Jump to content

Pebblesthecorgi

Advanced Members
  • Content Count

    611
  • Joined

  • Last visited

  • Days Won

    78

Pebblesthecorgi last won the day on July 2

Pebblesthecorgi had the most liked content!

Community Reputation

526 Excellent

2 Followers

About Pebblesthecorgi

  • Rank
    Advanced Member

Profile Information

  • Gender
    Male
  • Location
    midwest United States

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. What a bunch of inhuman BS. Blood patches are straight forward, effective and can be done quickly. See rate elevation is nonspecific and just means inflammation is somewhere in the body. The fever is a bigger concern to determine the source
  2. Unintentional must of been a copy paste problem
  3. This announcement is largely through the efforts of Bob W and his organization. Long overdue strikeouts appeared after posting not sure why Admins feel free to adjust. Our community has been advocating hard since 2011 to reverse a CMS (Ce
  4. Spinal headaches rival cluster attacks. They should be treated with a blood patch which works immediately. Conservative management includes lots of salt and caffeine. Blood patch is the way to go.
  5. Nasal imitrex is buffered differently than sq injection. I don't think its a good idea because it might cuse cell damage locally or not be absorbed. This is a theoretical answer but dividing cartridge doses into 2 mg aliquots is a good alternative if vials not available. It odd that vials arent available because Canadian pharmacies sell them to the US. Imitrex overuse can cause chest tightness or stomach pain because of vasoconstriction. Generally speaking younger folks (sub 55 or so) can tolerate more doses. Using oral version isn't much help for acute pain of a cluster. Reb
  6. The ER setting is not a place you will get visible compassionate care. All day they see pain scenarios: kidney stones, gallbladder attacks, headaches, back pain and trauma. Its hard to work in that environment and not seem a bit jaded when someone comes in with a pain complaint.. Not an excuse, just an explanation. Nothing moves fast in an ER except chest pain, strokes and trauma. As you were given steroids and popofol I'd say you got better treatment than most ER. Still it sucks. Emegality usually doesn't work for acute clusters, more of a prevent. Imitrex usually works but has some d
  7. For me the debilitating attacks stop suddenly and without explanation. I have pressure and shadows for a few weeks after. Of course I am always fearful the cycle will start up prematurely
  8. It always amazes me how new drugs get through the "rigors" of approval emerging as side effect free only to find out once in "the wild" to be problematic. Confirms that money talks. On the other hand if we never had a new med to use everyone would complain the process is too cumbersome. In the end Ricardo is correct, doctors and other providers need to LISTEN when patients offer serious complaints or concerns. All medications have potential side effects especially if you are on other meds that alter your metabolism. Thanks for the info!
  9. I am not sure I understand how cluster is blocking your ability to get hormone help. I hope you find the solutions you seek.
  10. I agree with @jon019. In the past when I was young, stress was a full time part of my life and the headaches seemed to be occasional and manageable. Once I worked my way into a quieter less stressful situation the headaches seemed to escalate. Psychological stress seems to make the demon less effective while physiologic stress raises all sorts of hell. (My experience) You will never ever be able to relate the pain and related issues to anyone in a understandable way. There is just no way to do it. Watching a video like the National Geographic piece featuring Dan shows the hor
  11. I think this would be very individual and dose dependent. Generally speaking the experience follows a fairly predictable course of six hours. The dose ingested will influence the intensity of the experience but usually not the length. Once you get into really high (heroic) doses of 5 gm (dried) the length of the experience is the same but you may have ineffable memories. Sticking to the sub 1.5 - 3 gm dried dosing I suspect sleep might be a challenge because there can be periods of anxiety and intense closed eyed visuals. My experience at late night dosing has been to count on being u
  12. If you are having cluster exacerbations that are affected by hormone changes you could try "turning off the ovaries" with something like Lupron or continuous oral contraception. There is no contraindication to hormone therapy (birth control, hormone replacement or cycle suppression) as directly regards cluster headaches. Some women have headache intensity changes depending on cyclic changes. It would be a rare neurologist who has a clue about cycle control, you would likely need a thoughtful gynecologist to help. Someone who specialized in reproductive endocrinology (infertility) would
  13. MAPS is holding their convention next year in Denver. A State with legalized cannabis and a city with decriminalized psychedelic plants. Hard to imagine momentum slowing down.
  14. https://news.wisc.edu/uw-madison-pioneers-masters-program-in-therapeutic-use-of-psychoactive-drugs/ It’s interesting they are establishing a degree path for a subject that still has a way to go in terms of legal availability. It might be fun to do but its 31 credits at 1500.00 a credit. That’s a lot to cash for a basically useless degree.
  15. I don’t think the vaccine itself will worsen a cycle. I do believe other states of inflammation will mitigate how bad a cycle can be. The injections do incite an immune response which is variable between individuals. The second shot seems to bring on more symptoms in people who have reactions. It’s even worse in folks who had the virus and chose to get the vaccine. I do think its worth considering the vaccine because COVID itself releases such an aggressive immune/inflammatory response it’s bound to exacerbate a cycle or make a chronic more miserable.
×
×
  • Create New...