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Into Light

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Everything posted by Into Light

  1. Into Light
    @eileenbunny shall I assume that an announcement/email will go out when hotel booking will be available?
  2. Into Light
    Registered; quite stoked to see folks again!. Is there a link for group-rate discount rooms yet?
  3. Into Light
    Happy to report I’ve completed registering for Chicago 2020. This time I’ll skip the pool.
  4. Into Light
    Full moon tea party. Yay. Been there. st. Pete would save money serious bux.
  5. Into Light
    Wow wowee wow. I’m looking forward to your talk.
  6. Into Light
    Corporate Apria are bozos who must be betting on who takes the longest to answer. Of course they service CH patients. It must say “for Cluster Headaches” on the script. They also carry max regulators at 15lpm. I bought my own 25lpm regulators and have 2 optimasks. 1 goes everywhere I go. I got hit in March, in the luxurious MSKCC waiting room. They brought me a 25lpd e-tank with a taped up non-rebreather, but my optimask is so much better. If the script calls for higher than 15lpm the office refuses delivery. F*Heads. IL
  7. Into Light
    Florida self-pay costs me $80/month for everything...tanks and O2 on request. I did instruct the neuro on how to write the script.
  8. Into Light
    Corporate Apria and the lovely delivery people must come from different planets. I asked for some extra and got a total of 4 M and 6 E tanks. It’s all about the person in the truck.
  9. Into Light

    Add Mirtazapine aka Remron to not playing well. Blocks serotonin receptors.

  10. Into Light
    Two right answers are not the longest novel I’ve ever read. Thanks BoF and Freud.
  11. Into Light
    Howdy Y’all, [getting linguistically prepped for Dallas. I only have M-tanks at home, and the proper 540 regulator. Does the attached pic show a correct regulator for an E-TANK/ and can it be swapped from E to E?
  12. Into Light
    The entire D3 regimen was approved by my oncologist with the exception of any fish oil. I sent screenshots of a vegan supplement for approval.
  13. Into Light
    Amazon had everything needed. I am vegan so therefore am looking for plant or supplement delivery of the needed DHA and EPA.batch did say that the fish oil components can be skipped if necessary
  14. Into Light
    Ya Think?
  15. Into Light
    I’ve never gone wring spending top dollar for any equipment. It always has been more dependable and the functiional life eventually makes whatever the less expensive alternative. I have not yet researched the demand valve, in spite of having a prescription for it that specifies CH, since I might have gotten on board with functionality from 25LPM. just my opinion, developed over years of working as a pioneer in the field of computer illustration, fine art and photography. IntoLight ignore below, thanks
  16. Into Light

    “Cure”

    Into Light replied to Freud's topic in General Board

    No matter to me if the KETO diet is helpful; I’m a militant vegan (would make an exception for the Omega-3 oil).
  17. Into Light
    “Nothing Compares with You”
  18. Into Light
    I had to banish sumatriptan totally from my life. 1 shot would stop the headache, but only as side effects ramped up. I would experience increasing nausea. Weakness would become so overwhelming I could not even rest my hands on my chest while lying down. I would pass out. And awaken with no HA, but unable to do anything other than lie on the couch for about 5-7 days; could not think clearly; could not read, certainly could not work for my art business. I couldn't even sketch. My doctor switched me to oral rizatriptan, but I don’t take it. I am on 480mg Verapamil/day. Any change from that or missed dosage yields the return of CHs with a vengeance. I’m ECH with chronic shadows.
  19. Into Light
    What is.a sticky thread? IL
  20. Into Light
    Hi jon019, exactly of what that is a picture? thanks, IntoLight
  21. Into Light
    Good place for ‘edible’ essential oils is Young Living.
  22. Into Light
    Damn
  23. Into Light

    First, I want to thank you for being such a great member of this community. I've learned much from you in my brief time here. Per subject line I would like to know the exact bloodwork "we" need. I will be seeing my neurologist at the beginning of May. He and his team are wonderful, mostly because they really do their best to work with me. I would need all of the regimen as a PDF if you can. I get treated for lymphomae [diffuse enlarged b-cell lymphoma- cured, follicular b-cell lymphoma-still in remission after 6 years( and currently ambeating Chronic Lymphocytic Leukemia- being treated with chemo. (Thank you World Trade Center) My doctors are all at Memorial Sloan Kettering Cancer Center. I am on a new chemo regimen–ibrutinib– So I need to involve my neurologist, oncologist, naturopath and the pharmacy department. I was taken off high-dose Green Tea Extract and Curcuminin when I was prescribed the ibrutinib. Because I am on 480mg Verapamil the metabolization of the ibrutinib is slowed down and my particular dose of ibrutinib was reduced by 1/3 in order to maintain the proper blood levels of ibrutinib.

    I hope this does not add much to your workload. I really appreciate it.

    IntoLight

    1. xxx

      xxx

      Jonathan,

      You should have my email response to your request by now.  I think I answered all your questions, but just in case, shoot me an email if I've missed something or you've another question.

      I'm well aware doing battle with cancer is a full time dedicated team effort between you and your doctors.  I'm shy one kidney and several square inches of scalp due to cancer... most likely caused by a year on a monoclonal antibody called daclizumab.  That said, I've managed through all this without chemo or radiation therapy... just lots of vitamin D3, the vitamin D3 Cofactors and lots of Vitamin C.

      I haven't found any open source data on adverse interactions between vitamin D3 and ibrutinib.  There are some links suggesting Omega-3 fish oil can be a problem but no technical or clinical data to back that up.  What I do know is the anti-inflammatory regimen with 10,000 IU/day vitamin D3 works wonders building a healthy immune system.

      I'm here to help... and learn.

      Take care and please keep me posted.

      V/R, Batch

    2. Into Light

      Into Light

      Thank you

  24. Into Light
    Doctors, like people, are mere individuals. And, like people, range from brilliant to dumber than a rock.
  25. Into Light
    I just say indescribable pain and leave it at that because it’s indescribable.
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