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ClusterBusters

Luis

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Luis last won the day on February 16

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About Luis

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  1. Luis

    Wisdom tooth removal

    Thank y’all for the recommendations. I will talk with my doctor.
  2. Luis

    Wisdom tooth removal

    Hey guys, so I can’t sleep cause I have so many things to worry about. But I figured that you guys could maybe help me with one thing. I am going to am going to have surgery to take my wisdom teeth out, and I am pretty scared that the surgery will trigger my headaches again. Has any body have any experience with this? Any recommendations? I have had dental work done before and it has never triggered my headaches not even when one dumbass dentist hit my trigeminal nerve while sedating me.
  3. Luis

    Beast wants to come back

    @jon019 I take Benadryl twice a day. Morning and night. @dmlonghorn yeah, man. My head is feeling like shit. No actual pain, yet and I hope it never comes but the other symptoms are killing me. I get dizzy, I feel pressure in my head, so yeah I hate it that we have to go through this! @devonrex this has been the first time that the beast tries to go out during this time of the year, but like I learned here, the beast changes. So idk, just hoping for the best. The good thing is that I am ready with oxygen and pain meds if it gets to that. But for now the Vitamin D protocol is helping. Oh and sugar seems to be a biggy for me too. Which is odd.. WHICH ALL OF YALL PF DAYS!!!
  4. Luis

    Some good news?

    Any pf days are good days!!!! Hang in there!!!!!
  5. Well guys, the beast wants to fight it’s way back. I have been shadowing all weekend and my head feels like it’s on cycle.. so..yeah. I am pretty scared but I am fighting it with everything that I’ve learned here so hopefully I can put the beast in it’s cage.
  6. Hi... stupid suggestion... but have you tried to take sugar out of your diet? I have noticed it that, if my intake of sugar is high, my brain will want to restart my headaches..you know, shadows and what-not. Also, ginger tea helped in my last cycle. Hope this helps. Wishing you PF days!!!
  7. Luis

    Oxygen help

    I GOT THE OXYGEN!!!!! E tank. I already ordered the mask and will order the regulator. Thankfully, the vitamin d is keeping my clusters away. But it’s been some good days guys!!!
  8. Luis

    Oxygen help

    So, I am finally going to get the oxygen this weekend!!!!! I need the tank and what else?? Can somebody help me with the things that I need please.
  9. Luis

    Nortryptiline

    Im am quite scared of it too since I know clusters are triggered by a low serotonin. So I really don’t want to mess with my serotonin levels but I am not sure if it’s going to help me. I got him to prescribe oxygen, but that was more of me saying “hey I need the oxygen.” well I can’t take psychedelics. So that is out of the question. Unfortunately. I may end up switching neurologist.
  10. Luis

    Nortryptiline

    So I went to my neurologist, and he prescribed nortryptiline as a preventative. Has anyone tried it??? I am still taking d3.
  11. Luis

    Emgality allergic reaction

    @Brain on fire no, not yet. I will see my neurologist on the 5th and I’m probably going to force him to prescribe it since I don’t have any other choice anymore.
  12. I took my second dose of emgality on Sunday and I developed an allergic reaction. Hives. Honestly guys, I am losing all hope.
  13. Luis

    Emgality

    My neurologist gave me samples and told me to take 1 injection of 120 mg every 8 hours,I think. The website says that the first dose for clusters is 3 100 mg injections given back to back. From what I know emgality is not a triptan so it doesn’t bind to the same serotonin receptors as triptans and busting methods. Emgality binds to the cgrp pain receptors so that people don’t feel the pain of the headache. That is exactly what happens in my case. I cannot feel the pain of the headache but I can still feel when I’m having a headache. I feel the pressure, light sensitivity and dry mouth. I am still on cycle because I can feel the headaches but again not the pain. My second injection would be this coming Sunday. I hope my cycle ends soon but emgality is working. At least I can go to work and function.
  14. I think all of those are cgrp antagonist. They bind to pain receptors and make you not feel the pain of the headache. Emgality supposed to prevent headaches as well.
  15. Luis

    Stomach pain while on d3 regimen

    @kat_92 I have. Melatonin doesn’t work for me. I’ve tried it before. I am now taking medication for my stomach and will resume d3 once my stomach heals.
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