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kat_92

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Everything posted by kat_92

  1. kat_92

    Melatonin and clusters

    hello all the last two nights I’ve been taking melatonin to help me sleep through the night. I’ve been having terrible anxiety. It’s been causing nausea and vomiting. Almost like I’m anticipating an attack. I read that melatonin can sometimes be effective in stopping nocturnal clusters. The reason I’m asking is because the last two nights I’ve taken it, about 30 minutes into it I feel like I’m having a mini attack, it lasts only about 2 minutes. Should I stop taking it? I don’t see my doctor again until the 24th. I’m going to see if I can get a script for indomethacin to rule out other TAC. Kat
  2. kat_92

    Melatonin and clusters

    Yes he is. @FunTimes I got blood work done but I haven’t gotten the results yet. Kat
  3. kat_92

    Energy drinks

    @Brain on fire that’s awesome! Mind if I ask how long you’ve been pain free? What started giving you results?
  4. kat_92

    Melatonin and clusters

    I cut the melatonin in half last night to see if it makes a difference. I thought the headaches were getting better but it feels like it did when they first started out. Not sure if that means the cycle is coming to an end. I am very discouraged I had such high hopes for the d3 regimen. I’ve been on it for almost a month. I still may have one of the Hemicranias. It just sucks I have to wait until the 24th to see the doctor and get a prescription
  5. kat_92

    Need to vent about something I saw on reddit

    Hopefully by catching it early, starting to be religious about taking the d3 regimen, other preventatives and oxygen you never reach that point
  6. kat_92

    New, English and Confused .

    Hey there! i am new to CH as well and to cluster busters. I’ve found that the people on this forum are super helpful and comforting to newbies like us. Unfortunately, the insurance situation in this country is atrocious. There really isn’t anything you can do about it. Even if the doctor, who has experience and went to school prescribed something they can deny it if they want. I’m sure some of the more experienced members will be chiming in soon regarding their oxygen set ups etc. I’ve been relying solely on the vitamin d regimen. There is a lot of informative information on that thread regarding vitamin d and reduction in clusters. If you go to the first page of general board there is a vitamin d thread. I’d purchase the vitamins as soon as possible and get started. Best of luck kat
  7. kat_92

    Females and O2

    I recently read an article that says only about 60% of women with cluster headaches respond to oxygen therapy. I was just curious to hear from some of the women in the forum and how well you respond to O2. I’m going to try and get a script for O2 next time I see the doc. Sept 6 marks 8 weeks from this cycle :/ kat
  8. kat_92

    Females and O2

    Wow thank you all for the informative responses. I’m really hoping I don’t have a hard time getting a prescription for it. Looking into busting for next cycle as well. Kat
  9. kat_92

    Females and O2

    Yes that would explain why I was diagnosed with migraines for 5 years prior. I did not have one single migraine symptom. And to make matters worse, I was on topamax for 3 years! That drug ruined me while I was on it. I felt like absolute crap. I could barely balance, I was losing the ability to think quickly, it was terrible. I am positively looking forward to O2. I’m sure ch gets manageable once you have all the appropriate tools at your disposal. I went almost 3 years before the headaches started again. Thus far I am only doing the d3 regimen. My ch are very mild this particular cycle. My doctor says they get worse with age typically, or I might just have “atypical ch” and they will stay this strange the rest of my life. There is no telling. Kat
  10. kat_92

    Females and O2

    I came across it while I was reading about melatonin and cluster headaches. It was on my computer I’m on my phone at the moment. Will try and send it tomorrow.
  11. kat_92

    Gone , but not quite yet?

    I’ve been experiencing shadow type headaches for like 2 weeks now. Not sure if it’s breaking up or if the vitamin D is doing it’s thing. There was a hurricane here as well a few days ago so the weather has been acting strange. Probably why I felt pain yesterday. It sucks that the drink caused it to fight back but the beer test is typically a good way to see if it’s gone :/ hopefully it goes away soon! Kat
  12. Greetings from Miami i finally saw a primary care doctor yesterday (worked in the ER for 20 years) and he has been the only doctor who sat and listened to me and took good notes. He diagnosed me with atypical cluster headaches. Said they present like clusters without the autonomical signs (runny nose, tearing etc.) wow. I can’t believe someone finally with some intelligence. He told me they tend to get worse over time (yay). I explained the D3 regimen and he did bloodwork on the spot. Should have the results soon. He also prescribed a steroid to try and break the cycle. I guess I’ll go from there? Once I’m feeling better I’m sure I’ll be able to try and fight for oxygen. I’m interested in dosing during pain free periods. Unfortunately I feel like the D3 isn’t working for me. Tomorrow will be my last day taking the 50,000 daily with all other supplements. I wonder since my clusters aren’t “full blown” maybe that’s why the pain is the same. If I can describe the pain, it almost feels like a terrible attack wants to come out but something is holding it back...for now. My pain gets bad but no where near what I’ve read people go through. Just wanted to give an update and any other info is appreciated. How do I get my hands on oxygen for the future. Thanks kat
  13. kat_92

