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Darren

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Darren last won the day on August 22 2023

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  1. The first successful application in Canada for a Cluster Headache Patient! Huge news! Big thanks to TheraPsil for their work behind the scenes on this! https://www.chathamdailynews.ca/news/suicide-headache-patient-granted-magic-mushroom-access
  2. For me, it has been: prednisone 5mg oral tablet - 13 day taper 12 tabs x 2 days (60mg) 10 tabs x 3 days (50mg) 8 tabs x 3 days (40mg) 6 tabs x 2 days (30mg) 4 tabs x 2 days (20mg) 2 tabs x 1 day (10mg) Stop
  3. Fingers crossed for you!
  4. Awesome. Thanks again! Sounds like it has what I want / need, and maybe I just wasn't using it properly. I'll give it another look. Much appreciated.
  5. Thanks @CDog. I had checked that one out, but, while playing around with it, I didn't see a way to add meds. Do you use the premium version?
  6. @Jusnobody - Thanks. I'll continue the search.
  7. Does anybody know if it's available to view online anywhere? Or if it will be re-broadcasted on the Nat Geo channel? I'd love to check it out, but, haven't had any luck finding it.
  8. Thanks all. You do raise some good points. I honestly am not even sure why I still track everything. But, it's just what I've always done. So, I feel like I'm supposed to / should continue to do so. Haha. I feel that since I just had my first bust out of a cycle, it would probably be good to track the maintenance doses, and remission time, etc. Was hoping there would be an app similar to what I was using. But, I haven't found anything that meets my needs. I guess I'll either stop logging, or start manually logging in excel. Still open to suggestions though, if anybody else knows of something out there.
  9. Curious what everybody uses for tracking their attacks (time, intensity, etc), meds (customizable with dosage), etc. I used Register Your Journey (app) for a few years, and then Nobism when it replaced RYJ. It seems Nobism no longer works. I reached out to the developer, but, got no response. Does anybody have any apps that they would recommend? I've only found Migraine tracking apps, which don't seem to work well for CH. Thanks in advance.
  10. Well said. I could not agree more.
  11. I've been using this app for a few years now, to track my symptoms and treatments (and Register your journey prior to that). But, recently, when I launch the app, it just synchs, and never ends the synch / launches. I emailed the developer, but, I was curious if anybody else uses it, and might be having the same issue. Aside from Nobism, I'm curious what everybody else uses for tracking everything. Just in case the app is no longer supported. Thanks in advance.
  12. I'd agree with @BoscoPiko. To me it sounds more like migraine. Not sure why a doctor would diagnose cluster headache after only one attack. I would think they would want to hear of a cluster pattern before making that diagnosis. As noted, ibuprofen/ acetaminophen don't help for cluster headaches. Not to downplay migraine, as they are also very painful. But, to me, it doesn't sound like cluster (which is good news).
  13. Yup. Lots of discussion about this on the forum earlier in the pandemic. Definitely seems like a relation. That said, people that have found it happened to them are probably more likely to reply in those threads. So, it may not be as statistically common as it seems when reading the replies. I can say that for me, my last cycle started only a few days after recovering from COVID. And that cycle ended up being three times longer than any cycle I had previously. As snafu noted, the belief is that vitamin d levels get low in the body while fighting covid (or other), so, I guess that can trigger a cycle.
  14. I hear you, and agree 100%. It's especially frustrating when you think you have things like timing, or treatments sorted out after finding a pattern, or having success with something; only for it to completely change / not work on the next cycle. I think we can all relate to that. I do think that maybe / hopefully the D3 and busting might have helped you though. Maybe it's a sign of easier times to come as well!
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