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ClusterBusters

Into Light

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Into Light last won the day on May 24

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About Into Light

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    Advanced Member

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    https://www.jonathanherbert.com
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    jherbertartist

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  • Gender
    Male
  • Location
    Sunsoast, Florida
  • Interests
    Making paintings in my studio. 5-star vegan dining. Film;

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  1. Into Light

    Stephen King

    thanks @Tony Only , i’m very sure i busted the ch on my third dose. issue is multiple comorbidities with similar symptom set: chemo, new chemo, newly diagnosed sleep apnea, head trauma in dallas and, temporarily, prednisone withdrawal after gout attack. i’m grateful that it’s obvious i busted the ch. lux
  2. Into Light

    Stephen King

    chemo brain tbi intuition chiemo brain fog and getting slammed without a current medicine source what was i going to do?
  3. Into Light

    Stephen King

    thanks @Tony Only. if you don’t mind, i can print this page, highlight the ch and leave it in his mailbox, if i can do so. he lives a few miles from me. geographically-speaking.
  4. Into Light

    Lithium or Occipital nerve block

    i thought i’d need 40 but am fine withthe much less expensive wt farley 25lpm. i fill the optimask and after a bit can turn it down to 20. usually 15 won’t keep the 3-liter bag full.
  5. Into Light

    Oxygen help

    my neuro says vials no longer available. another option iszembrace...3mg sumatriptan sub-cu. i can’t stand that drug. have a ton of em lying around...
  6. Into Light

    Severe headache

    ps rx must be written oxygen 15Lpm for Cluster Headache with the diagnosis code. If the doctor writes higher lpm than 15, and the delivery company has no regulators other than 15lpm (which more than mine don't I rexpect), you may experience, as I did, a refusal to deliver. Just take the 15 lpm rx, then get your own WT Farley regulator. Mine goes to 25 lpm and i need to start with that flow rate and then reduce it to where it keeps the 3-liter Optimask reservoir bag filled. WT Farley – steel and brass. I think I got mine on Amazon though you can use their website.
  7. Into Light

    Severe headache

    Depends on where you are probably. Im in FL and self-pay Apria $79/month unlimited refills. Make friends with your delivery guy...s/he will be the lifesaver.
  8. Into Light

    Severe headache

    hi @graci, medicare has only just started to pay for O2. Part of the covid-19 responses. previously they did not. I am trying to get the bills submitted to the feds rather than continue to self-pay, which was not an egregious amount until the pandemic laid waste to my art nusiness. i recommend that you check your policy. lux
  9. Into Light

    Severe headache

    Medicare now covers oxygen
  10. can we unfollow a topic? @CHfather @ThatHurtsMyHead ?
  11. Don't hijack my thread to COVID links.
  12. @Brain on fire please don't let one ego harass you off of the board. Please.
  13. Thank you @igdc. My "bullshit-meter" is very sensitive, but I do like to get input from my family here before making final decisions. I will just say, "No thank you."
  14. Thank you @CHfatherand @Pebblesthecorgi. I’ve no desire to add anything to the mix that hasn’t been tested for ch specifically. though i have had to add severe ‘normal people’ headaches since the conference. Nomigraines, though. lux
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