BoscoPiko

For me both out and in. Thank you for sharing the video and best of luck on your travels!

Hi Raincheck, I haven't seen the video on flying but the topic has come up on here quite a bit. Lots of folks have mentioned doing a few prevent busts prior and keeping supplies like 5 hour energy shots, caffeine pills, red bulls and injectables/sprays on hand just incase they get hit in the air as well as trying to procure 02 in the location you are going to be prior. As for the daily pain you speak of, that does sound like shadows. I have them pretty bad as well and experience some sort of head pain almost daily as well. Some use ginger pills to help with that and I use curcumin mixed with ginger. It helps a bit. I am now curious about the flying card?

Makes one wonder about the folks that have claimed some sort of success with micro dosing... I understand the need to be sure that you've invested enough but that seems like a small (not so small if sourcing is an issue) factor with regard to the subject study. Just my thoughts in writing.

Welcome to the cool kids club! You gotta be cool to survive CH... I hope you find this place as helpful as I have.

So glad to hear this. Seems like the important part is the simple fact that you are doing better! I'm still really lacking the ability to think all that well..(went to get sweetener to put in my coffee this am and almost dumped some wet cat food in it instead)... my husband telling me that he already fed the cat was all that stopped me from dumping it in.. uff brain fog is serious sometimes! The cost of everything sucks rt now so my apologies to your wallet. I sure hope you get a break!

I missed the part about only taking it for 90 days so I have been taking it all along as well. Seems like it hasn't hurt anything as I've been taking it for over a year...

I know everyone is busy and money is tighter these days than usual but every donation (even miniscule), will help! If any of you have ever received Spinys help on here, then you've received something that a monetary value can't be placed upon. I hope that everyone will consider maybe skipping your daily Starbucks or Dutch Bros and donating that amount. Much love and appreciation to you all!

Hi Cloudy, One of the links worked for me so I've attached the PDF for you. Quick Start Guide - Sept 2023.pdf

That sucks.. Yes you can get ginger in pill form.

I figured you were. Have you tried the extended version with the antihistamines?

Hey Mit, Sorry to hear this is happening to you. It's always scary when pain changes. Not that cluster pain is ever something that we get used to, I think it's more that we come to know what to expect. I have had occasional spikes on the wrong side and it always scares the heck out of me. I have a bad habit of associating everything that has happened prior to an attack as being a pre-curser for the next but normally it's just the bunny thumping about to shake things up I guess. I wonder if your lingering pain after a CH attack is sorta like severe shadows which I suppose could feel like a migraine? Are you on the D3 regimen? I'm sure you have read about it on here but if your not on on it you may want to give it a go and add some curcumin (ginger +turmeric) to help with the lingering pain. I know my response isn't much help but it's all I got on this one. I hope you get past this sooner than later!!

I do believe he did a combo of the Cheshire cat and the white rabbit.. By the looks of things he is late and the clock is ticking All were missing is a big cloud of smoke..

From a ladies perspective not sure which you are but suppose it matters not. I use just the breathing tube at work. No messing up the makeup and what not. No mask outlines on the face etc.. when I'm home I use the over the nose and mouth mask as it seems to help me abort quicker although I am still at the hit and miss phase of the 02. .. I've tried lots of methods but have still yet to hone it in. Nothing wrong with that I suspect. Afterall it takes time and effort to get things rt. I'm really hoping you stick around a while because being here has helped me so much and I want that for others. You included..

Yea that sounds like CH. I just always seem to think of Ch pain to be spikes or piercing pain. I do get something I call broke neck sometime prior to a cycle.. I hope you get it sorted out soon!

Hi swtbite, It almost sounds like something is off in your back causing the pain to radiate up to the back of your head/neck.. The way you describe the pain sounds like a normal headache not a one off attack especially since you are getting some relief from ibuprofen.. I'm not big on chiropractic work but it might be worth a try in this instance..