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Everything posted by kat_92

  1. Hey guys, it’s been a while! I have been headache free for weeks. Some mild dull headaches here and there. I have not had the need for 02 in a long time. My tank sits full and dusty. I am on verapamil daily and shrooms every 2 months. Here’s hoping the fall won’t trigger anything for me. Summers are usually hell on earth for me. I cruised through. I hope you all are well. I haven’t forgotten how much help you have all given me in vulnerable painful times. But I am glad I haven’t had to be on here as frequently. Pain free wishes to all! kat
  2. I hate to say this but there is no money in it for them. If they knew how well vitamins work they would be in a panic. Look how hard they try and push injections and meds that are hardly covered by insurance…in the United States the medical industry is a thriving market. Unfortunately, the sicker we are and the more pain we are in, the more money they make. Thank goodness every day for this site, D3, busting, and you kind folks.
  3. Hey everyone. I’ve been MIA for a while…which can be a good thing? I’ve been headache free for about 6-7 weeks now. Not even shadows…very strange since I am chronic. The only days that have been funky are if I don’t sleep enough or have way too much caffeine (like yesterday ) I did my last bust maybe 2 months ago? A side note, I have completely changed my diet. I mentioned earlier that I have been working out, so I am eating much healthier. I’m eating around 120g protein per day since I am trying to gain. I have stopped the protein powder I was using since it was giving me migraines (not CH, but still unpleasant). I am still RELIGIOUSLY on the d3 regimen that I started in 2019. I take verapamill 80mg 3x per day. These headaches are so strange. I haven’t had to use my 02 tank though! It is collecting dust I hope everyone is doing well and finding what works for them. kat
  4. Update: I haven’t taken the protein powder for 2 days now and I haven’t had a headache since! There must have been an ingredient in there that triggered a headache. Boy was it weird. Now I’m out $30
  5. It’s not whey protein, I’ll have to check if it’s soy. I also started eating deli meat again….could be the culprit
  6. Happy new year all! looking for advice from any gym rats on this forum. I just got into working out heavily in the past 6 months. I’ve been upping my protein intake with food and protein powders. The last week I have the worst throbbing headache on the opposite side of my face, not my ch side. Pain is ONLY behind my eye. It throbs for about 10-20 seconds and then subsides. It comes in waves about every 20 minutes. It is soooo bizarre. I do not think it is CH, they rarely change sides. This feels almost more like a migraine? I’ve had this before when ingesting soy sauce. It eventually went away. I’m wondering if this is constant because I have been taking protein powder every day. I googled it and I can’t find any concrete connections between high protein and headaches. I know the easiest experiment would be to stop the protein and see if they go away, but I’m trying to change my life style. Any help? thanks! Kat
  7. This is an interesting topic. I really do not know the reason for CH. I do not think there is any correlation between the 2. I also read that it is hereditary. No one in my family(literally no one) suffers from any kind of headaches. But then again, the D3 regimen works so well for some which is an over all immune builder. I am a very healthy 29 year old female, and I have chronic CH. the news hit me like a ton of bricks
  8. Have you tried Benadryl or melatonin? Do you normally struggle with Ch at night? Chronic or episodic? I take Benadryl every night for allergies and it helps me sleep.
  9. kat_92


    If you google cluster headaches while flying, there’s tons of info. Apparently “airplane headaches” are super common. Symptoms sound very similar to CH. so strange
  10. kat_92


