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ClusterBusters

Into Light

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Everything posted by Into Light

  1. hello all, i want to introduce my dear friend @spikeinthehead. he just registered yesterday; i've sent him the url to the readme banner, ahem, @CHfather. i know he'll develop his own connections, but i want to specifically introduce @Brain on fire, @spiny @Freud @dmlonghorn @ThatHurtsMyHead. Also, @Batch, perhaps you could pm him with the link to the D-3 regimen. thank you all! lux
  2. Into Light

    introducing my friend who just registered for the board

    karen, i'll be back wednesday. oral sumatriptan is worthless. takes an hour to kick in. the sbucu injectors are the best emergency relief. if there hasn't been an abort via o2 which is the best. after he gets the o2 script i already sent a link to the correct o2 mask for us. get two. he will, hopefully sooner than later, have Mtank(s) at home and he can do what many of us do and keep an Etank on the car. 5-hour energy drinks are reputed to work much better than espresso. hang in there. this is an amazing support group. one of a kind. with cluster knowledge in aggregate that far surpasses the information that almost any other doctor or neurologist has. into light
  3. Into Light

    introducing my friend who just registered for the board

    my neuro is at sloan-kettering memorial cancer center. luckily for me he has followed my lead, as i have learned here what i need to communicate to him. i stick there because i am covered by the WTC Health Fund, so pay nothing to go there. which is good, but lymphomas are not. i believe there is a cb approved neuro in venice, which is very close to us. i have sent my very dear friend the exact wording for the script.
  4. Into Light

    introducing my friend who just registered for the board

    regarding oxygen, i'm near @spikeinthehead. i self pay apria. it's not expensive. @CHfather.the trick is that the script must max at 15 lpm and then use one's own 25 lpm regulator.
  5. Into Light

    Let's get together

    Besides @ThatHurtsMyHead, are there any other CB folks around Sarasota, St Pete, Tampa area?
  6. Into Light

    Nausea with D3 Regimen & Cofactors

    polymath
  7. Into Light

    Nausea with D3 Regimen & Cofactors

    love my memory!
  8. Into Light

    Nausea with D3 Regimen & Cofactors

    re: CBD...first i've read that medical marijuana, whilst being a migraine-killer, does nothing for CH. i have personally discovered that a Trulieve Florida Med Mar indica named 9-lb hammer works like its name. but before it knocks me out at bedtime it makes any lingering shadows disappear.
  9. Into Light

    Nausea with D3 Regimen & Cofactors

    yes! my poor baby brother. @spinythe peacock was cbs...
  10. Into Light

    I’m new here. So happy to find this place!!

    clusterbusters.org saved my life...and obviously so many others!
  11. Into Light

    Freud

    bump
  12. Into Light

    New poster - please help

    the CH picture that is me also is episodic with chronic shadows. I'm goihng to see what my D3 level...just had a blood draw. Chemo, which i am on, orally every day, depletes vitamin D. That said, when I chatted with @Batch he theorized that i was caught in a histamine cascade. After 4 days of Benadryl 25mg 4 x day i am virtually PF, couple of K1 shadows now and then. Thrilled to be off the verapamil. May work for some, but it blocked both busting and "night fun." stopped the verapamil; happier now.
  13. Into Light

    Freud

    freud i’m thinking of you. i miss you. come back soon. lux
  14. Into Light

    Nausea with D3 Regimen & Cofactors

    Ah for the days when i was almost innocent and life was broadcast in b&w. Remember the “off-the-air” bars?
  15. Into Light

    Melatonin & pineal gland

    Isn’t it a pip that doctors pay next to nothing for the journals which would cost patients and arm and a leg! then again, having worked for Big Poison as a Mechanism of Action illustrator in Pharma ads, i know that the journals carry very costly ads. lux
  16. Into Light

    2019 Conference how is/was it?

    Hey BoF I just noticed this...I've been a mess since the head trauma in Dallas. I'd like it in the SE-USA too. cheers, jonathan
  17. Into Light

    New to the group and suffering

    Hi Willy i haven’t tried him, since mine works with me...but there is a CB approved neuro in Venice FL. fui
  18. Into Light

    Question about oxygen!! South Florida area!

    SW Florida experienced will PM
  19. Into Light

    Freud

    yes what they said
  20. Into Light

    Quick update

    mom is upbeat i've got faith
  21. @eileenbunny shall I assume that an announcement/email will go out when hotel booking will be available?
  22. Into Light

    2019 Conference how is/was it?

    I’m with @ThatHurtsMyHead and think Tampa would be way cool. Like https://embassysuites3.hilton.com/en/hotels/florida/embassy-suites-by-hilton-tampa-downtown-convention-center-TPAESES/index.html . Course it would be nice because I’d just have to drive about an hour to get there. But I don’t know how close it is to the airport. @eileenbunny
  23. Into Light

    2019 Conference how is/was it?

    Hi BoF, Where is home?
  24. Registered; quite stoked to see folks again!. Is there a link for group-rate discount rooms yet?
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