much caffeine. What helps me is Bananas (potassium) drinking lots of water and stretching on the floor (fake yoga). Not sure if this will help you with the pred cramps but it does help me.

Not sure about TRT but I have read here that people had bad experiences with Cialis and Viagra type medications.

Try this link https://www.clusterheadaches.com/wwwboard2/index.html Looks to be up

No change in my clusters so far this week at all due to earth wind or fire. See you on the dark side of the moon!

I gave it a go a few years back. The first month it seemed to help by the 3rd month things were back to normal with my clusters. I have heard both good and neutral results about it, we are all a little different. If you can get it for a reasonable price I would say to give it a try. I was taking 3x's the migraine dose, I think it was like 100mg? 3 shots once a month. Make sure they are room temp when you use them or it will hurt.

I fish as much as I can, At the ocean and inland at local streams and lakes. I have not found any connection with fishing and clusters.