    I’m always interested in this topic. I am chronic CH, and I have missed vacations with family and loved ones because I am PETRIFIED to fly. I have shadows all day every day, and I know for a fact I’d get a ch while on the plane. The only thing I would consider is doing a very VERY strict busting regimen for 2 weeks before, and carrying Red Bull’s with me….possibly taking Xanax to the point I don’t even know what’s going on. Soooo yeah. It sucks. I am maid of honor in my best friends wedding coming up. She wants to go to Puerto Rico for her bachelorette and I might miss it what is ketamine (stupid question), and how do I qualify for that? The verapamil seems to be doing the trick for now…but it makes me ever so sleepy. best to all! Kat
  11. @BoscoPiko I am chronic and I take 2 ginger capsules per day. They’re high in ginger. Works wonders
  12. @Freud yeah because even if it lessens the intensity a tiny bit, something is better than nothing. That’s how the regimen works for me. I still have headaches every single day, but they’re more like intense shadows rather than attacks
  13. After 4 days with the first shot, I can confirm it DID aggravate my clusters damn. Going through it right now. I’m pretty miserable. Wishing I hadn’t even gotten the vaccine. I had a feeling this was gonna happen. I’ll bust on Sunday. kat
  14. @Freud I’m so sorry you’re going through this. Reading your post made me tear up, and is all too relatable. Have you ever tried the d3 regimen? I noticed you didn’t mention it. It might be worth a try? Please don’t give up. There’s not many of us chronics out there, but those of us that are need to stick together. I’m going through it myself. The covid vaccine made my clusters angry. You have all the support on this website, I can promise you that. Take care, stay strong, keep us posted. all the best Kat
  15. Thanks for the replies! I feel more migraine type headaches than actual clusters. I’m worried the second shot will throw me for a loop. I had pretty bad side affects to the vaccine yesterday. We shall see kat
  16. Hello everyone! this post is a bit of a check in and update:) my headaches have been manageable as of late (knock on wood). I had covid back in May, and it threw my clusters for a loop. I was waiting to get the vaccine until I got my oxygen tank prescription renewed (on sept 8th). I got the first shot today; and I feel a headache coming on wish me luck. Anyone’s clusters affected with the shot? I know there have been multiple posts on this already. also, I am chronic (summer my worst months) All the best kat
  17. Good afternoon all! So I’m sure many of you saw I was having trouble getting my hands on MM, which has been the only relief I had for my chronic CH in the last year. I recently got back into working out heavily, thus having to increase my water intake. I am drinking almost a gallon a day. I haven’t had a single shadow in over a week. I had ONE mild CH last night that went away after about 5 min. I highly recommend everyone upping their water intake significantly if you don’t already drink a lot. I am convinced this helps ease CH. stay hydrated! kat
  18. Hey Shaun. Try purchasing ginger capsules. I have a really good organic brand that I get at a store here in the states. I usually take 2 capsules a day. I’m also on the d3 regimen all year around. I would look into that ASAP
  19. @Bejeeber thanks. It’s been over 2 weeks and I haven’t had another occurrence. I’m thinking it was a migraine provoked by the soy sauce. It wasn’t very cluster-ish.
  20. @spiny hey! Haven’t had the occurrence again since that Monday so I think it was a fluke. Unless my CH is in the process of switching sides? But I am staying far away from soy sauce/ high sodium foods for a while. It was quite debilitating. Still can’t get a hold of any MM relying on vitamin D and verapamil until I can get it. Last year my headaches were a breeze because I was on a really strict busting regimen. I’m convinced it’s the only preventative that works...for me at least. kat
  21. Hey! You actually need 2 magnesium’s per day during the loading stage to absorb the vitamin D. Take one in the morning with food and one at night with food. If not you might get diarrhea. kat
  22. I also feel like so much information out there about CH is wrong and leads to a misdiagnosis. It could very well be CH changing sides, but God forbid you mention this to a neurologist because “textsbook CH never change sides”
  23. @Tony Only hey! Yeah it was around 4 hours and I still have a dull pain behind both eyes at the moment. Feels more like a shadow. I’ve never felt a throb like this. And it was coming in waves for 4 hours. I guess I’ll find out if it’s CH if I get it again at 8:30 tonight. I’m hoping it was just the soy sauce that I ate. I’m not sure. I felt dizzy and out of it at the time. Almost like my vision got a little blurry. I also slept until 11:30 today which I never do. I just felt “out of it”. It was odd
  24. Hey everyone, last night I had the weirdest headache I’ve had thus far in this horrid journey. For 2 years now my shadows/ CH have been on my left side. Never on the right. I’ll get a tension headache on the right but never a CH. I went out for sushi last night and at 8:30 I got a throbbing pain that was 8/10 directly behind my right eye and my right temple. It lasted from 8:30 til 1 am when I eventually fell asleep. It would throb for about 30 seconds, go away for 2-5 min, and come back and throb again. It was soooo strange. I don’t think it was a Ch, maybe a horrible migraine? I had no other symptoms with it. What do you guys think?? kat
  25. @Bushcraft39 I also recommend very strong ginger tea, or ginger capsules that you can buy in the vitamin section. If you are confirmed CH the neurologist will probably prescribe you verapamil, which is decently helpful.
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