kat_92

I hate to say this but there is no money in it for them. If they knew how well vitamins work they would be in a panic. Look how hard they try and push injections and meds that are hardly covered by insurance…in the United States the medical industry is a thriving market. Unfortunately, the sicker we are and the more pain we are in, the more money they make. Thank goodness every day for this site, D3, busting, and you kind folks.

Hey everyone. I’ve been MIA for a while…which can be a good thing? I’ve been headache free for about 6-7 weeks now. Not even shadows…very strange since I am chronic. The only days that have been funky are if I don’t sleep enough or have way too much caffeine (like yesterday ) I did my last bust maybe 2 months ago? A side note, I have completely changed my diet. I mentioned earlier that I have been working out, so I am eating much healthier. I’m eating around 120g protein per day since I am trying to gain. I have stopped the protein powder I was using since it was giving me migraines (not CH, but still unpleasant). I am still RELIGIOUSLY on the d3 regimen that I started in 2019. I take verapamill 80mg 3x per day. These headaches are so strange. I haven’t had to use my 02 tank though! It is collecting dust I hope everyone is doing well and finding what works for them. kat

Update: I haven’t taken the protein powder for 2 days now and I haven’t had a headache since! There must have been an ingredient in there that triggered a headache. Boy was it weird. Now I’m out $30

It’s not whey protein, I’ll have to check if it’s soy. I also started eating deli meat again….could be the culprit

Happy new year all! looking for advice from any gym rats on this forum. I just got into working out heavily in the past 6 months. I’ve been upping my protein intake with food and protein powders. The last week I have the worst throbbing headache on the opposite side of my face, not my ch side. Pain is ONLY behind my eye. It throbs for about 10-20 seconds and then subsides. It comes in waves about every 20 minutes. It is soooo bizarre. I do not think it is CH, they rarely change sides. This feels almost more like a migraine? I’ve had this before when ingesting soy sauce. It eventually went away. I’m wondering if this is constant because I have been taking protein powder every day. I googled it and I can’t find any concrete connections between high protein and headaches. I know the easiest experiment would be to stop the protein and see if they go away, but I’m trying to change my life style. Any help? thanks! Kat

This is an interesting topic. I really do not know the reason for CH. I do not think there is any correlation between the 2. I also read that it is hereditary. No one in my family(literally no one) suffers from any kind of headaches. But then again, the D3 regimen works so well for some which is an over all immune builder. I am a very healthy 29 year old female, and I have chronic CH. the news hit me like a ton of bricks

Have you tried Benadryl or melatonin? Do you normally struggle with Ch at night? Chronic or episodic? I take Benadryl every night for allergies and it helps me sleep.

If you google cluster headaches while flying, there’s tons of info. Apparently “airplane headaches” are super common. Symptoms sound very similar to CH. so strange

I’m always interested in this topic. I am chronic CH, and I have missed vacations with family and loved ones because I am PETRIFIED to fly. I have shadows all day every day, and I know for a fact I’d get a ch while on the plane. The only thing I would consider is doing a very VERY strict busting regimen for 2 weeks before, and carrying Red Bull’s with me….possibly taking Xanax to the point I don’t even know what’s going on. Soooo yeah. It sucks. I am maid of honor in my best friends wedding coming up. She wants to go to Puerto Rico for her bachelorette and I might miss it what is ketamine (stupid question), and how do I qualify for that? The verapamil seems to be doing the trick for now…but it makes me ever so sleepy. best to all! Kat

@BoscoPiko I am chronic and I take 2 ginger capsules per day. They’re high in ginger. Works wonders

@Freud yeah because even if it lessens the intensity a tiny bit, something is better than nothing. That’s how the regimen works for me. I still have headaches every single day, but they’re more like intense shadows rather than attacks

After 4 days with the first shot, I can confirm it DID aggravate my clusters damn. Going through it right now. I’m pretty miserable. Wishing I hadn’t even gotten the vaccine. I had a feeling this was gonna happen. I’ll bust on Sunday. kat

@Freud I’m so sorry you’re going through this. Reading your post made me tear up, and is all too relatable. Have you ever tried the d3 regimen? I noticed you didn’t mention it. It might be worth a try? Please don’t give up. There’s not many of us chronics out there, but those of us that are need to stick together. I’m going through it myself. The covid vaccine made my clusters angry. You have all the support on this website, I can promise you that. Take care, stay strong, keep us posted. all the best Kat

Thanks for the replies! I feel more migraine type headaches than actual clusters. I’m worried the second shot will throw me for a loop. I had pretty bad side affects to the vaccine yesterday. We shall see kat

Hello everyone! this post is a bit of a check in and update:) my headaches have been manageable as of late (knock on wood). I had covid back in May, and it threw my clusters for a loop. I was waiting to get the vaccine until I got my oxygen tank prescription renewed (on sept 8th). I got the first shot today; and I feel a headache coming on wish me luck. Anyone’s clusters affected with the shot? I know there have been multiple posts on this already. also, I am chronic (summer my worst months) All the best kat