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kat_92 last won the day on April 13 2023

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  1. Hi @Danii am so so sorry I’m just seeing this now. How is your partner? Shrooms are the only thing that have worked for me in the past following the regimen recommended by the folks on this site. Have you all given those a try? Very strict instructions on those though. Various medication interferences etc.
  2. @Bejeeber yes I just really dislike busting in general, so I only really do it if I HAVE to…I work a lot too so it’s hard to find a day to dedicate to it. We shall see
  3. Hello friends, I am still on the mend, I hope I don’t jynx myself. I have had a relatively good year headache wise (knock on wood). I’ve been feeling depressed lately. I’m hoping this doesn’t mean a cycle is brewing. Summer time happens to be my least favorite time of the year. I live in Miami and it’s always 100 degrees lol. anywho. I just wanted to check in with you all. I hope everyone is hanging in there kat
  4. I decided to stay on the verapamil! Thanks all for the responses
  5. Oh no!!’ Omg okay I won’t stop it then. That’s terrifying
  6. Hey all i am not currently in cycle, and I’m debating if I should come off the verapamil. I understand it’s used most effectively only during cycles. Is that right? I have been on it every day for about 2 years now. Unfortunately since I cannot pin point my cycle dates yet it is hard for me to determine when I should start taking it again. Does anyone have any experience with this? Have you found it to be less effective when controlling a ch cycle after being off of it for a while? Let me know!
  7. Red Bull free today was suckishhhh Feeling good now though!
  8. Hey guys, im not even in cycle right now, but I’ve of course gotten addicted to Red Bulls again. I think this happened when I took my trip last month and I drank a few to prevent a hit. I’m at the point where I HAVE to have one everyday if not…it gets ugly LOL. I get a withdrawal headache. I’m sure you are all familiar with these. I have 2 days off, so I think I’m gonna go cold turkey and cut them out. I don’t love red Bull but I just can’t help it with how well they work for clusters. So strange. Anywho. I’m taking ginger capsules and Tylenol to help, but no dice. Wish me luck!
  9. kat_92


    @suze hi there. that happened to me when I first started using it. Not sick though. Just shaky and dizzy. For me it was because I was so worried I wasn’t using it right, and wasting oxygen. It was an emotional experience. I don’t mean for that to sound dramatic but it was from having the tank in my house, to learning how to breathe with it. You’re not alone
  10. @mikeh2017 hi! My flight was much much shorter than yours, only about 2.5 hours. So I am not sure if this would make a difference. I have a feeling you are more likely to get hit during take off and/or landing when there is a rapid altitude change. As opposed to once the plane has reached its cruising altitude. I had ice cold Red Bull ready with me. I also had no caffeine the day before each flight. I began the loading dose of the d3 regimen for a week prior to the flight. I think this particular bit helped tremendously. Also, I drank tons and tons of water to make sure I wasn’t dehydrated in any way. That is a big trigger for me. I took 2 500 mg Tylenol 30 min prior to take off and landing. I also dosed with shrooms about 2 or 3 times leading up to the trip. I’m not sure on what your access is via this route. It would help to note I am not currently IN cycle, but I have found that for me, even when I’m not in cycle I can trigger an attack. Drinking alcohol, not enough water, lack of sleep etc. I hope this helps!
  11. Really feeling the love here guys! Thanks all again for the suggestions. Now I’ve been shopping for cute luggage online because I want to TRAVEL!!
  12. @CHfather thank you to your continued support to myself and the community. It was an amazing time!!
  13. Hey everyone. I posted earlier but I don’t think it went through. So I have been posting for years in this chat now about my fear of flying (in our out of cluster season). And I finally flew. It was a short flight, so I cannot comment further on length affecting a cluster. My flight there I had zero shadows or headaches during ascent or descent. I had almost a gallon of water leading up to the flight (the day before and that morning). I upped my verapamil dose by 80 mg and I loaded on the d3 regimen a week prior. I had a Red Bull at the ready, just in case. Also 2 500 mg Tylenol before take off and landing, and a ginger capsule. coming home: I went on no sleep the night before because my flight was at 5 am. This was dumb but I didn’t really have a choice. I was SURE this would trigger me, also it was daylight savings time. I drank about the same amount of water the day before and leading up to the flight. I bought a Red Bull, and I also prepped by taking 2 500 mg Tylenol. During ascent I started to feel tight pressure on my cluster side, no pain, just pressure. I chugged my Red Bull, and it went away instantly. I stayed hydrated the rest of the flight, and felt no further pressure during descent. I did not need to use any suma injection or steroid taper. I am not currently IN cycle, but I find with my clusters If I hit one of my triggers I will get an attack regardless. I am very VERY excited over this. My fear of travel has been depressing for the last few years. I hope this info helps everyone
  14. @BoscoPiko hi! Oh boy, did I take Xanax lmfao. I have anxiety for flying in general putting the headaches aside. But yes, I think it helped. I am about to board soon for my trip home. I understand about your concern over the length of the flight. My flight was pretty short. I’m not sure what I would do in that situation
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