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Into Light

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Into Light last won the day on May 24 2020

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About Into Light

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  1. I miss BoF every day. She helped so many people. Had the biggest heart.
  2. Our beloved Brain on Fire, who helped so many during her time here, died of natural causes June 5th, 2020, in the parking lot of an ER near her home. She made many laugh, a great boon to those of afflicted with the gift of cluster headache. She had been posting just before she passed; when a mutual friend was given her things, that friend changed her profile. This was done in the early stages of her dear friend's grief. I still miss her; we chatted almost every day. She had a great big heart, and a strong sense of righteousness. The only thing being born assures us of is dying. Godsp
  3. Wow, talk about a rabbit hole. I just opened every paper in a new tab. I'll probably create a LiquidText project to organize and distill them.
  4. If it works for you> hmmm...non surgically-maked emojis
  5. i just found out sleep apnea can be a cause of cH too.. interferes with sleep cycle and that messes with the hypothalamus which sets sleep cycle. it is thought [mea culpa, can’t remember medical citation] that CH often hits during transition feom or to REM.
  6. https://snoringhq.com/blog/sleep-disorders-and-the-cluster-headache-explained/ https://pubmed.ncbi.nlm.nih.gov/15186306/ https://mhni.com/headache-pain-faq/cluster-headaches/cluster-headache-sleep get a sleep lab studyw. then an Airfit10 CPAP. Try the nasl pillow mask with the tub entering at rthe top: you can toss and turn or cuddle your honey, or your dog if that's different. HTH, ad lux @Pebblesthecorgi 4) could be true anyway :)))
  7. Into Light


    and i'll just chime in with: i saw the posts. and by another as well. i'm with BOF all the way.
  8. thanks @Tony Only , i’m very sure i busted the ch on my third dose. issue is multiple comorbidities with similar symptom set: chemo, new chemo, newly diagnosed sleep apnea, head trauma in dallas and, temporarily, prednisone withdrawal after gout attack. i’m grateful that it’s obvious i busted the ch. lux
  9. chemo brain tbi intuition chiemo brain fog and getting slammed without a current medicine source what was i going to do?
  10. thanks @Tony Only. if you don’t mind, i can print this page, highlight the ch and leave it in his mailbox, if i can do so. he lives a few miles from me. geographically-speaking.
  11. i thought i’d need 40 but am fine withthe much less expensive wt farley 25lpm. i fill the optimask and after a bit can turn it down to 20. usually 15 won’t keep the 3-liter bag full.
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