    Finally a diagnosis and D3 update

    The D3-50 water soluble only require one a week per Batch. So definitely a bigger bang for your buck. I know they work faster and require less refilling.
  14. kat_92

    Finally a diagnosis and D3 update

    The D3-50 water soluble only require one a week per Batch. So definitely a bigger bang for your buck. I know they work faster and require less refilling.
  15. kat_92

    Success stories with vit d

    Hey friends As a category 1 hurricane approaches Miami it has been storming cats and dogs the last few days. I’m attributing the change in weather to my more migraine like headaches. Kinda all over my head and my whole face feels pressure. Oddly enough these don’t make me panic. But, I’m writing because I switched over to the water soluble vitamin D tablets that Batch had updated in his research. They seem to be working much better than the gel capsules! I’d love to hear people’s long term success stories regarding the regimen as a preventative for clusters. How long did it extend your remission period, intensity of attack’s when they returned, etc. Happy hump day
  16. kat_92

    Interesting read

    https://www.ncbi.nlm.nih.gov/m/pubmed/15836591/ I have been so interested in the reasoning behind my lack of autonomical symptoms. Lack of autonomical symptoms are more present in females, chronic sufferers and suggests a “milder” form of CH. I am still on the D3 regimen. I’m finishing the 2 week loading dose Wednesday. I switched to the water soluble vitamins as per Batchs’ findings. Just finished the prednisone today and it didn’t do anything for my headaches. Just gave me crazy cravings and stomach pain. Hoping everyone is well as can be. Kat
  17. kat_92

    Question about prednisone

    Hey all! Its my second day on the prednisone steroid prescribed by my doc. I’m asking anyone with experience taking the prednisone. Is it supposed to break the cycle completely until the next one? Or is it just supposed to give me a few pain free days? Seems to be helping I still have some mild pain behind my eye. Thanks
  18. kat_92

    Question about prednisone

    Would it be safe to take verapamill and the d3 regimen at the same time? I have one week left of the loading dose and then I will be on the matinence dose. I don’t want to inquire about verapamill unless it’s safe to take both.
  19. kat_92

    Finally a diagnosis and D3 update

    I’m seeing him on sept 24th again. I’ll mention the HC. I also did not mention the oxygen. I think he’s gonna see what the steroids do and go from there. It’s seeming I’m getting more answers from a GP than the neuro I have to be honest. He said he diagnosed quite a few cluster headaches over his years working in the emergency room. Today, for example, I woke up feeling just fine (as I usually do), I slept through the night. I have a headache as I’m typing this. Pain is about a level 3 and it is presenting on the right side temple of my head. It’s almost always on my left (99%) of the time. An ice pack directly on the spot usually does the trick. I want to get a script for indomecathin and see if that does the trick. At least then I’ll know what I’m dealing with. Thank you again for all the informative caring responses.
  20. kat_92

    Finally a diagnosis and D3 update

    He seemed open to my suggestions so I’ll mention that to him at our next visit. There was so much info I honestly forgot to mention it.
  21. kat_92

    Finally a diagnosis and D3 update

    I wonder if that makes it easier to treat or more difficult? I’m praying for easier
  22. kat_92

    Finally a diagnosis and D3 update

    Okay thanks for the info. I’m not sure what the word atypical means in the situation. I know it actually means “not typical” but does atypical in medical terms mean that it’s being brought on by something? The doc seemed very confident in his diagnosis. I’m getting the MRI next wed I guess we’ll find out then. Wishing everyone pain free days ahead. I’m kkow I’m ready for some
  23. kat_92

    Finally a diagnosis and D3 update

    Yes i am scheduled to get another MRI with this doctor. I’ve been on the D3 for like a week now. I did have like half a beer the other night and I was so mad at myself because I knew it would trigger something. Just hoped it wouldn’t
  24. kat_92

    Vitamin d3 regimen

    Hey all! im starting my second month of painful headaches. They are starting to feel more like clusters each time they occur. I don’t have the best insurance so I am stuck with my current doc at the moment. He is CONVINCED it is neuromuscular. Despite my telling him about the times it occurs during the day and my ocular pain. I am very interested in the vitamin d3 regimen. I read the entire study I saw that was posted by Batch. I just today purchased the correct vitamins for the regimen. My question is, is the regimen more of a preventative treatment, or will it abort the current cycle I am in? My birthday is coming up and I am very depressed about what’s going on. It’s most frustrated giving money to a doctor who does not know what I’m going through. Any and all help is appreciated. Anyone who has been on the regimen for a good amount of time? Thank you
  25. kat_92

    Vitamin d3 regimen

    Okay thank you! I just received the rest of the supplements in the mail. I unfortunately already have the oil based d3 so I will be using that. Can I take the loading dose of d3 with simply the multi vitamin as an appropriate amount of calcium? Or should I be taking pure calcium during the loading dose? Kat
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