kat_92

It sounds like classic cluster headaches from what you’re describing and I’m sure the more experienced members will answer you soon. I was prescribed Fioricet as well for “migraines” like 5 years ago. It probably won’t help you that much for this condition. I recommend you start the d3 regimen right away. Many sufferers find relief within a week to one month. It’s something you take all year round. @Batch developed it and he’s very knowledgeable on this. Put d3 into the search bar in the home page and you will find everything you need. I have found everyone on the forum to be more helpful than any doctor I’ve seen (5 neuros over the last 5 years and 1 primary care doc) pretty scary. Hope you find relief soon! You will kat

I split the vitamins up into 3 in the morning and 3 at night. Always take them with a meal. I was instantly vomiting after taking them all on an empty stomach which Wasn’t smart on my part. Good luck!

My doctor also prescribed indomethacin just to rule out Hemicrania continua; I wasn’t able to tell if it really did much for the headaches because I am also on the d3 regimen. So it was hard to tell which was doing the heavy lifting. I will say this about indomethacin, I’m not sure if I am the only one who experienced horrendous side effects. I would instantly get super dizzy and nauseous after taking it. Also the next day I would wake up with a headache so bad I’d have to cancel all of my plans. I couldn’t even move my head. Not sure which one felt worse honestly. I called my doctor and they advised me to take it right after eating (a meal not just something small) and take it with an entire bottle of water. I wish you the best of luck! Kat

The only reason I ask is because it’s been 3 days of non stop tooth pain like badddd pain and it does not correlate with pain behind my eye or anything. I think it’s my tooth because I knew they were coming in

Has anyone had their wisdom teeth affect the specific side of their face? The cycle for my attacks started early July and while my tooth/jaw pain was mild, the last 2 days I haven’t even been able to chew on the left side (my cluster side) I looked in the mirror and saw my wisdom tooth might be coming in. Wondering if this pain is related to clusters (they’re getting worse?) or my wisdom tooth. The back molar is sore to the touch. The pain is also there all day long, no flare ups with headaches. Kat

@Trent are you chronic or episodic? I’m still learning how to use the o2 this is my first real cycle

@Brain on fire I will be ordering that in the next few days. I find the non rebreather mask I was provided with super awkward to hold on my face

@Trent what is your usual abort time with this method? I know every attack is different but I am just curious. Also are you on any other preventatives that may affect your attack strength and duration? Like the vitamin d3 regimen, MM or having energy drinks prior to O2? Kat

@CHfather thanks so much for the info! @Brain on fire yes definitely some experimenting is in order. I’ll try the above technique next time I use the tank.

Wishing everyone a nice weekend so far. I had my first attempt at using the oxygen tank. The delivery guy provided me with their own regulator while I wait for mine in the mail. The one they provided only goes up to 8. As assumed the bag was not filling back quickly enough. I purchased the one from wtfarley that is 0-25. What has everyone found to be the best breathing technique that works for them? Thank you! Kat

Hey all I’m so excited to update that I FINALLY got an oxygen tank! What a mission. The delivery guy is super nice and said most of his deliveries are for people with clusters. He also gave me 4 non rebreather masks for free Hope everyone is well today Kat

The bio tech water soluble D3-50 mature multi vitamin-Kirkland brand (I got mine on amazon) fish oil burpless magnesium 500 mg. k-2 advanced (I got mine on amazon) this is Batch’s exact list and I’ve been following it

Update: I found a medical o2 supply that provides the tank and refills and delivers them to the house for you. $156 deposit and 78$ any time you need a new tank. There is no monthly fee. It’s an M tank size. The guy said with a regulator delivering 15 lpm it should give you 3 hours of time. I’ll have to experiment and see if that’s true or not. What are the opinions on demand valves? It seems to me like they are totally worth it but they are on the pricy side. Thoughts? Hoping everyone has pain free days ahead. Positive news is positive news no matter how small! Kat

@Transcona gal okay I would appreciate the information! I don’t think that means you’re becomming chronic but maybe you need to up the dose you are taking? Kat

@Transcona gal yes the Praxair in my town is permanently closed so I was going to go through Airgas. Can you tell me exactly what sizes you bought, which regulators etc. also, are you chronic or episodic? Are you doing any preventatives at all? Like vit d regimen or anything. Kat