kat_92

@BoscoPiko I am chronic and I take 2 ginger capsules per day. They’re high in ginger. Works wonders

@Freud yeah because even if it lessens the intensity a tiny bit, something is better than nothing. That’s how the regimen works for me. I still have headaches every single day, but they’re more like intense shadows rather than attacks

After 4 days with the first shot, I can confirm it DID aggravate my clusters damn. Going through it right now. I’m pretty miserable. Wishing I hadn’t even gotten the vaccine. I had a feeling this was gonna happen. I’ll bust on Sunday. kat

@Freud I’m so sorry you’re going through this. Reading your post made me tear up, and is all too relatable. Have you ever tried the d3 regimen? I noticed you didn’t mention it. It might be worth a try? Please don’t give up. There’s not many of us chronics out there, but those of us that are need to stick together. I’m going through it myself. The covid vaccine made my clusters angry. You have all the support on this website, I can promise you that. Take care, stay strong, keep us posted. all the best Kat

Thanks for the replies! I feel more migraine type headaches than actual clusters. I’m worried the second shot will throw me for a loop. I had pretty bad side affects to the vaccine yesterday. We shall see kat

Hello everyone! this post is a bit of a check in and update:) my headaches have been manageable as of late (knock on wood). I had covid back in May, and it threw my clusters for a loop. I was waiting to get the vaccine until I got my oxygen tank prescription renewed (on sept 8th). I got the first shot today; and I feel a headache coming on wish me luck. Anyone’s clusters affected with the shot? I know there have been multiple posts on this already. also, I am chronic (summer my worst months) All the best kat

Good afternoon all! So I’m sure many of you saw I was having trouble getting my hands on MM, which has been the only relief I had for my chronic CH in the last year. I recently got back into working out heavily, thus having to increase my water intake. I am drinking almost a gallon a day. I haven’t had a single shadow in over a week. I had ONE mild CH last night that went away after about 5 min. I highly recommend everyone upping their water intake significantly if you don’t already drink a lot. I am convinced this helps ease CH. stay hydrated! kat

Hey Shaun. Try purchasing ginger capsules. I have a really good organic brand that I get at a store here in the states. I usually take 2 capsules a day. I’m also on the d3 regimen all year around. I would look into that ASAP

@Dana129 that’s such awesome news!!! What have you been doing as a preventative? kat

@Bejeeber thanks. It’s been over 2 weeks and I haven’t had another occurrence. I’m thinking it was a migraine provoked by the soy sauce. It wasn’t very cluster-ish.

@spiny hey! Haven’t had the occurrence again since that Monday so I think it was a fluke. Unless my CH is in the process of switching sides? But I am staying far away from soy sauce/ high sodium foods for a while. It was quite debilitating. Still can’t get a hold of any MM relying on vitamin D and verapamil until I can get it. Last year my headaches were a breeze because I was on a really strict busting regimen. I’m convinced it’s the only preventative that works...for me at least. kat

Hey! You actually need 2 magnesium’s per day during the loading stage to absorb the vitamin D. Take one in the morning with food and one at night with food. If not you might get diarrhea. kat

I also feel like so much information out there about CH is wrong and leads to a misdiagnosis. It could very well be CH changing sides, but God forbid you mention this to a neurologist because “textsbook CH never change sides”

@Tony Only hey! Yeah it was around 4 hours and I still have a dull pain behind both eyes at the moment. Feels more like a shadow. I’ve never felt a throb like this. And it was coming in waves for 4 hours. I guess I’ll find out if it’s CH if I get it again at 8:30 tonight. I’m hoping it was just the soy sauce that I ate. I’m not sure. I felt dizzy and out of it at the time. Almost like my vision got a little blurry. I also slept until 11:30 today which I never do. I just felt “out of it”. It was odd

Hey everyone, last night I had the weirdest headache I’ve had thus far in this horrid journey. For 2 years now my shadows/ CH have been on my left side. Never on the right. I’ll get a tension headache on the right but never a CH. I went out for sushi last night and at 8:30 I got a throbbing pain that was 8/10 directly behind my right eye and my right temple. It lasted from 8:30 til 1 am when I eventually fell asleep. It would throb for about 30 seconds, go away for 2-5 min, and come back and throb again. It was soooo strange. I don’t think it was a Ch, maybe a horrible migraine? I had no other symptoms with it. What do you guys think?? kat