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ClusterBusters

Pebblesthecorgi

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Pebblesthecorgi last won the day on April 18

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About Pebblesthecorgi

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  1. Pebblesthecorgi

    O2 concentrator?

    O2 concentrators generally are sub optimal. You need the 100% O and flow rates of at least 6-8 liters per minute. Many folks need 10-25 liters per minute. The idea of 100% high flow oxygen is to initiate central vasoconstriction to abort the headache. It seems like a pain but getting O2 bottles can be life changing. There are well put together info posts on using welding O2 if the medical system betrays you.
  2. Pebblesthecorgi

    One man's story

    An interesting read. An unfortunate tale of being truthful. https://www.huffpost.com/entry/cluster-headaches-psychedelic-mushrooms_n_5cf7d9e6e4b067df5ca1bde9?guccounter=1&guce_referrer=aHR0cHM6Ly9uZXdzLmdvb2dsZS5jb20v&guce_referrer_sig=AQAAALeuDkw92Fqkn2a8PStvWDb0pK-wQiafbDXTVnwK3bwbzXKBMEwIMFfrRY15us5RfILtvBf3EVG0pIdA5j5MbFfwm2pTSCphJi3MSYzzdiCtDO_gWZzQo_GULUFtKHiekhKsGxK1KpICv46OvLXRvfiKMMm-G_PZ6WQCyCnNIpXD
  3. Pebblesthecorgi

    oxygen

    I am not aware medicare will cover O2 for cluster headaches. This has been a bone of contention for some time. The CMS ruling ignorantly stated there was too great a risk of respiratory depression giving oxygen if someone retained CO2. The other concern was for eye damage which is only applicable to preterm infants. Such concerns are ridiculous but exist. If you have strait medicaid or medicare there is little change of getting O2 for clusters unless someone is manipulating the diagnostic codes or you have a supplemental policy that is savvy enough to recognize O2 is cheaper than even rationed imitrex. It is a horrible situation that governmental agencies should be ashamed.
  4. Pebblesthecorgi

    Australians beware

    Hmm Is that true in Georgia and Missouri? Sorry could not help myself
  5. Pebblesthecorgi

    Interesting info on legalization

    The measure to decriminalize passed. It is still illegal to use or possess MM. This is a bit problematic because even though psilocybin has impactful positive benefits used in the wrong set and setting or at too young an age can cause significant harm. That harm will create a soundbite which will detract from the positive movement created by organizations like MAPS. So ballot initiatives like this are a mixed blessing.
  6. Pebblesthecorgi

    New here but not new to the evil!

    I agree with CHF. It does not sound like clusters. Getting a proper diagnosis is most important. If your Neuro is indifferent or can't figure it out go to a headache center.
  7. Pebblesthecorgi

    Infusion Treatment Question

    couple of questions: 1) What sort of infusions? 2)How old are you 3) Any history of heart disease? 4) have you ever busted?
  8. Pebblesthecorgi

    Work and CH

    I keep O2 in my car and office at all times. I also have imitrex available at all times if I need a quick abort. Until recently I only got hit at night and rarely encroached on work. Busting has spaced out the cycles considerably but I am rarely less than 5 minutes away from O2 or injection even when I was 2.5 years pf.
  9. Pebblesthecorgi

    Two new surgery-related articles

    I would upload for you but the file size is 5 mb which exceeds permitted limits. The first article is a case report of deep brain stimulation in white matter that needed reprogramming at 10 months and reports of pain free at three years The second is a review article that includes cluster headaches. The article advises caution with surgery and clusters as reports of initial success tend to wean off significantly.
  10. Pebblesthecorgi

    Cbd oil

    You can ask your doctor about CBD but the reality is there is so little data other than self reporting you will only get an answer based on their observations. Some physicians who practice under the Functional Medicine banner have more experience working with these substances but there is a paucity of traditional scientific literature to support or deter the use of CBD. Part of its popularity is because its relatively novel and widely available. The other reason is you can get it without engaging the medical system and traditional medicine has little to offer the chronic pain person particularly if there is a component of psychic pain
  11. Pebblesthecorgi

    Micro Dosing

    Micro dosing is all the rage these days based on popular books like How to Change your Mind by Pollard. This is being used in the creative crowd and by folks for treatment resistant depression. The most talked about strategy is 1/10th a dose every 3-4 days. Everyone swears by it but data is lacking. Similar situation for cluster prevention. Folks are trying it but there is a paucity of data as DD has pointed out. I am amazed you are feeling the effects of a gram once a month you must either have potent stuff or a susceptible brain. Depending on your supplies you can make a tinture of MM for microdosing. For instance 20 grams dried in 200 cc Everclear, soak for a month or so then you have 0.1 gram per 1 cc.
  12. Pebblesthecorgi

    Looking for advice

    A steroid "dose pack" is generally like pissing in the ocean and is not enough steroid to expect relieve. If he has a cardiac condition that precludes the use of imitrex that condition should be addressed so he has the option of using when in a corner. I know everyone is cautious about triptans and heart issues but the concern seems a bit overblown when you review the cases and the the FDA reports. My point is if his cardiac status is so tenuous to have an absolute contraindication to triptans then there should be room for improvement. The valium may help him cope with the anxiety clusters can bring but will not exacerbate or diminish an attack. O2 will be very important to try...if it aborts his attacks it is much more likely he could respond to busting methods (my opinion) Proper technique and flow are important before discounting it as a treatment. If you want to stick to legal offerings and D3 isn't helping consider asking about CGRP injections (insist on 140 mg/month to start) Though expensive, relatively new to market and has a few unknowns it has shown promise in treating clusterheadaches. The general consensus is GammaCore is pretty useless although I am sure there are some exceptions. The hospital could help if they give him oxygen properly and/or give him imitrex in a monitored setting. Otherwise not much they can do
  13. Pebblesthecorgi

    What is 5-meO-Dalt?

    Shasha Shulgin is/was a sort of god in the psychedelic community. After doing a bunch of discovery for Monsanto, he reintroduced MDMA to the psychiatric community but, like LSD, the recreational community got a hold of it and a bunch of less than rational laws were passed. He developed many molecules that had psychotropic effects and tested them himself and with a small group of psychonauts. He did a lot of work for the DEA and law enforcement but when they turned on him he and his wife, Ann, publishes two books PIHKAL and TIHKAL which are basically cookbooks for a competent organic chemist to reproduce these substances.
  14. Pebblesthecorgi

    What is 5-meO-Dalt?

    research chemical......its nomenclature for molecules used in the lab as reference material or for comparison
  15. Pebblesthecorgi

    What is 5-meO-Dalt?

    Probably not. I am sure a few individuals have it stockpiled for personal use but no legitimate sources seem to have it. It became popular with the recreational crowd and falsely put forward as an aphrodisiac. Getting it became problematic through legitimate sources as they try to keep a low profile. Then China shut down manufacture and supplies dried up. Of course China sees no problem with allowing fentanyl production to flourish.. Although many folks reported success you have to accept the risk of using a novel substance without any long term data on safety. On the other hand the classic psychedelics have a pretty good long term safety record. The devil you know....
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