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MoxieGirl last won the day on March 14

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About MoxieGirl

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    Norfolk, England

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  1. Hi my friends, I normally get a bad case of brain fog after a cluster attack. They are fairly short lived, 1-2 hours, maybe 3 or so. What often surprises me is when I’ve had a 10 - 15 minute, short fairly mild attack, but then have brain fog for hours afterwards. Anyway, yesterday morning I woke at 5am with a super mild headache. I should have taken pain killers then and there, but hoped I’d sleep it off. I woke at 7 with a really bad headache that morphed into a migraine. I too a triptan, and before too long the migraine was gone. But then, I had horrendously bad brain fog the
  2. You know, I’m really, REALLY fed up with this whole “war on drugs” rubbish! A couple years ago, the UK legalised cannabis for medical use. This meant any doctor who wanted to prescribe it had get up to speed with its use, and only expensive, private consultants did that. You can’t get it on the NHS like you can any other medicine. Someone recently came up with an ID Card (called a CanCard) that says you have a medical condition that you’re treating with cannabis, and the police have agreed to not arrest you or take your medicine if you have the CanCard and are caught with cannabis
  3. Had a <bleep> <bleep> <bleepity> <bleep> <bleep> headache. OH!!!!! That’s why they don’t ask us to name these headaches. Mox
  4. If I remember correctly, Michael Pollan's book, How to Change Your Mind, gives a really good description of Hoffman's bicycle ride home that fateful day, and the history behind the discovery. A really good read, can't recommend it enough. Mox
  5. Hi Mike, Has been a couple of months since your original post, I hope things have settled down a bit for you in that time. But, knowing the beast, it may not have. The best way I've found to convey the level of pain to a non-clusterhead is this: Most people I talk to have had at least 1 muscle cramp in their life, and it's usually a calf muscle. I start by asking them to think back to the worst muscle cramp they can remember, and get them to think about how suddenly the pain came on from out of nowhere, and how it was all consuming. They couldn't move, or speak or think about an
  6. And other States are decriminalising it too, aren't they? Good news for sure. Mox
  7. Hi, My neurologist is recommending Cadesartan for my migraines, and just wondering if any of the good people here have experience with it. Mox
  8. Are there anymore details about the conference yet? Like, who is speaking when, time table, software that is going to be used.. (zoom??) I live in the UK and would love to attend. I've been to the website linked in the other posts, but many of the links to photos are broken (in Safari at least) and there aren't a lot of details (doesn't instil confidence). According to the page, the conference is starting at 5pm CST on Thursday and running non-stop till 10AM on Sunday. Surely not? (Yes, I just) Is the conference going to be recorded so those of us in other time zones around the worl
  9. Wanted to bump this to the top, if you don't mind.
  10. PS. I often think these headaches are equally difficult on those that care about us. My best friend used to get so frustrated watching me in pain and unable to help. We eventually agreed that when the cluster started, she'd just leave me alone and get one with it. But, as it ended, I would always want 2-3 glasses of cold water and a blanket or bathrobe, and she'd always have these ready. Mox
  11. HI Rios, I had clusters for about 4 years before I signed up here. Like your sister, I had tried everything doctors could give me. The last doctor med I was on made them worse (Topiramate, nasty stuff). At the time I came here, I was having 2-5 attacks every 2-3 days for nearly a year. I was actually, and quite literally, picking a date in my calendar to exit planet Earth. I'd decided to give myself 1 more year to find a solution, and that's when I remembered once being told about this site. I spent the following 6 weeks doing two things: 1, weened myself off Topiramate, and 2, read
  12. This morning I had a cluster attack that lasted 15-20 minutes. And, it was maybe a KIP 4 or 5, nothing horrific. Bad enough that I curled up on the sofa for a bit. But, I felt totally drained for 2 hours afterwards and was in a brain fog for 4 hours. I couldn't concentrate or even look at a computer screen for more than a few minutes. Then, it just went away at the 4 hour mark, and I felt fine. Is there anything people do to help them get through these after affects? I find chocolate and caffeine helps a little. Here's my FaceBook post from this morning, might make 'ya chuckl
  13. Hi gang, I'm curious what sort of things other people experience after the cluster headache has gone away. What fun little things linger after the raw pain is gone? Here's my list: Prior to busting, I would have 20-30 minutes PTSD experience where my whole body would shake and I'd cry uncontrollably after every attack. But that essentially went away after I started busting. My body temp normally swings from very cold to very hot, and I spend an hour or so adding and removing clothes or blankets to regulate my temperature. Extreme energy drain that lasts for hours, e
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