kat_92

@Bushcraft39 I also recommend very strong ginger tea, or ginger capsules that you can buy in the vitamin section. If you are confirmed CH the neurologist will probably prescribe you verapamil, which is decently helpful.

@Bushcraft39 welcome to the forum. I would start the D3 regimen immediately. If you search D3 in the search bar you will find all the info you need. This will most likely help lessen the frequency and intensity of the attacks once the vitamins finally kick in. Have you been to a neurologist? Are you able to get oxygen? It’s a life savor. I bust with MM myself and find it to be incredibly helpful. Keep us posted. kat

Schmerbals herbals or tranceplants.com

@Bradhey!! So glad to hear you’re doing better. I HATE seeing posts about people struggling with this keep up the determination

@HeadAgony hey welcome. I am chronic and I need to bust about twice a month when things are bad. And once a month when things are better. If you are episodic chances are you can drink and be merry (do whatever would normally trigger you). Busting DEFINITELY helps. If I don’t bust I need to avoid excessive caffeine etc. when I get a good few busts in, I can drink all the caffeine I want without a problem. Alcohol is one thing I have tried and need to still avoid. It is an instant trigger for me. I haven’t tried flying yet. I’m very nervous for that as well. Best of luck. Busting saved me

@MoxieGirlhey!! That really stinks. I’m glad you’re feeling better now. My mom suffered from migraines in her late teens and early 20s and the predrome/post drome is very real. It’s crazy. People who suffer with migraines long enough get predrome warnings that one is coming. It’s like a brain fog before it even hits. Headaches are so crazy

@Paula i got lucky and my primary care doc prescribed an O2 tank. He has since retired and I’m hoping to get my neuro to prescribe it in June when I go for my visit but I’m really keeping my fingers crossed. I am not sure about welding o2. I know there is someone else on the forum based in FL

Hey Paula, I can’t speak for the vaccine because I haven’t received mine yet. But I did get diagnosed with covid last week, and my CH have been unrelenting. I am chronic, and may-sept are particularly bad for me. So it might just be a coincidence? Hope your hubby feels better soon! kat

@jon019im feeling pretty sick, achy, fever etc and don’t think I should bust. Do you think I should? kat

Hey everyone I tested positive for covid yesterday. Since then I am experiencing a headache that is unreal. It feels like a long nagging heavy CH shadow. It is on my typical ch side, I have eye pain, temple pain and pain in my upper teeth. Has anyone else experienced bad ch with a covid diagnosis? I’m sad to say my busting schedule is now on hold kat

@Dipper I was on indomethacin for a while too because my doc thought we should give it a try. Absolutely horrible. I found that eating it with a meal (like a decent meal, not a snack) and drinking tons of water helped a LITTLE. But it made me feel drunk for hours. My headaches the day after taking it were worse than the ones I originally had. I mean I couldn’t even move my head. Anyway, it didn’t work for me, leading to my chronic CH diagnosis. It takes a few weeks to kick in so give it a chance if you can tolerate it. Good luck!

@FunTimesyou are a true hero! Thank you for helping the future

@Cast Iron so emgality is $2,300 with insurance. Unless that cures my clusters forever, I’m not doing it. That’s just absurd to buy a medication that may or may not work. So I will be turning down the emgality. I’m still considering amovig. Not sure on the price there either. Also, I am chronic. MM have been the only relief I’ve gotten thus far :/ kat

Hey guys. My doc wants me to participate in a amovig trial in a few months. I’m considering it. Does anyone have info on its affects on busting, or if it even works for clusters? What I have read online isn’t very promising. Thanks! Kat

@dmlonghornI have sleep paralysis pretty regularly. Only when I fall asleep on my back. But I suffer from stomach issues so it’s more comfortable that way. If I hit deep sleep while on my back I will almost certainly get sleep paralysis. I had it last Saturday actually. Only ever lasts about 30 seconds to 1 min. Never had a headache during though. THANK GOODNESS. Kat